CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 1601 - 1625 of 1886
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19307 Spine subluxation translation level measurement

Measure of subluxation from posterior aspect of vertebral body relative to nearest adjacent body (in mm)

 Supplemental Magnetic Resonance Imaging False Spinal Cord Injury Spinal Cord Injury
C07080 Alcohol Use Disorders Identification Test (AUDIT) - Drink contain alcohol frequency score

Score for the frequency with which the subject consumes alcoholic drinks, as part of the Alcohol Use Disorders Identification Test (AUDIT)

 Supplemental Alcohol Use Disorders Identification Test: Self-Report Version (AUDIT) False Spinal Cord Injury Spinal Cord Injury
C19162 Acute care unit admission date

The date at which participant was admitted to acute care unit

 Supplemental Acute Admission/Discharge False Spinal Cord Injury Spinal Cord Injury
C06126 Kidney right excretory function measurement

The percentage of excretory function for the right kidney. The combined excretory function for the two kidneys is 100 %

 Supplemental Vital Signs and Tests False Spinal Cord Injury Spinal Cord Injury
C06061 Pain type

Type of pain present. Eight broad types of pain are specified based on the new SCI pain taxonomy that has been published and validated (Bryce TN, Biering-Sorensen F, Finnerup NB, Cardenas DD, Defrin R, Lundeberg T et al.
International spinal cord injury pain (ISCIP) classification: part I. Background and description. Spinal Cord 2012; 50: 413-417. and Bryce TN, Biering-Sorensen F, Finnerup NB, Cardenas DD, Defrin R, Ivan E et al.
International spinal cord injury pain (ISCIP) classification: part 2. Initial validation using vignettes. Spinal Cord 2012; 50: 404-412.)

 Supplemental International SCI Pain Basic Data Subset False Spinal Cord Injury Spinal Cord Injury
C19130 Facility discharge date

Date when patient was discharged from facility

 Supplemental Rehabilitation Admission/Discharge False Spinal Cord Injury Spinal Cord Injury
C17413 Urinary tract infection symptom duration

Duration of symptoms associated with a bacterial infectious process affecting any part of the urinary tract, most commonly the bladder and the urethra

 Supplemental International SCI Urinary Tract Infection Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C22299 Laboratory procedure thyroid function goiter presence status

The status related to presence of goiter

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C59691 Spinal cord injury social life satisfaction scale

Numeric response of social life satisfaction of participant for the past four weeks

 Supplemental International SCI Quality of Life Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19247 Subject ID

Subject identification ID

 Supplemental International SCI Core Data Set v2.0 False Spinal Cord Injury Spinal Cord Injury
C06218 Perianal pain defecation frequency

The frequency of any perianal pain during defecation within the last three months

 Supplemental International SCI Bowel Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C19722 Laboratory procedure glycosylated hemoglobin measurement

Measurement of the amount of glycosylated hemoglobin (hemoglobin A1C) in the participant's blood

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C18765 Surgical or therapeutic procedure other text

The free-text field related to 'Surgical or therapeutic procedure type' specifying other text. Type of surgical or therapeutic procedure received by the participant/subject

 Supplemental International SCI Lower Urinary Tract Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06196 Oral laxative drops liquid type

Type of drops or liquid oral laxative, a medicine taken by mouth to encourage bowel movements to relieve constipation taken within the last four weeks

 Supplemental International SCI Bowel Function Basic Data Set Version 2.0 False Spinal Cord Injury Spinal Cord Injury
C15544 Imaging stimulation intensity value

Stimulation intensity used on imaging

 Supplemental Sensory Evoked Potentials False Spinal Cord Injury Spinal Cord Injury
C12699 Electrophysiology motor nerve amplitude measurement

The measured amplitude of signal response to test stimulation during the motor nerve conduction study

 Supplemental Peripheral Nerve Studies False Spinal Cord Injury Spinal Cord Injury
C19383 Spine extra-axial fluid point of maximum compression level anatomic site

The anatomic site level for point of maximum compression in area with an overdrainage of cerebrospinal fluid

 Supplemental Magnetic Resonance Imaging False Spinal Cord Injury Spinal Cord Injury
C07088 Alcohol Use Disorders Identification Test (AUDIT) - Drink injury indicator score

Score for the indicator of whether someone that the subject knows was injured due to his or her drinking, as part of the Alcohol Use Disorders Identification Test (AUDIT)

 Supplemental Alcohol Use Disorders Identification Test: Self-Report Version (AUDIT) False Spinal Cord Injury Spinal Cord Injury
C00314 Medical history taken date and time

Date (and time, if applicable and known) the participant's medical history was taken

 Supplemental Medical History False Spinal Cord Injury Spinal Cord Injury
C06158 Ureter stone laterality type

The laterality type related to stone present in the ureter. This means urinary stone(s) was/were found in the ureter on either side

 Supplemental Vital Signs and Tests False Spinal Cord Injury Spinal Cord Injury
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

 Supplemental Quantitative Sensory Testing False Spinal Cord Injury Spinal Cord Injury
C01705 Lab test name

Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested, and any special instructions

 Supplemental International SCI Endocrine and Metabolic Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19136 Rehabilitation services assessment/reception indicator

Indicator for the assessment for or reception of rehabilitation services

 Supplemental Rehabilitation Therapies False Spinal Cord Injury Spinal Cord Injury
C06309 Sexual issue discussion willingness indicator

Indicator of the participant's willingness to discuss sexual issues

 Supplemental International SCI Female and Male Sexual Function Basic Data Sets False Spinal Cord Injury Spinal Cord Injury
C17421 Urinary culture colony form unity measurement value

Value of colony forming associated with a bacterial species measured in Colony Forming Units (CFU)/mL

 Supplemental International SCI Urinary Tract Infection Basic Data Set False Spinal Cord Injury Spinal Cord Injury
Displaying 1601 - 1625 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.