CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 126 - 150 of 2057
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C09696 Food Frequency Questionnaire - (FFQ)-cream coffee whipped sour cream frequency indicator

Average total amount of cream the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C08524 36-item Short Form Health Survey (SF-36) - Times nervous score

Score of times being a very nervous person during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Exploratory Short Form 36-Item Health Survey (SF-36) True Spinal Cord Injury Spinal Cord Injury
C09821 Food Frequency Questionnaire - (FFQ)-candy bars indicator

Average total amount of candy bars the subject ate this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C09656 Food Frequency Questionnaire - (FFQ)-beta carotene indicator

Indicator of whether or not the subject takes beta carotene, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C13211 Generalized Anxiety Disorder (GAD-7) - feeling afraid scale

Scale describing how often participant/subject feels afraid as if something awful might happen, as a part of Generalized Anxiety Disorder (GAD-7).

 Exploratory Generalized Anxiety Disorder (GAD-7) (Pediatric CDEs) True Spinal Cord Injury Spinal Cord Injury
C09781 Food Frequency Questionnaire - (FFQ)-dark meat fish indicator

Average total amount of fish dark meat the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C19210 Degenerative spine disorder surgery caused indicator

Indicator for surgery caused by degenerative spine disorder

 Exploratory Medical History False Spinal Cord Injury Spinal Cord Injury
C01709 Lab test result status

Status of the laboratory test result, usually based upon the comparison of the test result to the normal range for the lab test performed

 Exploratory Laboratory Tests False Spinal Cord Injury Spinal Cord Injury
C08532 36-item Short Form Health Survey (SF-36) - Times interfered social physical or emotional score

Score of times physical health or emotional problems interfered with social activities (like visiting with friends, relatives, etc) during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Exploratory Short Form 36-Item Health Survey (SF-36) True Spinal Cord Injury Spinal Cord Injury
C09829 Food Frequency Questionnaire - (FFQ)-other ready made cookies indicator

Average total amount of other ready-made cookies the subject ate this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C09664 Food Frequency Questionnaire - (FFQ)-vitamin C duration

Duration of vitamin C intake, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C09789 Food Frequency Questionnaire - (FFQ)-regular orange juice indicator-whole wheat oatmeal other whole grain bread indicator

Average total amount of whole wheat, oatmeal, or other whole grain bread the subject ate this past year , as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C18731 Lab test other text

The free-text field related to 'Lab test name' specifying other text. Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested and any special instructions.

 Exploratory Laboratory Tests False Spinal Cord Injury Spinal Cord Injury
C17541 Tardieu Scale assistive device text

Text identifying an assistive device used by the participant/subject for an immovable joint in a limb.

 Exploratory Tardieu Scale False Spinal Cord Injury Spinal Cord Injury
C06012 Urinary tract impairment unrelate injury indicator

Indicator of urinary tract impairment unrelated to spinal cord lesion.

 Exploratory Medical History False Spinal Cord Injury Spinal Cord Injury
C09837 Food Frequency Questionnaire - (FFQ)-fat free reduced sweet roll coffee cake other pastry indicator

Average total amount of fat free or reduced fat sweet roll, coffee cake or other pastry, the subject ate this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C17227 Swallowing Disturbance Questionnaire (SwDQ) - food residue mouth after swallow score

Score for how frequent the participant/subject has any food residues in the mouth, cheeks, under the tongue, or stuck to the palate after swallowing, as a part of Swallowing Disturbance Questionnaire (SDQ).

 Exploratory Swallowing Disturbance Questionnaire (SDQ) True Spinal Cord Injury Spinal Cord Injury
C20382 Pittsburgh Sleep Quality Index (PSQI) - Sleep disturbance scale

The scale to which sleep disturbance was calculated, as part of the Pittsburgh Sleep Quality Index (PSQI).

 Exploratory Pittsburgh Sleep Quality Index (PSQI) False Spinal Cord Injury Spinal Cord Injury
C09759 Food Frequency Questionnaire - (FFQ)-onions vegetable indicator

Average total amount of onions as a vegetable, rings, or soup the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C09884 Food Frequency Questionnaire - (FFQ)-sugar use ten years indicator

Indicator of how the subjects use of sugar changed over the past ten years, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C09719 Food Frequency Questionnaire - (FFQ)-applesauce indicator

Average total amount of applesauce the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C19279 Citizen country indicator

The indicator for whether participant is a citizen of country.

 Exploratory Demographics False Spinal Cord Injury Spinal Cord Injury
C06023 Urinary tract drug type

Type of drug, systemic or intravesical, for the urinary tract used

 Exploratory Prior and Concomitant Medications False Spinal Cord Injury Spinal Cord Injury
C17235 Swallowing Disturbance Questionnaire (SwDQ) - cough swallow liquid score

Score for how frequent the participant/subject coughs while swallowing liquids, as a part of Swallowing Disturbance Questionnaire (SDQ).

 Exploratory Swallowing Disturbance Questionnaire (SDQ) True Spinal Cord Injury Spinal Cord Injury
C09767 Food Frequency Questionnaire - (FFQ)-beef pork hot dogs indicator

Average total amount of beef or pork hot dogs the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
Displaying 126 - 150 of 2057

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.