CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 451 - 475 of 1888
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C09715 Food Frequency Questionnaire - (FFQ)-prune juice indicator

Average total amount of prune juice the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C20359 Pittsburgh Sleep Quality Index (PSQI) - Feel cold past month scale

The scale to which the subject felt too cold during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Exploratory Pittsburgh Sleep Quality Index (PSQI) False Spinal Cord Injury Spinal Cord Injury
C09840 Food Frequency Questionnaire - (FFQ)-peanuts indicator

Average total amount of peanuts the subject ate this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C09675 Food Frequency Questionnaire - (FFQ)-iron indicator

Iron indicator, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C17541 Tardieu Scale assistive device text

Text identifying an assistive device used by the participant/subject for an immovable joint in a limb

 Exploratory Tardieu Scale False Spinal Cord Injury Spinal Cord Injury
C12710 Electrophysiology assessment date and time

Date the particular electrophysiology study was performed

 Exploratory Electrical Perceptual Thresholds (Pediatric CDEs) False Spinal Cord Injury Spinal Cord Injury
C08513 36-item Short Form Health Survey (SF-36) - Cut time on work activities physical health indicator

Indicator for surveyee-reported cut down time on work or other activities as a result of physical health during past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Exploratory Short Form 36-Item Health Survey (SF-36) True Spinal Cord Injury Spinal Cord Injury
C09810 Food Frequency Questionnaire - (FFQ)-red wine indicator

Average total amount of red wine the subject drank this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C17238 Swallowing Disturbance Questionnaire (SwDQ) - cough difficulty breathe saliva windpipe score

Score for how frequent the participant/subject experiences coughing or difficulty breathing as a result of saliva entering the windpipe, as a part of Swallowing Disturbance Questionnaire (SDQ)

 Exploratory Swallowing Disturbance Questionnaire (SDQ) True Spinal Cord Injury Spinal Cord Injury
C09770 Food Frequency Questionnaire - (FFQ)-other processed meats indicator

Average total amount of other processed meats; e.g., sausage, kielbasa, etc the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C19204 Pre-existing congenital deformity specify anatomic site

Anatomic site of pre-existing congenital deformity of spine and spinal cord

 Exploratory Medical History False Spinal Cord Injury Spinal Cord Injury
C08521 36-item Short Form Health Survey (SF-36) - Bodily pain score

Score of bodily pain during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Exploratory Short Form 36-Item Health Survey (SF-36) True Spinal Cord Injury Spinal Cord Injury
C09818 Food Frequency Questionnaire - (FFQ)-dairy coffee indicator

Dairy coffee (hot/cold) e.g., cappuccino (16 oz.), as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C09653 Food Frequency Questionnaire - (FFQ)-vitamin A indicator

Vitamin A indicator, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C13208 Generalized Anxiety Disorder (GAD-7) - trouble relaxing scale

Scale describing how often participant/subject has trouble relaxing, as a part of Generalized Anxiety Disorder (GAD-7)

 Exploratory Generalized Anxiety Disorder (GAD-7) (Pediatric CDEs) True Spinal Cord Injury Spinal Cord Injury
C09778 Food Frequency Questionnaire - (FFQ)-canned tuna indicator

Average total amount of canned tuna fish the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C19212 Degenerative spine disorder surgery date

Date of surgery caused by degenerative spine disorder

 Exploratory Medical History False Spinal Cord Injury Spinal Cord Injury
C01711 Lab test result unit of measure

Unit of measure for the laboratory test result

 Exploratory Laboratory Tests False Spinal Cord Injury Spinal Cord Injury
C08529 36-item Short Form Health Survey (SF-36) - Times worn out score

Score of times feeling worn out during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Exploratory Short Form 36-Item Health Survey (SF-36) True Spinal Cord Injury Spinal Cord Injury
C09826 Food Frequency Questionnaire - (FFQ)-regular popcorn indicator

Average total amount of regular popcorn the subject ate this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C09661 Food Frequency Questionnaire - (FFQ)-vitamin B6 duration

Duration of vitamin B6 intake, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C09786 Food Frequency Questionnaire - (FFQ)-brand type cold breakfast cereal indicator

Brand and type of cold breakfast cereal the subject usually eats, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C00004 Birth country ISO code

Code (ISO 3166-1 alpha-2 code) for country where the participant was born

 Exploratory Demographics False Spinal Cord Injury Spinal Cord Injury
C06358 Diabetes mellitus type

Type of diabetes mellitus

 Exploratory Medical History False Spinal Cord Injury Spinal Cord Injury
C09834 Food Frequency Questionnaire - (FFQ)-ready made cake indicator

Average total amount of ready-made cake the subject ate this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
Displaying 451 - 475 of 1888

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.