CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0826-C19247	C19247	Subject ID	Subject identification ID	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06336	C06336	SCI Classification motor zone of partial preservation left result	Result of the caudal extent of partially innervated segments, demonstrating partial preservation of motor function on the left side of the body	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06421	C06421	SCI Classification light touch single side score	Score of sensation of light touch for the specific side of the body	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06007	C06007	SCI Classification sensory neurological level right result	Result of the most caudal segment of the spinal cord on the right side of the body with normal sensory function for pinprick and light touch	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06325	C06325	SCI Classification light touch anatomic site grade	Grade that documents the ability to sense light touch on the specific spinal cord level and side	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F1725-C18169	C18169	Laboratory procedure triglycerides measurement	Measurement of the amount of triglycerides in the participant's blood	Exploratory	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F2122-C08506	C08506	36-item Short Form Health Survey (SF-36) - Health limited climbing several stairs score	Score of surveyee-reported limited climbing several flights of stairs due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Exploratory	Short Form 36-Item Health Survey (SF-36)	True	Spinal Cord Injury	Spinal Cord Injury
F2075-C09803	C09803	Food Frequency Questionnaire - (FFQ)-low calorie beverage with caffeine indicator	Average total amount of lo-calorie beverage with caffeine the subject drank this past year, as part of Food Frequency Questionnaire -(FFQ)	Exploratory	Food Frequency Questionnaire (FFQ)	True	Spinal Cord Injury	Spinal Cord Injury
F2118-C17231	C17231	Swallowing Disturbance Questionnaire (SwDQ) - swallow food multiple time before ingest score	Score for how frequent the participant/subject swallows chewed up food several times before it goes down the throat, as a part of Swallowing Disturbance Questionnaire (SDQ)	Exploratory	Swallowing Disturbance Questionnaire (SDQ)	True	Spinal Cord Injury	Spinal Cord Injury
F1726-C06251	C06251	Medication cardiovascular function type	Type of medication affecting cardiovascular functions.	Exploratory	Prior and Concomitant Medications	False	Spinal Cord Injury	Spinal Cord Injury
F2075-C09763	C09763	Food Frequency Questionnaire - (FFQ)-bacon indicator	Average total amount of bacon the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)	Exploratory	Food Frequency Questionnaire (FFQ)	True	Spinal Cord Injury	Spinal Cord Injury
F1725-C19176	C19176	Pre spinal cord lesion cardiovascular history condition type	Types of cardiovascular conditions present before spinal cord lesion	Exploratory	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F2122-C08514	C08514	36-item Short Form Health Survey (SF-36) - Less accomplished physical health indicator	Indicator for surveyee-reported less accomplishment as a result of physical health during past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Exploratory	Short Form 36-Item Health Survey (SF-36)	True	Spinal Cord Injury	Spinal Cord Injury
F2075-C09811	C09811	Food Frequency Questionnaire - (FFQ)-white wine indicator	Average total amount of white wine the subject drank this past year, as part of Food Frequency Questionnaire -(FFQ)	Exploratory	Food Frequency Questionnaire (FFQ)	True	Spinal Cord Injury	Spinal Cord Injury
F2118-C17239	C17239	Swallowing Disturbance Questionnaire (SwDQ) - difficulty breathe meal score	Score for how frequent the participant/subject experiences difficulty breathing during meals, as a part of Swallowing Disturbance Questionnaire (SDQ)	Exploratory	Swallowing Disturbance Questionnaire (SDQ)	True	Spinal Cord Injury	Spinal Cord Injury
F2075-C09771	C09771	Food Frequency Questionnaire - (FFQ)-hamburger lean indicator	Average total amount of lean or extra lean hamburger the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)	Exploratory	Food Frequency Questionnaire (FFQ)	True	Spinal Cord Injury	Spinal Cord Injury
F1725-C19205	C19205	Congenital deformity surgery caused indicator	Indicator for surgery caused by pre-existing congenital deformities of spine and spinal cord	Exploratory	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F2122-C08522	C08522	36-item Short Form Health Survey (SF-36) - Pain interfere work score	Score of bodily pain interfering with work (in home and outside) during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Exploratory	Short Form 36-Item Health Survey (SF-36)	True	Spinal Cord Injury	Spinal Cord Injury
F2075-C09819	C09819	Food Frequency Questionnaire - (FFQ)-milk chocolate indicator	Average total amount of milk chocolate (bar or packet) the subject ate this past year, as part of Food Frequency Questionnaire -(FFQ)	Exploratory	Food Frequency Questionnaire (FFQ)	True	Spinal Cord Injury	Spinal Cord Injury
F2075-C09654	C09654	Food Frequency Questionnaire - (FFQ)-vitamin A daily dose	Dose per day of Vitamin A, as part of Food Frequency Questionnaire -(FFQ)	Exploratory	Food Frequency Questionnaire (FFQ)	True	Spinal Cord Injury	Spinal Cord Injury
F2120-C13209	C13209	Generalized Anxiety Disorder (GAD-7) - restless scale	Scale describing how often participant/subject is so restless that it is hard to sit still, as a part of Generalized Anxiety Disorder (GAD-7)	Exploratory	Generalized Anxiety Disorder (GAD-7) (Pediatric CDEs)	True	Spinal Cord Injury	Spinal Cord Injury
F2075-C09779	C09779	Food Frequency Questionnaire - (FFQ)-breaded fish cakes pieces fish sticks indicator	Average total amount of breaded fish cakes, pieces, or fish sticks the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)	Exploratory	Food Frequency Questionnaire (FFQ)	True	Spinal Cord Injury	Spinal Cord Injury
F1725-C19213	C19213	Pre-existing systemic neuro-degenerative disorder specify diagnosis name	Specifies name of pre-existing systemic neuro-degenerative disorder	Exploratory	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F0950-C11964	C11964	Tardieu Scale relative velocity rate	The relative velocity (for a repeated measure) during administration of the Tardieu Scale assessment to measure muscle reaction through evaluation of spasticity and resistance to passive limb movement in a participant/subject	Exploratory	Tardieu Scale	False	Spinal Cord Injury	Spinal Cord Injury
F2122-C08530	C08530	36-item Short Form Health Survey (SF-36) - Times happy score	Score of times being a happy person during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Exploratory	Short Form 36-Item Health Survey (SF-36)	True	Spinal Cord Injury	Spinal Cord Injury

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.