CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 1776 - 1800 of 1886
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12685 Wheelchair use frequency

Frequency with which the participant/subject uses their wheelchair, if applicable

Supplemental Assistive/Mobility Devices and Orthoses Spinal Cord Injury Spinal Cord Injury
C19401 Brain Motor Control Assessment (BMCA) - Upper limb relaxation long lasting duration

Duration of long-lasting assessment of upper limb relaxation as part of the Brain Motor Control Assessment (BMCA)

Supplemental Brain Motor Control Assessment Spinal Cord Injury Spinal Cord Injury
C02496 Imaging scanner manufacturer name

Name of manufacturer of imaging scanner

Supplemental Diffusion Tensor Imaging Spinal Cord Injury Spinal Cord Injury
C01017 Pediatric Glasgow Coma Scale (PGCS) - total score

Score for the participant's total Pediatric Glasgow Coma Scale (PGCS) score of the 3 tests, eye, motor, and verbal responses. A score of less than 9 would indicate that that participant is in a severe coma while a score of greater than 9 is a mild or no coma at all

Supplemental Pre-Hospital Assessment Form Spinal Cord Injury Spinal Cord Injury
C19103 Upper extremity surgery right soft tissue reconstruction tendon wrist performed indicator

The indicator for the surgical procedure of the right tendon for wrist extension in soft tissue reconstruction

Supplemental Surgical and Procedural Interventions Spinal Cord Injury Spinal Cord Injury
C06004 Ventilatory assistance utilization frequency indicator

Documents any use of any type of ventilatory assistance used to sustain respiration on the date of final inpatient discharge (the date of discharge from the last inpatient rehabilitation hospital or discharge from the last acute care hospital if the patient is not admitted to a rehabilitation hospital)

Supplemental-Highly Recommended International SCI Core Data Set Spinal Cord Injury Spinal Cord Injury
C06000 Site identifier number

Unique identification number given to the study site to distinguish the location where data is recorded

Supplemental-Highly Recommended International SCI Upper Extremity Basic Data Set Spinal Cord Injury Spinal Cord Injury
C19496 Spinal cord injury upper extremity hand reconstructive surgery performed anatomic site

The anatomic site related to upper extremity or hand reconstructive surgery being performed due to spinal cord injury

Supplemental-Highly Recommended International SCI Upper Extremity Basic Data Set Spinal Cord Injury Spinal Cord Injury
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

Supplemental-Highly Recommended International SCI Upper Extremity Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06056 Pain past seven day indicator

Indicator of the presence of any type of pain during the last 7 days, including today

Supplemental-Highly Recommended International SCI Pain Basic Data Set Version 2.0 Spinal Cord Injury Spinal Cord Injury
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Supplemental-Highly Recommended International SCI Core Data Set Spinal Cord Injury Spinal Cord Injury
C19495 Spinal cord injury upper extremity hand reconstructive surgery status

Indicate whether upper extremity/hand reconstructive surgery was performed

Supplemental-Highly Recommended International SCI Upper Extremity Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06070 Pain interfere daily activity scale

Scale that evaluates to what extent pain has interfered with the participant's daily activities

Supplemental-Highly Recommended International SCI Pain Basic Data Set Version 2.0 Spinal Cord Injury Spinal Cord Injury
C00013 Education level primary caregiver USA type

Highest grade or level of school the participant's/subject's primary caregiver has completed or the highest degree he/she has received

Supplemental-Highly Recommended Demographics Spinal Cord Injury Spinal Cord Injury
C11079 Neonate delivery route type

Route of delivery of the neonate

Supplemental-Highly Recommended Birth Injuries Spinal Cord Injury Spinal Cord Injury
C15985 Multiple birth indicator

Indicates whether the participant/subject was a part of a multiple live birth

Supplemental-Highly Recommended Birth Injuries Spinal Cord Injury Spinal Cord Injury
C14699 Berg Balance Scale (BBS) - unsupport feet together scale

The scale for assessment of standing unsupported with feet together based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental-Highly Recommended Berg Balance Scale (BBS) Spinal Cord Injury Spinal Cord Injury
C17394 Berg Balance Scale (BBS) - stand one leg scale

The scale for assessment of standing on one leg based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental-Highly Recommended Berg Balance Scale (BBS) Spinal Cord Injury Spinal Cord Injury
C07438 Patient Health Questionnaire (PHQ) - Movement speech impairment score

Score of how much the subject has been suffering with moving or speaking too slowly in the past two weeks, as part of the Patient Health Questionnaire (PHQ)

Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Spinal Cord Injury Spinal Cord Injury
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

Supplemental-Highly Recommended International SCI Core Data Set Spinal Cord Injury Spinal Cord Injury
C19096 Surgery performed date

Date of last surgical intervention

Supplemental-Highly Recommended International SCI Upper Extremity Basic Data Set Spinal Cord Injury Spinal Cord Injury
C19497 Spinal cord injury upper extremity hand reconstructive surgery performed indicator

The indicator of whether upper extremity or hand reconstructive surgery was performed due to spinal cord injury

Supplemental-Highly Recommended International SCI Upper Extremity Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06000 Site identifier number

Unique identification number given to the study site to distinguish the location where data is recorded

Supplemental-Highly Recommended International SCI Upper Extremity Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06057 Pain different problem number

Number of different pain problems an individual perceives that he or she has experienced during the last seven days including today. A "pain problem" is defined by the person himself as a pain that has a specific character

Supplemental-Highly Recommended International SCI Pain Basic Data Set Version 2.0 Spinal Cord Injury Spinal Cord Injury
C00035 Gender type

Self-reported gender of the participant/subject

Supplemental-Highly Recommended International SCI Core Data Set Spinal Cord Injury Spinal Cord Injury
Displaying 1776 - 1800 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.