CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 326 - 350 of 1886
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19417 Brain Motor Control Assessment (BMCA) - Protocol anatomic site

The anatomic site of the protocol being evaluated as part of the Brain Motor Control Assessment (BMCA)

Exploratory Brain Motor Control Assessment - (Pediatric CDEs) Spinal Cord Injury Spinal Cord Injury
C09746 Food Frequency Questionnaire - (FFQ)-mixed vegetables stir fry vegetable soup indicator

Average total amount of mixed vegetables, stir fry, or vegetable soup the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C19184 Urinary tract drug use indicator

Indicator for urinary tract drugs used within the last year

Exploratory Prior and Concomitant Medications Spinal Cord Injury Spinal Cord Injury
C19205 Congenital deformity surgery caused indicator

Indicator for surgery caused by pre-existing congenital deformities of spine and spinal cord

Exploratory Medical History Spinal Cord Injury Spinal Cord Injury
C01701 Lab specimen collection date and time

Date (and time if applicable and known) when the specimen was collected

Exploratory Laboratory Tests Spinal Cord Injury Spinal Cord Injury
C09794 Food Frequency Questionnaire - (FFQ)-pasta indicator

Average total amount of pasta the subject ate this past year, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C19432 Brain Motor Control Assessment (BMCA) - Achilles clonus duration

Duration of Achilles clonus as part of the Brain Motor Control Assessment (BMCA)

Exploratory Brain Motor Control Assessment - (Pediatric CDEs) Spinal Cord Injury Spinal Cord Injury
C20377 Pittsburgh Sleep Quality Index (PSQI) - Past month bed time

The bed time (recorded as 24-hour clock or military time) for the majority of the nights in the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Exploratory Pittsburgh Sleep Quality Index (PSQI) Spinal Cord Injury Spinal Cord Injury
C09754 Food Frequency Questionnaire - (FFQ)-Iceberg head lettuce indicator

Average total amount of iceberg or head lettuce the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C21671 Urinary tract antibiotic antiseptic use reason

Reason antibiotics or antiseptics were used for the urinary tract

Exploratory Prior and Concomitant Medications Spinal Cord Injury Spinal Cord Injury
C19213 Pre-existing systemic neuro-degenerative disorder specify diagnosis name

Specifies name of pre-existing systemic neuro-degenerative disorder

Exploratory Medical History Spinal Cord Injury Spinal Cord Injury
C01714 Pregnancy test not applicable reason

Reason that performance of a pregnancy test was not applicable to the participant/subject

Exploratory Laboratory Tests Spinal Cord Injury Spinal Cord Injury
C09802 Food Frequency Questionnaire - (FFQ)-pizza indicator

Average total amount of pizza the subject ate this past year, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C17230 Swallowing Disturbance Questionnaire (SwDQ) - excess difficulty swallow saliva score

Score for how frequent the participant/subject feels as if he or she has excess saliva in the mouth, drools, or has trouble swallowing the saliva in the mouth, as a part of Swallowing Disturbance Questionnaire (SDQ)

Exploratory Swallowing Disturbance Questionnaire (SDQ) Spinal Cord Injury Spinal Cord Injury
C09762 Food Frequency Questionnaire - (FFQ)-regular eggs yolk indicator

Average amount of regular eggs with yolk the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

Exploratory Electrical Perceptual Thresholds (Pediatric CDEs) Spinal Cord Injury Spinal Cord Injury
C09722 Food Frequency Questionnaire - (FFQ)-oranges indicator

Average total amount of oranges the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C17238 Swallowing Disturbance Questionnaire (SwDQ) - cough difficulty breathe saliva windpipe score

Score for how frequent the participant/subject experiences coughing or difficulty breathing as a result of saliva entering the windpipe, as a part of Swallowing Disturbance Questionnaire (SDQ)

Exploratory Swallowing Disturbance Questionnaire (SDQ) Spinal Cord Injury Spinal Cord Injury
C09770 Food Frequency Questionnaire - (FFQ)-other processed meats indicator

Average total amount of other processed meats; e.g., sausage, kielbasa, etc the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C19316 Dermatome area name

Name of dermatome area

Exploratory Electrical Perceptual Thresholds (Pediatric CDEs) Spinal Cord Injury Spinal Cord Injury
C09730 Food Frequency Questionnaire - (FFQ)-peaches plums indicator

Average total amount of peaches or plums the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C09692 Food Frequency Questionnaire - (FFQ)-skim milk amount taken value

Average total amount of skim milk the subject drank this past year, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C08520 36-item Short Form Health Survey (SF-36) - Interfered social activities physical emotional problems score

Score of interfered normal social activities with family, friends, neighbors, or groups due to physical health or emotional problems during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Exploratory Short Form 36-Item Health Survey (SF-36) Spinal Cord Injury Spinal Cord Injury
C09817 Food Frequency Questionnaire - (FFQ)-coffee caffeine indicator

Average total amount of coffee with caffeine the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)

Exploratory Food Frequency Questionnaire (FFQ) Spinal Cord Injury Spinal Cord Injury
C18779 Urinary tract impairment unrelate injury specify text

The free-text field related to 'Urinary tract impairment unrelate injury indicator'. Indicator of urinary tract impairment unrelated to spinal cord lesion

Exploratory Medical History Spinal Cord Injury Spinal Cord Injury
Displaying 326 - 350 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.