CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1803-C19470	C19470	Spine upper level anatomic site	Anatomic site on the upper level of the spinal cord	Supplemental	Magnetic Resonance Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1780-C19338	C19338	Electrophysiology test coil location text	Text articulating the location of coil in electrophysiology test	Supplemental	Motor Evoked Potentials	False	Spinal Cord Injury	Spinal Cord Injury
F1732-C58649	C58649	Quantitative sensory testing decrease stimulation rate unit of measure	The unit of measure for the rate of decrease of stimulation in quantitative sensory testing. Related to "Quantitative sensory testing decrease stimulation rate value"	Supplemental	Quantitative Sensory Testing	False	Spinal Cord Injury	Spinal Cord Injury
F1803-C19261	C19261	Imaging magnetic resonance imaging quality result	Image quality of magnetic resonance image	Supplemental	Magnetic Resonance Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1724-C19159	C19159	Care provision level	The level of care provided to participant by health care facility	Supplemental	Acute Admission/Discharge	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C06117	C06117	Peak expiratory flow measurement	Peak expiratory flow (PEF) value measured in liters/minute. PEF is the maximal expiratory flow rate achieved during the forced vital capacity (FVC) maneuver	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F1731-C06059	C06059	Pain location anatomic site	Anatomic site on the body where the pain is experienced	Supplemental	International SCI Pain Basic Data Subset	False	Spinal Cord Injury	Spinal Cord Injury
F0829-C19785	C19785	Medical history pulmonary bilevel positive airway pressure start date	Date of start of bilevel positive airway pressure	Supplemental	International SCI Pulmonary Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1722-C19128	C19128	Facility arrival date	Date when patient arrived at facility	Supplemental	Rehabilitation Admission/Discharge	False	Spinal Cord Injury	Spinal Cord Injury
F0819-C21671	C21671	Urinary tract antibiotic antiseptic use reason	Reason antibiotics or antiseptics were used for the urinary tract	Supplemental	International SCI Lower Urinary Tract Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1425-C06000	C06000	Site identifier number	Unique identification number given to the study site to distinguish the location where data is recorded	Supplemental	International SCI Urinary Tract Infection Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22294	C22294	Thyroid disease prior diagnosis other date	Date when other thyroid disease was diagnosed	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0828-C06146	C06146	Spinal cord injury psychological health satisfaction scale	Numeric response of psychological health emotions and mood of participant for the past four weeks	Supplemental	International SCI Quality of Life Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2513-C06414	C06414	Spinal cord injury etiology type	Etiology of the spinal cord injury. Traumatic spinal cord injury is impairment of the spinal cord or cauda equina function resulting from the application of an external force of any magnitude	Supplemental	International SCI Core Data Set v2.0	False	Spinal Cord Injury	Spinal Cord Injury
F0823-C06216	C06216	Abdominal pain discomfort frequency	The frequency of abdominal pain/discomfort within the last three months.	Supplemental	International SCI Bowel Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C12179	C12179	Dual X-ray absorptiometry hip Z score	Dual X-ray absorptiometry (DEXA) Hip Z score result value	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1782-C02494	C02494	Imaging study date and time	Date (and time, if applicable and known) the radiologic study was obtained	Supplemental	Sensory Evoked Potentials	False	Spinal Cord Injury	Spinal Cord Injury
F1735-C12697	C12697	Electrophysiology motor nerve latency value	The length of time needed for the electrical impulse to travel between the stimulation and recording sites measured during the motor nerve conduction study	Supplemental	Peripheral Nerve Studies	False	Spinal Cord Injury	Spinal Cord Injury
F1803-C19381	C19381	Spine extra-axial fluid upper limit level anatomic site	Upper limit of level for anatomic site as related with an overdrainage of cerebrospinal fluid	Supplemental	Magnetic Resonance Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1724-C21632	C21632	Intensive care unit type	Type of intensive care unit the participant/subject is in	Supplemental	Acute Admission/Discharge	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C06154	C06154	Stasis dilation upper urinary tract laterality type	The laterality type related to stasis/ dilatation in upper urinary tract. This means stasis or dilatation was found of the renal pelvis (hydronephrosis) and/or ureter (hydroureteris) on either side	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F1731-C06073	C06073	Pain treatment indicator	Indicator for whether the participant is using or receiving any treatment for the pain experienced	Supplemental	International SCI Pain Basic Data Subset	False	Spinal Cord Injury	Spinal Cord Injury
F0830-C01582	C01582	Height unit of measure	Unit of measure for the height numerical value for participant	Supplemental	International SCI Endocrine and Metabolic Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1722-C21657	C21657	Rehabilitation facility type	The type of rehabilitation facility to which the participant was discharged	Supplemental	Rehabilitation Admission/Discharge	False	Spinal Cord Injury	Spinal Cord Injury
F0825-C06000	C06000	Site identifier number	Unique identification number given to the study site to distinguish the location where data is recorded	Supplemental	International SCI Female and Male Sexual Function Basic Data Sets	False	Spinal Cord Injury	Spinal Cord Injury

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.