CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1739-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	Electrical Perceptual Thresholds	False	Spinal Cord Injury	Spinal Cord Injury
F2069-C21635	C21635	Fall record date and time	Date and time for each fall recorded in the falls diary by the participant/subject	Supplemental	Falls Diary	False	Spinal Cord Injury	Spinal Cord Injury
F1791-C14205	C14205	Emergency Medical Services (EMS) scene arrival date and time	This refers to the date/time when the Emergency Medical Services (EMS) vehicle arrives on the scene to transport the patient to the hospital	Supplemental	Pre-Hospital Assessment Form	False	Spinal Cord Injury	Spinal Cord Injury
F1736-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	Sympathetic Skin Responses	False	Spinal Cord Injury	Spinal Cord Injury
F0829-C06110	C06110	Pneumonia episode treat antibiotic past year number	Number of pneumonia episodes treated with antibiotics occurring after the spinal cord lesion and within the last year	Supplemental	International SCI Pulmonary Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22331	C22331	Laboratory procedure gonadal function estradiol plasma serum value	The value related to concentration of estradiol in the plasma/serum	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0823-C06000	C06000	Site identifier number	Unique identification number given to the study site to distinguish the location where data is recorded	Supplemental	International SCI Bowel Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0834-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental	International Non-Traumatic Spinal Cord Injury Basic and Extended Data Sets	False	Spinal Cord Injury	Spinal Cord Injury
F2604-C18797	C18797	Sexual problem unrelate spinal cord lesion specify text	The free-text field related to 'Sexual problem unrelate spinal cord lesion indicator'. Indicator of whether the person complained of sexual issues prior to or after the spinal cord lesion that are unrelated to the spinal cord lesion	Supplemental	International SCI Female and Male Sexual Function Basic Data Sets v2.0	False	Spinal Cord Injury	Spinal Cord Injury
F0827-C18666	C18666	Body system category other text	The free-text field related to 'Body system category', specifying other text. Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured	Supplemental	International SCI Cardiovascular Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22240	C22240	Laboratory procedure N telopeptide urine value	Value of N telopeptide urine taken from laboratory procedure	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0821-C18130	C18130	Renography urinary tract other finding text	The free-text field for other findings from the urinary tract renography study	Supplemental	International SCI Urinary Tract Imaging Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0832-C06377	C06377	Skin thermoregulation pressure ulcer surgically treat indicator	Indicator of whether the ulcer has been surgically treated. Surgical treatment may include any treatment ranging from small debridement of the surface of the ulcer to rotation flaps	Supplemental	International SCI Skin and Thermoregulation Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1723-C19150	C19150	Initiation date	The date of initiation	Supplemental	Rehabilitation Therapies	False	Spinal Cord Injury	Spinal Cord Injury
F2121-C14643	C14643	Functional Disability Inventory (FDI) - child form friend activity scale	The scale of the child's or adolescent's ability to engage with a friend when sick or not feeling well from the past two weeks, as part of the Functional Disability Inventory (FDI) - Child and Adolescent Form	Supplemental	Functional Disability Inventory - Child and Adolescent Form (FDI)	True	Spinal Cord Injury	Spinal Cord Injury
F0009-C02304	C02304	Adverse event study intervention relatedness investigator assessment grade	Grade of the causality between the treatment modality/intervention and the specific adverse event	Supplemental	Adverse Events	0	Spinal Cord Injury	Spinal Cord Injury
F1803-C02497	C02497	Imaging scanner model name	Name of model of imaging scanner	Supplemental	Magnetic Resonance Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1719-C19121	C19121	Upper extremity surgery right implantable FES performed indicator	The indicator for surgical procedure on the right side with an Implantable FES	Supplemental	Surgical and Procedural Interventions	False	Spinal Cord Injury	Spinal Cord Injury
F1739-C19316	C19316	Dermatome area name	Name of dermatome area	Supplemental	Electrical Perceptual Thresholds	False	Spinal Cord Injury	Spinal Cord Injury
F2069-C21643	C21643	Fall details specify type	Description of what the participant/subject was doing when the fall recorded in Falls Diary occurred when not walking	Supplemental	Falls Diary	False	Spinal Cord Injury	Spinal Cord Injury
F1791-C19333	C19333	Arrival intubation indicator	Indicator for intubation on arrival	Supplemental	Pre-Hospital Assessment Form	False	Spinal Cord Injury	Spinal Cord Injury
F1736-C21658	C21658	Electrodiagnostic exam date	The date of the electrodiagnostic exam testing	Supplemental	Sympathetic Skin Responses	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22346	C22346	Laboratory procedure sympathetic nervous function norephrine supine plasma value	The value related to concentration of plasma norepinephrine when participant/subject is supine	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0834-C06467	C06467	Non traumatic spinal cord injury axis 2 ICD version number	ICD version used to classify the etiology of non-traumatic spinal cord injury	Supplemental	International Non-Traumatic Spinal Cord Injury Basic and Extended Data Sets	False	Spinal Cord Injury	Spinal Cord Injury
F3115-C19247	C19247	Subject ID	Subject identification ID	Supplemental	International SCI Quality of Life Basic Data Set Version 2.0	False	Spinal Cord Injury	Spinal Cord Injury

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.