CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 76 - 100 of 2057
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C06008 SCI Classification motor neurological level left result

Result of the lowest key muscle on the left side of the body that has a grade of at least 3, provided the key muscles represented by segments above that level are judged to be normal (grade 5).

 Core International Standards for Neurological Classification of SCI Worksheet False Spinal Cord Injury Spinal Cord Injury
C06326 SCI Classification sensory exam anatomic site

Spinal cord level evaluated during the sensory examination

 Core International Standards for Neurological Classification of SCI Worksheet False Spinal Cord Injury Spinal Cord Injury
C06009 SCI Classification motor neurological level right result

Result of the lowest key muscle on the right side of the body that has a grade of at least 3, provided the key muscles represented by segments above that level are judged to be normal (grade 5).

 Core International Standards for Neurological Classification of SCI Worksheet False Spinal Cord Injury Spinal Cord Injury
C06329 SCI Classification light touch total score

Total score of sensation of light touch on the right and left sides of the body.

 Core International Standards for Neurological Classification of SCI Worksheet False Spinal Cord Injury Spinal Cord Injury
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

 Core General Core False Spinal Cord Injury Spinal Cord Injury
C06387 SCI Classification anal contraction voluntary indicator

Indicator of whether or not the patient can have a voluntary anal contraction.

 Core International Standards for Neurological Classification of SCI Worksheet False Spinal Cord Injury Spinal Cord Injury
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories.

 Core Demographics False Spinal Cord Injury Spinal Cord Injury
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

 Core International SCI Musculoskeletal Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

 Core International SCI Cardiovascular Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C17226 Swallowing Disturbance Questionnaire (SwDQ) - difficulty chew solid food score

Score for how frequent the participant/subject has difficulty chewing solid foods like an apple, cookie, or cracker, as a part of Swallowing Disturbance Questionnaire (SDQ).

 Exploratory Swallowing Disturbance Questionnaire (SDQ) True Spinal Cord Injury Spinal Cord Injury
C20381 Pittsburgh Sleep Quality Index (PSQI) - Fall asleep past month minute duration

The duration of time (in minutes) it takes the subject to fall asleep the majority of the nights in the past month, as part of the Pittsburgh Sleep Quality Index (PSQI).

 Exploratory Pittsburgh Sleep Quality Index (PSQI) False Spinal Cord Injury Spinal Cord Injury
C09758 Food Frequency Questionnaire - (FFQ)-onions garnish indicator

Average total amount of onions as garnish or in a salad the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C09883 Food Frequency Questionnaire - (FFQ)-whole grain use ten years indicator

Indicator of how the subjects use of whole grains changed over the past ten years, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C09718 Food Frequency Questionnaire - (FFQ)-avocado indicator

Average total amount of avocado the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C17234 Swallowing Disturbance Questionnaire (SwDQ) - lump food stuck throat meal score

Score for how frequent the participant/subject feels as if a lump of food is stuck in the throat while eating, as a part of Swallowing Disturbance Questionnaire (SDQ).

 Exploratory Swallowing Disturbance Questionnaire (SDQ) True Spinal Cord Injury Spinal Cord Injury
C09766 Food Frequency Questionnaire - (FFQ)-other chicken turkey without skin indicator

Average total amount of other chicken or turkey, including ground without skin the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C19245 Electrical perceptual threshold value

The value of electrical perceptual threshold

 Exploratory Electrical Perceptual Thresholds (Pediatric CDEs) False Spinal Cord Injury Spinal Cord Injury
C09726 Food Frequency Questionnaire - (FFQ)-grapefruit juice indicator

Average total amount of grapefruit juice the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C11908 Modified Ashworth Scale for Grading Spasticity muscle score

Measurement of muscle spasticity

 Exploratory Modified Ashworth Scale for Grading Spasticity (Pediatric CDEs) True Spinal Cord Injury Spinal Cord Injury
C09774 Food Frequency Questionnaire - (FFQ)-pork main dish indicator

Average total amount of pork a main dish the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C19399 Brain Motor Control Assessment (BMCA) - Upper limb relaxation episodic event count

Number of events in episodic assessment of upper limb relaxation as part of the Brain Motor Control Assessment (BMCA)

 Exploratory Brain Motor Control Assessment - (Pediatric CDEs) False Spinal Cord Injury Spinal Cord Injury
C20357 Pittsburgh Sleep Quality Index (PSQI) - Sleep efficiency scale

The sleep efficiency scale calculated, as part of the Pittsburgh Sleep Quality Index (PSQI).

 Exploratory Pittsburgh Sleep Quality Index (PSQI) False Spinal Cord Injury Spinal Cord Injury
C09734 Food Frequency Questionnaire - (FFQ)-tomato sauce indicator

Average total amount of tomato sauce the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C19188 Oral laxative medication indicator

Indicator for oral laxative medication use (within the last four weeks)

 Exploratory Prior and Concomitant Medications False Spinal Cord Injury Spinal Cord Injury
C19408 Brain Motor Control Assessment (BMCA) - Muscle count

Number of muscles examined as part of the Brain Motor Control Assessment (BMCA)

 Exploratory Brain Motor Control Assessment - (Pediatric CDEs) False Spinal Cord Injury Spinal Cord Injury
Displaying 76 - 100 of 2057

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.