CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0829-C19247	C19247	Subject ID	Subject identification ID	Supplemental	International SCI Pulmonary Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1722-C19127	C19127	Facility name	Name of facility	Supplemental	Rehabilitation Admission/Discharge	False	Spinal Cord Injury	Spinal Cord Injury
F0819-C21669	C21669	Surgical therapeutic procedure ICD-10-CM other text	The free-text field related to 'Surgical or therapeutic procedure ICD-10-CM code' specifying other text. Code from the International Classification of Diseases, Tenth Revision, Clinical Modification (ICD-10-CM) for the selected surgical procedure	Supplemental	International SCI Lower Urinary Tract Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22293	C22293	Thyroid disease prior thyroid nodule diagnosis date	Date when prior thyroid nodule was diagnosed	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0828-C06144	C06144	Spinal cord injury physical health satisfaction rating scale	Numeric response of physical satisfaction of participant for the past four weeks	Supplemental	International SCI Quality of Life Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2513-C06413	C06413	Spinal surgery indicator	Whether any of the following spinal surgical procedures were performed during the inpatient hospitalization following spinal cord injury: laminectomy, neural canal restoration, reduction, spinal fusion, or internal fixation of the spine. Laminectomy is defined as removal of normal intact lamina or foreign body at the site of spinal cord damage. Neural canal restoration is defined as the removal of bone or disk fragments, blood clots, or foreign bodies (such as bullet fragments) from the spinal canal. Reduction is defined as replacement of one or more dislocated, subluxed or angulated vertebra into anatomic or near anatomic alignment. Spinal fusion is defined as the addition of a bone graft to the vertebrae for the purpose of achieving intervertebral fusion or stability. Internal fixation of the spine is defined as attaching rods, plates, wires, etc. to the spine (individually or in combination) to provide internal surgical stabilization of the vertebral column	Supplemental	International SCI Core Data Set v2.0	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C06000	C06000	Site identifier number	Unique identification number given to the study site to distinguish the location where data is recorded	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1782-C01711	C01711	Lab test result unit of measure	Unit of measure for the laboratory test result	Supplemental	Sensory Evoked Potentials	False	Spinal Cord Injury	Spinal Cord Injury
F1735-C12696	C12696	Electrophysiology motor nerve segment name	The name of the segment used for the motor nerve conduction study	Supplemental	Peripheral Nerve Studies	False	Spinal Cord Injury	Spinal Cord Injury
F1803-C19380	C19380	Spine angulation level anatomic site	The anatomic site level of angulation in spine	Supplemental	Magnetic Resonance Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1724-C19169	C19169	Special care unit discharge date	Date at which participant was discharged from special care unit	Supplemental	Acute Admission/Discharge	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C06152	C06152	Imaging study urinary tract global result type	The type of results related to urinary tract from imaging of two kidneys	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F1731-C06072	C06072	Pain interfere sleep scale	Scale that evaluates to what extent pain has interfered with the participant's sleep	Supplemental	International SCI Pain Basic Data Subset	False	Spinal Cord Injury	Spinal Cord Injury
F0830-C01581	C01581	Weight unit of measure	Unit of measure for the weight numerical value	Supplemental	International SCI Endocrine and Metabolic Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1722-C19160	C19160	Discharge facility type	The type of facility to which the participant was discharged	Supplemental	Rehabilitation Admission/Discharge	False	Spinal Cord Injury	Spinal Cord Injury
F1425-C17418	C17418	Urine dipstick test leukocyte esterase status	Status of leukocyte esterase presence in urine dipstick test which indicates the presence of white blood cells in a urine sample	Supplemental	International SCI Urinary Tract Infection Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0828-C06146	C06146	Spinal cord injury psychological health satisfaction scale	Numeric response of psychological health emotions and mood of participant for the past four weeks	Supplemental	International SCI Quality of Life Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2604-C06309	C06309	Sexual issue discussion willingness indicator	Indicator of the participant's willingness to discuss sexual issues	Supplemental	International SCI Female and Male Sexual Function Basic Data Sets v2.0	False	Spinal Cord Injury	Spinal Cord Injury
F0823-C06223	C06223	Bowel care position text	The text of position assumed for bowel care	Supplemental	International SCI Bowel Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22178	C22178	Laboratory procedure oral glucose tolerance test diagnostic classification type	This variable will assess the ability to handle an oral glucose load	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1808-C02494	C02494	Imaging study date and time	Date (and time, if applicable and known) the radiologic study was obtained	Supplemental	Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F0009-C02304	C02304	Adverse event relatedness scale	Scale of the causality between the treatment modality/intervention and the specific adverse event	Supplemental	Adverse Events	False	Spinal Cord Injury	Spinal Cord Injury
F2357-C18786	C18786	Defecation method bowel care procedure used past four week main other text	The free-text field related to 'Defecation method bowel care procedure used past four week main type' specifying other text. Type of main defecation method and bowel care procedures used within the last four weeks	Supplemental	International SCI Bowel Function Basic Data Set Version 2.0	False	Spinal Cord Injury	Spinal Cord Injury
F1782-C19328	C19328	Scalp recording-reference electrode configuration type	Type of electrode configuration scalp recording-reference	Supplemental	Sensory Evoked Potentials	False	Spinal Cord Injury	Spinal Cord Injury
F1735-C12704	C12704	Electrophysiology sensory nerve onset or peak latency value	The onset or peak latency measured during the sensory nerve conduction study	Supplemental	Peripheral Nerve Studies	False	Spinal Cord Injury	Spinal Cord Injury

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.