CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 1776 - 1800 of 1886

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1791-C19367	C19367	Abbreviated injury scale nine body region category	The nine body regions assessed with the 6 point advanced ordinal severity scale	Supplemental	Pre-Hospital Assessment Form	False	Spinal Cord Injury	Spinal Cord Injury
F1724-C19159	C19159	Care provision level	The level of care provided to participant by health care facility	Supplemental	Acute Admission/Discharge	False	Spinal Cord Injury	Spinal Cord Injury
F0819-C21669	C21669	Surgical therapeutic procedure ICD-10-CM other text	The free-text field related to 'Surgical or therapeutic procedure ICD-10-CM code' specifying other text. Code from the International Classification of Diseases, Tenth Revision, Clinical Modification (ICD-10-CM) for the selected surgical procedure	Supplemental	International SCI Lower Urinary Tract Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1739-C17402	C17402	Site name	The name of the site for the study	Supplemental	Electrical Perceptual Thresholds	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C06117	C06117	Peak expiratory flow measurement	Peak expiratory flow (PEF) value measured in liters/minute. PEF is the maximal expiratory flow rate achieved during the forced vital capacity (FVC) maneuver	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F1748-C19492	C19492	Spinal cord injury upper extremity shoulder function status	The status of shoulder function as part of the test in spinal cord injury	Supplemental-Highly Recommended	International SCI Upper Extremity Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1748-C19500	C19500	Assessment performed date	The date of assessment of the examination being performed	Supplemental-Highly Recommended	International SCI Upper Extremity Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1748-C19493	C19493	Spinal cord injury upper extremity assistive device use frequency value	The frequency of use of assistive devices for upper extremity in spinal cord injury	Supplemental-Highly Recommended	International SCI Upper Extremity Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1748-C19501	C19501	Spinal cord injury upper extremity hand reconstructive soft tissue surgery performed other text	The free-text field to specify other soft tissue anatomic site related to upper extremity or hand reconstructive surgery of being performed due to spinal cord injury	Supplemental-Highly Recommended	International SCI Upper Extremity Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2031-C14704	C14704	Berg Balance Scale (BBS) - alternate foot step up scale	The scale for assessment of placing alternate foot on step or stool while standing unsupported based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental-Highly Recommended	Berg Balance Scale (BBS)	False	Spinal Cord Injury	Spinal Cord Injury
F0818-C06000	C06000	Site identifier number	Unique identification number given to the study site to distinguish the location where data is recorded	Supplemental-Highly Recommended	International SCI Core Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0824-C06062	C06062	Pain intensity average past week scale	Scale of the participant's/subject's pain intensity in the past week. A 0 - 10 Numerical Rating Scale (ranging from 0 = "No pain" to a maximum of 10 = "Pain as bad as you can imagine") of average pain intensity for the past week	Supplemental-Highly Recommended	International SCI Pain Basic Data Set Version 2.0	False	Spinal Cord Injury	Spinal Cord Injury
F2032-C07435	C07435	Patient Health Questionnaire (PHQ) - Abnormal diet score	Score of how much the subject has been bothered by abnormal diet/appetite in the past two weeks, as part of the Patient Health Questionnaire (PHQ)	Supplemental-Highly Recommended	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Spinal Cord Injury	Spinal Cord Injury
F2068-C00724	C00724	APGAR five minute score	Score of a newborn recorded at five minutes from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness	Supplemental-Highly Recommended	Birth Injuries	False	Spinal Cord Injury	Spinal Cord Injury
F2068-C12628	C12628	Neonatal intensive care unit stay indicator	Indicator whether the participant/subject had to stay in the neonatal intensive care unit (NICU)	Supplemental-Highly Recommended	Birth Injuries	False	Spinal Cord Injury	Spinal Cord Injury
F2031-C14696	C14696	Berg Balance Scale (BBS) - stand sit scale	The scale for assessment of standing to sitting based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental-Highly Recommended	Berg Balance Scale (BBS)	False	Spinal Cord Injury	Spinal Cord Injury
F0824-C06000	C06000	Site identifier number	Unique identification number given to the study site to distinguish the location where data is recorded	Supplemental-Highly Recommended	International SCI Pain Basic Data Set Version 2.0	False	Spinal Cord Injury	Spinal Cord Injury
F1748-C19493	C19493	Spinal cord injury upper extremity assistive device use frequency value	The frequency of use of assistive devices for upper extremity in spinal cord injury	Supplemental-Highly Recommended	International SCI Upper Extremity Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1748-C19501	C19501	Spinal cord injury upper extremity hand reconstructive soft tissue surgery performed other text	The free-text field to specify other soft tissue anatomic site related to upper extremity or hand reconstructive surgery of being performed due to spinal cord injury	Supplemental-Highly Recommended	International SCI Upper Extremity Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1748-C19494	C19494	Spinal cord injury upper extremity function complications status	The status of complications to upper extremity function like pain, spasms, contractures, edema, etc	Supplemental-Highly Recommended	International SCI Upper Extremity Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2031-C14705	C14705	Berg Balance Scale (BBS) - unsupport stand front foot scale	The scale for assessment of standing unsupported one foot in front based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental-Highly Recommended	Berg Balance Scale (BBS)	False	Spinal Cord Injury	Spinal Cord Injury
F0818-C06002	C06002	Inpatient treatment total day number	Total number of days spent in the hospital from the date of injury until discharge from the last inpatient treatment phase (the date of inpatient discharge)	Supplemental-Highly Recommended	International SCI Core Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0824-C06063	C06063	Pain onset date	Date (and time, if applicable and known) the particular pain problem started	Supplemental-Highly Recommended	International SCI Pain Basic Data Set Version 2.0	False	Spinal Cord Injury	Spinal Cord Injury
F2032-C07436	C07436	Patient Health Questionnaire (PHQ) - Feeling failure score	Score of how much the subject has been feeling bad for himself/herself in the past two weeks, as part of the Patient Health Questionnaire (PHQ)	Supplemental-Highly Recommended	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Spinal Cord Injury	Spinal Cord Injury
F2068-C11066	C11066	Pregnancy or delivery risk factor type	Type of risk factor to the participant's/subject's health that may have been experienced during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery	Supplemental-Highly Recommended	Birth Injuries	False	Spinal Cord Injury	Spinal Cord Injury

Displaying 1776 - 1800 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.