CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 551 - 575 of 1886
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C06062 Pain intensity average past week scale

Scale of the participant's/subject's pain intensity in the past week. A 0 - 10 Numerical Rating Scale (ranging from 0 = "No pain" to a maximum of 10 = "Pain as bad as you can imagine") of average pain intensity for the past week

Supplemental International SCI Pain Basic Data Subset Spinal Cord Injury Spinal Cord Injury
C00707 Alcohol consume six or more drinks frequency

The rate of occurrence for when the participant/subject consumes six or more drinks containing alcohol on one occasion. It is noted that the meaning of "drinks consumed" differs from one nation and culture to another, so the most common alcoholic beverages likely to be consumed will be defined as well as quantity of each that constitutes a drink (approximately 10 grams of pure ethanol). For example, one bottle of beer (330 ml at 5% ethanol), a glass of wine (140 ml at 12% ethanol), and a shot of spirits (40 ml at 40% ethanol) represent a standard drink of about 13 g of ethanol

Supplemental International SCI Endocrine and Metabolic Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C19131 Facility discharge time

The time at which the patient was discharged from the facility

Supplemental Rehabilitation Admission/Discharge Spinal Cord Injury Spinal Cord Injury
C17414 Urinary tract infection symptom type

Type of sign(s)/symptom(s) associated with a bacterial infectious process affecting any part of the urinary tract, most commonly the bladder and the urethra

Supplemental International SCI Urinary Tract Infection Basic Data Set Spinal Cord Injury Spinal Cord Injury
C22300 Laboratory procedure thyroid function thyroid-stimulating hormone plasma serum value

The value related to concentration of thyroid stimulating hormone (TSH) in the plasma/serum

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C06000 Site identifier number

Unique identification number given to the study site to distinguish the location where data is recorded

Supplemental International SCI Quality of Life Basic Data Set Spinal Cord Injury Spinal Cord Injury
C55476 Congenital genetic spinal cord injury etiology specify text

The free text field to describe the congenital or genetic etiology of spinal cord injury

Supplemental International SCI Core Data Set v2.0 Spinal Cord Injury Spinal Cord Injury
C06219 Flatus incontinence frequency

The frequency of flatus incontinence within the last three months.

Supplemental International SCI Bowel Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C06212 Bowel function SCI data constipation duration

The duration of participant's/subject's constipation.

Supplemental International SCI Bowel Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C19724 Laboratory procedure fasting glucose measurement

Measurement of the amount of glucose in the participant's blood when fasting

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C06198 Perianal problem type

Type of problem with the anus found in the perianal space

Supplemental International SCI Bowel Function Basic Data Set Version 2.0 Spinal Cord Injury Spinal Cord Injury
C19242 Sympathetic skin response peak-to-peak amplitude value

The value of peak-to-peak amplitude as related to sympathetic skin response

Supplemental Sensory Evoked Potentials Spinal Cord Injury Spinal Cord Injury
C18132 Cystogram code

Cystogram code

Supplemental International SCI Urinary Tract Imaging Basic Data Set Spinal Cord Injury Spinal Cord Injury
C12700 Electrophysiology motor nerve dispersion result

Amount of test signal dispersion measured during the motor nerve conduction study

Supplemental Peripheral Nerve Studies Spinal Cord Injury Spinal Cord Injury
C19384 Spine vertebral fracture upper level anatomic site

The anatomic site level related to vertebrate on the upper level with fracture

Supplemental Magnetic Resonance Imaging Spinal Cord Injury Spinal Cord Injury
C00315 Medical history global assessment indicator

Indicator of whether the participant has a history of any medical problems/conditions

Supplemental Medical History Spinal Cord Injury Spinal Cord Injury
C06161 Bladder neck during voiding status

Status of the bladder neck during voiding

Supplemental Vital Signs and Tests Spinal Cord Injury Spinal Cord Injury
C10171 Trial number

The number representing the sequence for any repeated measure test or assessment when it is performed multiple times

Supplemental Quantitative Sensory Testing Spinal Cord Injury Spinal Cord Injury
C01706 Lab test result text

Result of the laboratory test

Supplemental International SCI Endocrine and Metabolic Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C19137 Rehabilitation services received type

They type of rehabilitation services received

Supplemental Rehabilitation Therapies Spinal Cord Injury Spinal Cord Injury
C06310 Sexual problem unrelate spinal cord lesion indicator

Indicator of whether the person complained of sexual issues prior to or after the spinal cord lesion that are unrelated to the spinal cord lesion

Supplemental International SCI Female and Male Sexual Function Basic Data Sets Spinal Cord Injury Spinal Cord Injury
C17422 Urinary culture resistance pattern type

Type of resistance pattern of a particular bacteria species in the urine culture sample

Supplemental International SCI Urinary Tract Infection Basic Data Set Spinal Cord Injury Spinal Cord Injury
C06314 Reflex genital arousal scale

Scale for how the female's reflex genital arousal is affected by the spinal cord injury

Supplemental International SCI Female and Male Sexual Function Basic Data Sets v2.0 Spinal Cord Injury Spinal Cord Injury
C06231 Bowel care facilitators past three months type

The indicator of whether the type of bowel care facilitator was practiced regularly within the past three months

Supplemental International SCI Bowel Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
C22193 Laboratory procedure calcium plasma ionized value

This variable documents abnormality in circulating ionized calcium level

Supplemental International SCI Endocrine and Metabolic Function Extended Data Set Spinal Cord Injury Spinal Cord Injury
Displaying 551 - 575 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.