CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 526 - 550 of 1886
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C09735 Food Frequency Questionnaire - (FFQ)-salsa picante taco sauce indicator

Average total amount of salsa, picante or taco sauce the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C17230 Swallowing Disturbance Questionnaire (SwDQ) - excess difficulty swallow saliva score

Score for how frequent the participant/subject feels as if he or she has excess saliva in the mouth, drools, or has trouble swallowing the saliva in the mouth, as a part of Swallowing Disturbance Questionnaire (SDQ)

 Exploratory Swallowing Disturbance Questionnaire (SDQ) True Spinal Cord Injury Spinal Cord Injury
C19287 Income basic needs status

The status of how the household currently manages to meet basic needs as defined by food, shelter and clothing

 Exploratory Demographics False Spinal Cord Injury Spinal Cord Injury
C06194 Bowel function medication constipating agent type

Type of medication affecting bowel function / constipating agents

 Exploratory Prior and Concomitant Medications False Spinal Cord Injury Spinal Cord Injury
C06460 Non traumatic spinal cord injury etiology classification axis 1 level 1 category

The category of level 1 of axis 1 to classify the cause of non-traumatic spinal cord injury

 Exploratory History of Injury False Spinal Cord Injury Spinal Cord Injury
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

 Exploratory Electrical Perceptual Thresholds (Pediatric CDEs) False Spinal Cord Injury Spinal Cord Injury
C09783 Food Frequency Questionnaire - (FFQ)-cold breakfast cereal indicator

Average total amount of cold breakfast cereal the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C09743 Food Frequency Questionnaire - (FFQ)-cooked carrots indicator

Average total amount of cooked carrots the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C17238 Swallowing Disturbance Questionnaire (SwDQ) - cough difficulty breathe saliva windpipe score

Score for how frequent the participant/subject experiences coughing or difficulty breathing as a result of saliva entering the windpipe, as a part of Swallowing Disturbance Questionnaire (SDQ)

 Exploratory Swallowing Disturbance Questionnaire (SDQ) True Spinal Cord Injury Spinal Cord Injury
C19181 Steroid administration other text

The free-text field related to 'Steroid administration type' specifying other text. Type of steroids (methylprednisone/corticosteroids) administered at any point during stay

 Exploratory Prior and Concomitant Medications False Spinal Cord Injury Spinal Cord Injury
C06468 Non traumatic spinal cord injury axis 2 ICD code

ICD codes are used to classify the etiology of non-traumatic spinal cord injury

 Exploratory History of Injury False Spinal Cord Injury Spinal Cord Injury
C19316 Dermatome area name

Name of dermatome area

 Exploratory Electrical Perceptual Thresholds (Pediatric CDEs) False Spinal Cord Injury Spinal Cord Injury
C19202 Pre spinal cord lesion neuro-musculoskeletal history type

Type of neuro-musculoskeletal history prior to spinal cord lesion

 Exploratory Medical History False Spinal Cord Injury Spinal Cord Injury
C09791 Food Frequency Questionnaire - (FFQ)-muffins biscuits indicator

Average total amount of muffins or biscuits the subject ate this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C09751 Food Frequency Questionnaire - (FFQ)-cooked spinach indicator

Average total amount of cooked spinach the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C13208 Generalized Anxiety Disorder (GAD-7) - trouble relaxing scale

Scale describing how often participant/subject has trouble relaxing, as a part of Generalized Anxiety Disorder (GAD-7)

 Exploratory Generalized Anxiety Disorder (GAD-7) (Pediatric CDEs) True Spinal Cord Injury Spinal Cord Injury
C19190 Examination day cardiovascular function medication indicator

Indicator for medication affecting cardiovascular function on the day of the examination

 Exploratory Prior and Concomitant Medications False Spinal Cord Injury Spinal Cord Injury
C19403 Brain Motor Control Assessment (BMCA) - Test type

Type of protocol testing as part of the Brain Motor Control Assessment (BMCA)

 Exploratory Brain Motor Control Assessment - (Pediatric CDEs) False Spinal Cord Injury Spinal Cord Injury
C19210 Degenerative spine disorder surgery caused indicator

Indicator for surgery caused by degenerative spine disorder

 Exploratory Medical History False Spinal Cord Injury Spinal Cord Injury
C22279 Thyroid disease prior diagnosis type

Type of prior diagnosis for thyroid disease

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C06213 Defecation unsuccessful frequency

The frequency of unsuccessful attempts at defecation within the last three months

 Supplemental International SCI Bowel Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C19242 Sympathetic skin response peak-to-peak amplitude value

The value of peak-to-peak amplitude as related to sympathetic skin response

 Supplemental Sensory Evoked Potentials False Spinal Cord Injury Spinal Cord Injury
C06004 Ventilatory assistance utilization frequency indicator

Documents any use of any type of ventilatory assistance used to sustain respiration on the date of final inpatient discharge (the date of discharge from the last inpatient rehabilitation hospital or discharge from the last acute care hospital if the patient is not admitted to a rehabilitation hospital)

 Supplemental International SCI Core Data Set v2.0 False Spinal Cord Injury Spinal Cord Injury
C12700 Electrophysiology motor nerve dispersion result

Amount of test signal dispersion measured during the motor nerve conduction study

 Supplemental Peripheral Nerve Studies False Spinal Cord Injury Spinal Cord Injury
C19384 Spine vertebral fracture upper level anatomic site

The anatomic site level related to vertebrate on the upper level with fracture

 Supplemental Magnetic Resonance Imaging False Spinal Cord Injury Spinal Cord Injury
Displaying 526 - 550 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.