CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 526 - 550 of 1886
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C08502 36-item Short Form Health Survey (SF-36) - Now heath score

Score of surveyee-reported present general heath compared to a year ago as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Exploratory Short Form 36-Item Health Survey (SF-36) Spinal Cord Injury Spinal Cord Injury
C09799 Food Frequency Questionnaire - (FFQ)-potatoes baked boiled indicator

Average total amount of potatoes, baked, boiled, or mashed the subject ate this past year, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C17227 Swallowing Disturbance Questionnaire (SwDQ) - food residue mouth after swallow score

Score for how frequent the participant/subject has any food residues in the mouth, cheeks, under the tongue, or stuck to the palate after swallowing, as a part of Swallowing Disturbance Questionnaire (SDQ)

Exploratory Swallowing Disturbance Questionnaire (SDQ) Spinal Cord Injury Spinal Cord Injury
C20382 Pittsburgh Sleep Quality Index (PSQI) - Sleep disturbance scale

The scale to which sleep disturbance was calculated, as part of the Pittsburgh Sleep Quality Index (PSQI)

Exploratory Pittsburgh Sleep Quality Index (PSQI) Spinal Cord Injury Spinal Cord Injury
C09759 Food Frequency Questionnaire - (FFQ)-onions vegetable indicator

Average total amount of onions as a vegetable, rings, or soup the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C09884 Food Frequency Questionnaire - (FFQ)-sugar use ten years indicator

Indicator of how the subjects use of sugar changed over the past ten years, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C18731 Lab test other text

The free-text field related to 'Lab test name' specifying other text. Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested and any special instructions

Exploratory Laboratory Tests Spinal Cord Injury Spinal Cord Injury
C17235 Swallowing Disturbance Questionnaire (SwDQ) - cough swallow liquid score

Score for how frequent the participant/subject coughs while swallowing liquids, as a part of Swallowing Disturbance Questionnaire (SDQ)

Exploratory Swallowing Disturbance Questionnaire (SDQ) Spinal Cord Injury Spinal Cord Injury
C09767 Food Frequency Questionnaire - (FFQ)-beef pork hot dogs indicator

Average total amount of beef or pork hot dogs the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C19246 Electrical perceptual threshold average value

Average value of electrical perceptual thresholds

Exploratory Electrical Perceptual Thresholds (Pediatric CDEs) Spinal Cord Injury Spinal Cord Injury
C09727 Food Frequency Questionnaire - (FFQ)-other fruit juice indicator

Average total amount of other fruit juices the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C13205 Generalized Anxiety Disorder (GAD-7) - feeling nervous scale

Scale describing how often participant/subject has been bothered by feeling nervous, anxious or on edge, as a part of Generalized Anxiety Disorder (GAD-7)

Exploratory Generalized Anxiety Disorder (GAD-7) (Pediatric CDEs) Spinal Cord Injury Spinal Cord Injury
C09775 Food Frequency Questionnaire - (FFQ)-beef lamb main dish indicator

Average total amount of beef or lamb as a main dish the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C19400 Brain Motor Control Assessment (BMCA) - Upper limb relaxation episodic muscle count

Number of muscles examined in episodic assessment of upper limb relaxation as part of the Brain Motor Control Assessment (BMCA)

Exploratory Brain Motor Control Assessment - (Pediatric CDEs) Spinal Cord Injury Spinal Cord Injury
C09735 Food Frequency Questionnaire - (FFQ)-salsa picante taco sauce indicator

Average total amount of salsa, picante or taco sauce the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C19287 Income basic needs status

The status of how the household currently manages to meet basic needs as defined by food, shelter and clothing

Exploratory Demographics Spinal Cord Injury Spinal Cord Injury
C06194 Bowel function medication constipating agent type

Type of medication affecting bowel function / constipating agents

Exploratory Prior and Concomitant Medications Spinal Cord Injury Spinal Cord Injury
C06460 Non traumatic spinal cord injury etiology classification axis 1 level 1 category

The category of level 1 of axis 1 to classify the cause of non-traumatic spinal cord injury

Exploratory History of Injury Spinal Cord Injury Spinal Cord Injury
C09783 Food Frequency Questionnaire - (FFQ)-cold breakfast cereal indicator

Average total amount of cold breakfast cereal the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C18166 Other disease text

Specifies other disease not listed in the table

Supplemental International SCI Endocrine and Metabolic Function Basic Data Set Spinal Cord Injury Spinal Cord Injury
C19128 Facility arrival date

Date when patient arrived at facility

Supplemental Acute Admission/Discharge Spinal Cord Injury Spinal Cord Injury
C01554 Oxygen saturation measurement

Value, as a percent, of baseline O2 saturation (SPO2) in nocturnal oximetry, as part of Nocturnal Oximetry

Supplemental Vital Signs and Tests Spinal Cord Injury Spinal Cord Injury
C02301 Adverse event end date and time

Date (and time, if applicable and known) on which the adverse event discontinued/stopped

Supplemental Adverse Events Spinal Cord Injury Spinal Cord Injury
C06073 Pain treatment indicator

Indicator for whether the participant is using or receiving any treatment for the pain experienced

Supplemental International SCI Pain Basic Data Subset Spinal Cord Injury Spinal Cord Injury
C18784 Ventilatory assistance other text

The free-text field related to 'Ventilatory assistance type' specifying other text. Type of assistance device utilized to augment ventilation

Supplemental International SCI Pulmonary Basic Data Set Spinal Cord Injury Spinal Cord Injury
Displaying 526 - 550 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.