CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 326 - 350 of 1888
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C17229 Swallowing Disturbance Questionnaire (SwDQ) - chew food dribble from mouth score

Score for how frequent the participant/subject chews up food dribble from the mouth, as a part of Swallowing Disturbance Questionnaire (SDQ)

Exploratory Swallowing Disturbance Questionnaire (SDQ) Spinal Cord Injury Spinal Cord Injury
C19191 Examination day cardiovascular function medication other text

Free-text field for medication affecting cardiovascular function on the day of the examination

Exploratory Prior and Concomitant Medications Spinal Cord Injury Spinal Cord Injury
C09761 Food Frequency Questionnaire - (FFQ)-omega-3 fortified eggs indicator

Average total amount of omega-3 fortified eggs the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C08512 36-item Short Form Health Survey (SF-36) - Health limited bathing dressing score

Score of surveyee-reported limited bathing or dressing due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Exploratory Short Form 36-Item Health Survey (SF-36) Spinal Cord Injury Spinal Cord Injury
C09809 Food Frequency Questionnaire - (FFQ)-light beer indicator

Average total amount of light beer the subject drank this past year, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C17237 Swallowing Disturbance Questionnaire (SwDQ) - change voice after eat score

Score for how frequent the participant/subject experiences a change in voice, such as hoarseness or reduced, immediately after eating or drinking, as a part of Swallowing Disturbance Questionnaire (SDQ)

Exploratory Swallowing Disturbance Questionnaire (SDQ) Spinal Cord Injury Spinal Cord Injury
C09769 Food Frequency Questionnaire - (FFQ)-salami bologna other processed meat sandwiches indicator

Average amount of salami, bologna, or other processed meat sandwiches the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C08520 36-item Short Form Health Survey (SF-36) - Interfered social activities physical emotional problems score

Score of interfered normal social activities with family, friends, neighbors, or groups due to physical health or emotional problems during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Exploratory Short Form 36-Item Health Survey (SF-36) Spinal Cord Injury Spinal Cord Injury
C09817 Food Frequency Questionnaire - (FFQ)-coffee caffeine indicator

Average total amount of coffee with caffeine the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C09652 Food Frequency Questionnaire - (FFQ)-other multi-vitamin name

Name of the other specific brands taken, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C13207 Generalized Anxiety Disorder (GAD-7) - worry too much scale

Scale describing how often participant/subject worries too much about different things, as a part of Generalized Anxiety Disorder (GAD-7)

Exploratory Generalized Anxiety Disorder (GAD-7) (Pediatric CDEs) Spinal Cord Injury Spinal Cord Injury
C09777 Food Frequency Questionnaire - (FFQ)-liver chicken turkey indicator

Average total amount of liver: chicken or turkey the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C01701 Lab specimen collection date and time

Date (and time if applicable and known) when the specimen was collected

Exploratory Laboratory Tests Spinal Cord Injury Spinal Cord Injury
C08528 36-item Short Form Health Survey (SF-36) - Times downhearted blue score

Score of times feeling downhearted and blue during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Exploratory Short Form 36-Item Health Survey (SF-36) Spinal Cord Injury Spinal Cord Injury
C09825 Food Frequency Questionnaire - (FFQ)-fat free light popcorn indicator

Average total amount of fat free or light popcorn the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C09660 Food Frequency Questionnaire - (FFQ)-vitamin B6 dose

Dose per day of Vitamin B6, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C19418 Brain Motor Control Assessment (BMCA) - Comments text

The free-text field for additional comments as part of the Brain Motor Control Assessment (BMCA)

Exploratory Brain Motor Control Assessment - (Pediatric CDEs) Spinal Cord Injury Spinal Cord Injury
C06251 Medication cardiovascular function type

Type of medication affecting cardiovascular functions.

Exploratory Prior and Concomitant Medications Spinal Cord Injury Spinal Cord Injury
C09747 Food Frequency Questionnaire - (FFQ)-beans lentil indicator

Average total amount of beans or lentils, baked, dried or in soup the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C09872 Food Frequency Questionnaire - (FFQ)-kind diet indicator

Kind of diet the subject follows, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C19176 Pre spinal cord lesion cardiovascular history condition type

Types of cardiovascular conditions present before spinal cord lesion

Exploratory Medical History Spinal Cord Injury Spinal Cord Injury
C09707 Food Frequency Questionnaire - (FFQ)-pure butter indicator

Average total amount of pure butter (small pat or tsp.) added to food or bread the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C09880 Food Frequency Questionnaire - (FFQ)-fruit use ten years indicator

Indicator of how the subjects use of fruits changed over the past ten years, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C19205 Congenital deformity surgery caused indicator

Indicator for surgery caused by pre-existing congenital deformities of spine and spinal cord

Exploratory Medical History Spinal Cord Injury Spinal Cord Injury
C09715 Food Frequency Questionnaire - (FFQ)-prune juice indicator

Average total amount of prune juice the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
Displaying 326 - 350 of 1888

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.