CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 1751 - 1775 of 1888

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Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0823-C06214	C06214	Rectal emptying incomplete frequency	The frequency of any sense of incomplete rectal emptying after defecation within the last three months.	Supplemental	International SCI Bowel Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C06244	C06244	Colonic transit right side measurement	The transit time of the caecum, ascending- and transverse colon assessed by means of radioopaque markers and measured in hours.	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F0834-C06463	C06463	Non traumatic spinal cord injury iatrogenic indicator	Indicate whether there was any iatrogenic role in the etiology of the non-traumatic spinal cord injury	Supplemental	International Non-Traumatic Spinal Cord Injury Basic and Extended Data Sets	False	Spinal Cord Injury	Spinal Cord Injury
F3115-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental	International SCI Quality of Life Basic Data Set Version 2.0	False	Spinal Cord Injury	Spinal Cord Injury
F0827-C18794	C18794	Cardiovascular event after spinal cord lesion other text	The free-text field related to 'Cardiovascular event after spinal cord lesion type' specifying other text. Events related to cardiovascular functions that may have occurred at any time after the spinal cord lesion	Supplemental	International SCI Cardiovascular Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22247	C22247	Dual X-ray absorptiometry scan osteoporosis diagnosis anatomic site	This variable documents bone mineral density at skeletal sites of interest, including the distal femur, proximal tibia, total hip, femoral neck, and radius (at one-third site)	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0821-C18134	C18134	Cystogram result type	The type as related to the cystrogram result	Supplemental	International SCI Urinary Tract Imaging Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0832-C06405	C06405	Hyperhidrosis past three months status	Status of whether the subject had hyperhidrosis after spinal cord lesion within the last three months. Hyperhidrosis is defined as excessive sweating above or below level of injury in the absence of increased ambient temperature	Supplemental	International SCI Skin and Thermoregulation Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2121-C14647	C14647	Functional Disability Inventory (FDI) - child form riding bus car scale	The scale of the child's or adolescent's ability to ride the bus to school or travel in a car when sick or not feeling well from the past two weeks, as part of the Functional Disability Inventory (FDI) - Child and Adolescent Form	Supplemental	Functional Disability Inventory - Child and Adolescent Form (FDI)	True	Spinal Cord Injury	Spinal Cord Injury
F1803-C18689	C18689	Imaging anatomic site other text	The free-text field related to 'Imaging anatomic site', specifying other text. Anatomic site of body part or anatomy scanned in the imaging study	Supplemental	Magnetic Resonance Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F0820-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental	International SCI Urodynamic Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1742-C02495	C02495	Imaging scanner strength value type	Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported	Supplemental	Diffusion Tensor Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F2070-C12683	C12683	Mobility device type	Type for all mobility devices currently used by the participant/subject	Supplemental	Assistive/Mobility Devices and Orthoses	False	Spinal Cord Injury	Spinal Cord Injury
F1726-C02006	C02006	Medication prior or concomitant dose	Dose of prior/concomitant medication taken per administration	Supplemental	Prior and Concomitant Medications	False	Spinal Cord Injury	Spinal Cord Injury
F1791-C19367	C19367	Abbreviated injury scale nine body region category	The nine body regions assessed with the 6 point advanced ordinal severity scale	Supplemental	Pre-Hospital Assessment Form	False	Spinal Cord Injury	Spinal Cord Injury
F1737-C00008	C00008	Age value	Value for participant's age, calculated as elapsed time since the birth of the participant	Supplemental	Demographics	False	Spinal Cord Injury	Spinal Cord Injury
F1719-C05453	C05453	Hypotensive episode indicator	Indicator of hypotensive episode. In adults, hypotensive episode is defined as systolic blood pressure	Supplemental	Surgical and Procedural Interventions	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22352	C22352	Laboratory procedure renin aldosterone function aldosterone supine serum value	The value related to concentration of serum aldosterone when participant/subject is supine	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C06263	C06263	Bladder function detrusor maximum pressure value	Value of the maximum detrusor pressure on the participant/subject during filling cystometry	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F0834-C19247	C19247	Subject ID	Subject identification ID	Supplemental	International Non-Traumatic Spinal Cord Injury Basic and Extended Data Sets	False	Spinal Cord Injury	Spinal Cord Injury
F3115-C06142	C06142	Spinal cord injury general quality life scale	Numeric response of life quality satisfaction of participant for the past four weeks	Supplemental	International SCI Quality of Life Basic Data Set Version 2.0	False	Spinal Cord Injury	Spinal Cord Injury
F0827-C58642	C58642	Cardiovascular disease family history type unknown indicator	Indicator of whether the type of cardiovascular disease of which the subject/participant's family has a history is unknown	Supplemental	International SCI Cardiovascular Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22277	C22277	Thyroid disease assessment date	Date when information was collected for prior thyroid disease	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0822-C06025	C06025	Surgical or therapeutic procedure performed indicator	Indicator whether the participant/subject has undergone the selected surgical procedure	Supplemental	International SCI Bowel Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0832-C19247	C19247	Subject ID	Subject identification ID	Supplemental	International SCI Skin and Thermoregulation Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury

Displaying 1751 - 1775 of 1888

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.