CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2121-C14648	C14648	Functional Disability Inventory (FDI) - child school all day scale	The scale of the child's or adolescent's ability to staying at school when sick or not feeling well from the past two weeks, as part of the Functional Disability Inventory (FDI) - Child and Adolescent Form	Supplemental	Functional Disability Inventory - Child and Adolescent Form (FDI)	True	Spinal Cord Injury	Spinal Cord Injury
F2303-C22807	C22807	Injury level dynamic light touch response type	The type of response related to dynamic light touch at the level of injury	Supplemental	International SCI Pain Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2070-C12684	C12684	Mobility device type use indicator	Indicator whether the participant/subject currently uses the selected types of mobility device	Supplemental	Assistive/Mobility Devices and Orthoses	False	Spinal Cord Injury	Spinal Cord Injury
F1795-C19400	C19400	Brain Motor Control Assessment (BMCA) - Upper limb relaxation episodic muscle count	Number of muscles examined in episodic assessment of upper limb relaxation as part of the Brain Motor Control Assessment (BMCA)	Supplemental	Brain Motor Control Assessment	False	Spinal Cord Injury	Spinal Cord Injury
F1742-C02495	C02495	Imaging scanner strength value type	Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported	Supplemental	Diffusion Tensor Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1791-C01016	C01016	Glasgow Coma Scale (GCS) - total score	Glasgow Coma Scale (GCS) - Total Score. The GCS is a standardized instrument for assessing the level of consciousness. It evaluates three aspects of responsiveness: eye opening, motor response, verbal response. The total score is the sum of the scores for the three response types. (3-15)	Supplemental	Pre-Hospital Assessment Form	False	Spinal Cord Injury	Spinal Cord Injury
F1719-C19102	C19102	Upper extremity surgery left soft tissue reconstruction tendon elbow performed indicator	The indicator for the surgical procedure of the left tendon for elbow extension in soft tissue reconstruction	Supplemental	Surgical and Procedural Interventions	False	Spinal Cord Injury	Spinal Cord Injury
F1737-C00008	C00008	Age value	Value for participant's age, calculated as elapsed time since the birth of the participant	Supplemental	Demographics	False	Spinal Cord Injury	Spinal Cord Injury
F0833-C06432	C06432	Neuro-Musculoskeletal history before spinal cord lesion type	Type of neuro-musculoskeletal history before spinal cord lesion	Supplemental	International SCI Musculoskeletal Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0827-C01565	C01565	Blood pressure systolic measurement	Measurement of pressure of the participant's blood against the artery walls during systole (the contraction phase) in millimeters of mercury (mmHg)	Supplemental	International SCI Cardiovascular Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0831-C06427	C06427	Spinal column injury indicator	Indicator of whether there was any disruption through the spinal column including the bony vertebral elements and their supporting ligaments, capsules, discs, and other supporting soft tissues	Supplemental	International SCI Spinal Column Injury Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0822-C05108	C05108	Surgical or therapeutic procedure type	Type of surgical or therapeutic procedure received by the participant/subject	Supplemental	International SCI Bowel Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2303-C22815	C22815	Injury level pinprick hyperalgesia intensity scale	The scale related to intensity if hyperalgesia for pinprick at the level of injury	Supplemental	International SCI Pain Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2070-C18198	C18198	Ankle foot orthosis use type	Type of use for ankle-foot orthosis	Supplemental	Assistive/Mobility Devices and Orthoses	False	Spinal Cord Injury	Spinal Cord Injury
F0820-C06262	C06262	Bladder function detrusor leak point pressure value	Value of the lowest detrusor pressure on the participant/subject at which urine leakage occurs	Supplemental	International SCI Urodynamic Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1795-C19410	C19410	Brain Motor Control Assessment (BMCA) - Test anatomic site	Anatomic site being evaluated as part of the Brain Motor Control Assessment (BMCA)	Supplemental	Brain Motor Control Assessment	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22312	C22312	Laboratory procedure thyroid function thyroid antibodies status	The status related to thyroid antibodies	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1742-C08241	C08241	Imaging field of view axis 1 measurement	Measurement of axis 1 of the image that is visible through the camera at a particular position in orientation and space in millimeters	Supplemental	Diffusion Tensor Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1727-C00718	C00718	Tobacco use duration	Duration in years participant/subject has used tobacco products (e.g. cigarettes, cigars, chewing tobacco or pipe)	Supplemental	Alcohol and Tobacco Use	False	Spinal Cord Injury	Spinal Cord Injury
F1791-C05450	C05450	Abbreviated Injury Scale body region score	Score for the body region measured by Abbreviated Injury Scale	Supplemental	Pre-Hospital Assessment Form	False	Spinal Cord Injury	Spinal Cord Injury
F1719-C19110	C19110	Upper extremity surgery left soft tissue other performed indicator	The indicator for the surgical procedure of the restoration of something other on the left side in soft tissue reconstruction	Supplemental	Surgical and Procedural Interventions	False	Spinal Cord Injury	Spinal Cord Injury
F0833-C06450	C06450	Neuromuscular scoliosis indicator	Indicator of any appreciable observable lateral deviation in the normally straight vertical line of the spine due to the sequelae of spinal cord injury (SCI)	Supplemental	International SCI Musculoskeletal Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0827-C06251	C06251	Medication cardiovascular function type	Type of medication affecting cardiovascular functions.	Supplemental	International SCI Cardiovascular Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0832-C01550	C01550	Temperature measurement anatomic site	Anatomic site on or within the body where the temperature was measured	Supplemental	International SCI Skin and Thermoregulation Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0822-C06191	C06191	Defecation past four week average frequency	Average frequency of defecation within the last four weeks	Supplemental	International SCI Bowel Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.