CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 176 - 200 of 1886
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19185 Urinary tract drug use other text

The free-text field related to 'Urinary tract drug use indicator' specifying other text. Indicator for urinary tract drugs used within the last year

 Exploratory Prior and Concomitant Medications False Spinal Cord Injury Spinal Cord Injury
C00004 Birth country ISO code

Code (ISO 3166-1 alpha-2 code) for country where the participant/subject was born

 Exploratory Demographics False Spinal Cord Injury Spinal Cord Injury
C19206 Congenital deformity surgery caused description

Description of surgery caused by pre-existing congenital deformities of spine and spinal cord

 Exploratory Medical History False Spinal Cord Injury Spinal Cord Injury
C01703 Lab panel category

Category or panel of lab tests, often logically grouped according to type of testing (Hematology, Chemistry, Urinalysis) or specimen type (Blood, Urine, CSF)

 Exploratory Laboratory Tests False Spinal Cord Injury Spinal Cord Injury
C09795 Food Frequency Questionnaire - (FFQ)-tortillas indicator

Average total amount of tortillas the subject ate this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C19438 Brain Motor Control Assessment (BMCA) - Average maximum pressure value

The average of all maximum pressure values recorded in the designated protocol as part of the Brain Motor Control Assessment (BMCA)

 Exploratory Brain Motor Control Assessment - (Pediatric CDEs) False Spinal Cord Injury Spinal Cord Injury
C20378 Pittsburgh Sleep Quality Index (PSQI) - Actual sleep past month hour scale

The scaled duration (in hours) of actual sleep per night in the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Exploratory Pittsburgh Sleep Quality Index (PSQI) False Spinal Cord Injury Spinal Cord Injury
C09755 Food Frequency Questionnaire - (FFQ)-Romaine leaf lettuce indicator

Average total amount of romaine or lead lettuce the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C22779 Vasopressor use date

Date (and time, if applicable) when the vasopressor was administered

 Exploratory Prior and Concomitant Medications False Spinal Cord Injury Spinal Cord Injury
C19214 Pre-existing systemic neuro-degenerative disorder specify anatomic site

Specifies anatomic site of pre-existing systemic neuro-degenerative disorder

 Exploratory Medical History False Spinal Cord Injury Spinal Cord Injury
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

 Exploratory Laboratory Tests False Spinal Cord Injury Spinal Cord Injury
C17231 Swallowing Disturbance Questionnaire (SwDQ) - swallow food multiple time before ingest score

Score for how frequent the participant/subject swallows chewed up food several times before it goes down the throat, as a part of Swallowing Disturbance Questionnaire (SDQ)

 Exploratory Swallowing Disturbance Questionnaire (SDQ) True Spinal Cord Injury Spinal Cord Injury
C09763 Food Frequency Questionnaire - (FFQ)-bacon indicator

Average total amount of bacon the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C12710 Electrophysiology assessment date and time

Date the particular electrophysiology study was performed

 Exploratory Electrical Perceptual Thresholds (Pediatric CDEs) False Spinal Cord Injury Spinal Cord Injury
C09723 Food Frequency Questionnaire - (FFQ)-orange juice calcium fortified indicator

Average total amount of orange juice the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C17239 Swallowing Disturbance Questionnaire (SwDQ) - difficulty breathe meal score

Score for how frequent the participant/subject experiences difficulty breathing during meals, as a part of Swallowing Disturbance Questionnaire (SDQ)

 Exploratory Swallowing Disturbance Questionnaire (SDQ) True Spinal Cord Injury Spinal Cord Injury
C09771 Food Frequency Questionnaire - (FFQ)-hamburger lean indicator

Average total amount of lean or extra lean hamburger the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C19323 Spinal cord injury neurological level

Neurological level of spinal cord injury

 Exploratory Electrical Perceptual Thresholds (Pediatric CDEs) False Spinal Cord Injury Spinal Cord Injury
C09731 Food Frequency Questionnaire - (FFQ)-apricots indicator

Average amount of apricots the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C13209 Generalized Anxiety Disorder (GAD-7) - restless scale

Scale describing how often participant/subject is so restless that it is hard to sit still, as a part of Generalized Anxiety Disorder (GAD-7)

 Exploratory Generalized Anxiety Disorder (GAD-7) (Pediatric CDEs) True Spinal Cord Injury Spinal Cord Injury
C09779 Food Frequency Questionnaire - (FFQ)-breaded fish cakes pieces fish sticks indicator

Average total amount of breaded fish cakes, pieces, or fish sticks the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C19404 Brain Motor Control Assessment (BMCA) - Repeatability over three trials result

Repeatability of response occurring over three trials as part of the Brain Motor Control Assessment (BMCA)

 Exploratory Brain Motor Control Assessment - (Pediatric CDEs) False Spinal Cord Injury Spinal Cord Injury
C09739 Food Frequency Questionnaire - (FFQ)-cabbage coleslaw indicator

Average total amount of cabbage or coleslaw the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C09866 Food Frequency Questionnaire - (FFQ)-cooking oil indicator

The type of cooking oil the subject usually uses at home, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C09701 Food Frequency Questionnaire - (FFQ)-low carb artificially sweetened plain yogurt indicator

Average total amount of yogurt (low carb, artificially sweetened or plain) the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
Displaying 176 - 200 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.