CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2075-C09885	C09885	Food Frequency Questionnaire - (FFQ)-alcohol use ten years indicator	Indicator of how the subjects use of alcohol changed over the past ten years, as part of Food Frequency Questionnaire -(FFQ)	Exploratory	Food Frequency Questionnaire (FFQ)	True	Spinal Cord Injury	Spinal Cord Injury
F1725-C19348	C19348	Cardiovascular history other text	The free-text field related to "Cardiovascular history condition type" specifying other text	Exploratory	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F1718-C19358	C19358	Lab test type	Type of lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested, and any special instructions	Exploratory	Laboratory Tests	False	Spinal Cord Injury	Spinal Cord Injury
F2118-C17236	C17236	Swallowing Disturbance Questionnaire (SwDQ) - cough swallow solid food score	Score for how frequent the participant/subject coughs while swallowing solid foods, as a part of Swallowing Disturbance Questionnaire (SDQ)	Exploratory	Swallowing Disturbance Questionnaire (SDQ)	True	Spinal Cord Injury	Spinal Cord Injury
F2075-C09768	C09768	Food Frequency Questionnaire - (FFQ)-chicken turkey hot dogs sausages indicator	Average amount of chicken or turkey hot dogs or sausages the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)	Exploratory	Food Frequency Questionnaire (FFQ)	True	Spinal Cord Injury	Spinal Cord Injury
F2076-C19247	C19247	Subject ID	Subject identification ID	Exploratory	Electrical Perceptual Thresholds (Pediatric CDEs)	False	Spinal Cord Injury	Spinal Cord Injury
F2075-C09728	C09728	Food Frequency Questionnaire - (FFQ)-strawberries fresh frozen canned indicator	Average total amount of strawberries, fresh, frozen, or canned the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)	Exploratory	Food Frequency Questionnaire (FFQ)	True	Spinal Cord Injury	Spinal Cord Injury
F2120-C13206	C13206	Generalized Anxiety Disorder (GAD-7) - not stop worry scale	Scale describing how often participant/subject has not been able to stop or control worrying, as a part of Generalized Anxiety Disorder (GAD-7)	Exploratory	Generalized Anxiety Disorder (GAD-7) (Pediatric CDEs)	True	Spinal Cord Injury	Spinal Cord Injury
F2075-C09776	C09776	Food Frequency Questionnaire - (FFQ)-liver beef calf pork indicator	Average total amount of liver: beef, calf or pork the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)	Exploratory	Food Frequency Questionnaire (FFQ)	True	Spinal Cord Injury	Spinal Cord Injury
F2082-C19401	C19401	Brain Motor Control Assessment (BMCA) - Upper limb relaxation long lasting duration	Duration of long-lasting assessment of upper limb relaxation as part of the Brain Motor Control Assessment (BMCA)	Exploratory	Brain Motor Control Assessment - (Pediatric CDEs)	False	Spinal Cord Injury	Spinal Cord Injury
F2075-C09736	C09736	Food Frequency Questionnaire - (FFQ)-tofu burgers soybeans other soy protein indicator	Average total amount of tofu, soy burgers, soybeans, miso, or other soy protein the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)	Exploratory	Food Frequency Questionnaire (FFQ)	True	Spinal Cord Injury	Spinal Cord Injury
F1726-C06195	C06195	Constipating agent fecal incontinence drug last four week indicator	Indicator related to whether a constipating agent or drugs against fecal incontinence were used in the last four weeks	Exploratory	Prior and Concomitant Medications	False	Spinal Cord Injury	Spinal Cord Injury
F1790-C06461	C06461	Non traumatic spinal cord injury etiology classification axis 1 level 2 category	The category of level 2 of axis 1 to classify the cause of non-traumatic spinal cord injury	Exploratory	History of Injury	False	Spinal Cord Injury	Spinal Cord Injury
F1725-C19171	C19171	Cardiac pacemaker last insertion date	Date at which cardiac pacemaker was last inserted	Exploratory	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F2075-C09784	C09784	Food Frequency Questionnaire - (FFQ)-cooked oatmeal oat bran indicator	Average total amount of cooked oatmeal/cooked oat bran the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)	Exploratory	Food Frequency Questionnaire (FFQ)	True	Spinal Cord Injury	Spinal Cord Injury
F2082-C19415	C19415	Brain Motor Control Assessment (BMCA) - Muscle movement type	Type of muscle movement being evaluated as part of the Brain Motor Control Assessment (BMCA)	Exploratory	Brain Motor Control Assessment - (Pediatric CDEs)	False	Spinal Cord Injury	Spinal Cord Injury
F2075-C09744	C09744	Food Frequency Questionnaire - (FFQ)-corn indicator	Average total amount of corn the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)	Exploratory	Food Frequency Questionnaire (FFQ)	True	Spinal Cord Injury	Spinal Cord Injury
F1726-C19182	C19182	Steroid administration date	Date at which steroids (methylprednisone/corticosteroids) were administered during stay	Exploratory	Prior and Concomitant Medications	False	Spinal Cord Injury	Spinal Cord Injury
F1725-C19203	C19203	Pre-existing congenital deformity specify diagnosis name	Specifies name of pre-existing congenital deformity of the spine and spinal cord	Exploratory	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F2075-C09792	C09792	Food Frequency Questionnaire - (FFQ)-brown rice indicator	Average total amount of brown rice the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)	Exploratory	Food Frequency Questionnaire (FFQ)	True	Spinal Cord Injury	Spinal Cord Injury
F2082-C19429	C19429	Brain Motor Control Assessment (BMCA) - Passive stretch type	Type of passive stretch assessed as part of the Brain Motor Control Assessment (BMCA)	Exploratory	Brain Motor Control Assessment - (Pediatric CDEs)	False	Spinal Cord Injury	Spinal Cord Injury
F2075-C09752	C09752	Food Frequency Questionnaire - (FFQ)-raw spinach indicator	Average total amount of raw spinach the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)	Exploratory	Food Frequency Questionnaire (FFQ)	True	Spinal Cord Injury	Spinal Cord Injury
F1726-C19191	C19191	Examination day cardiovascular function medication other text	Free-text field for medication affecting cardiovascular function on the day of the examination	Exploratory	Prior and Concomitant Medications	False	Spinal Cord Injury	Spinal Cord Injury
F1725-C19211	C19211	Degenerative spine disorder surgery caused description	Description of surgery caused by degenerative spine disorder	Exploratory	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F1718-C01710	C01710	Pregnancy test qualitative result value	Result of the pregnancy test	Exploratory	Laboratory Tests	False	Spinal Cord Injury	Spinal Cord Injury

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.