CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 26 - 50 of 2057
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C06421 SCI Classification light touch single side score

Score of sensation of light touch for the specific side of the body.

 Core International Standards for Neurological Classification of SCI Worksheet False Spinal Cord Injury Spinal Cord Injury
C06000 Site identifier number

Unique identification number given to the study site to distinguish the location where data is recorded.

 Core International Standards for Neurological Classification of SCI Worksheet False Spinal Cord Injury Spinal Cord Injury
C06322 SCI Classification sensory zone of partial preservation right result

Result of the caudal extent of partially innervated segments, demonstrating partial preservation of sensory function on the right side of the body.

 Core International Standards for Neurological Classification of SCI Worksheet False Spinal Cord Injury Spinal Cord Injury
C06335 SCI Classification pin prick total score

Total score of a pin prick on the right and left sides of the body.

 Core International Standards for Neurological Classification of SCI Worksheet False Spinal Cord Injury Spinal Cord Injury
C06420 SCI Classification motor strength lower limb single side score

Score of motor strength for the lower limb on the specific side.

 Core International Standards for Neurological Classification of SCI Worksheet False Spinal Cord Injury Spinal Cord Injury
C06007 SCI Classification sensory neurological level right result

Result of the most caudal segment of the spinal cord on the right side of the body with normal sensory function for pinprick and light touch.

 Core International Standards for Neurological Classification of SCI Worksheet False Spinal Cord Injury Spinal Cord Injury
C06324 SCI Classification motor exam anatomic site

Muscle (and associated spinal cord level) evaluated during the motor examination

 Core International Standards for Neurological Classification of SCI Worksheet False Spinal Cord Injury Spinal Cord Injury
C06337 SCI Classification motor exam anatomic site grade

Grade that documents the movement, range of motion, and resistance of the specific muscle on the right or left side.

 Core International Standards for Neurological Classification of SCI Worksheet False Spinal Cord Injury Spinal Cord Injury
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed.

 Core Child and Adolescent Scale of Participation (CASP) True Spinal Cord Injury Spinal Cord Injury
C06422 SCI Classification pin prick single side score

Score of sensation of a pin prick for the specific side of the body.

 Core International Standards for Neurological Classification of SCI Worksheet False Spinal Cord Injury Spinal Cord Injury
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

 Core International SCI Pulmonary Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed.

 Core International Standards for Neurological Classification of SCI Worksheet False Spinal Cord Injury Spinal Cord Injury
C06323 SCI Classification motor zone of partial preservation right result

Result of the caudal extent of partially innervated segments, demonstrating partial preservation of motor function on the right side of the body.

 Core International Standards for Neurological Classification of SCI Worksheet False Spinal Cord Injury Spinal Cord Injury
C06336 SCI Classification motor zone of partial preservation left result

Result of the caudal extent of partially innervated segments, demonstrating partial preservation of motor function on the left side of the body.

 Core International Standards for Neurological Classification of SCI Worksheet False Spinal Cord Injury Spinal Cord Injury
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

 Core International SCI Endocrine and Metabolic Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06421 SCI Classification light touch single side score

Score of sensation of light touch for the specific side of the body.

 Core International Standards for Neurological Classification of SCI Worksheet False Spinal Cord Injury Spinal Cord Injury
C06008 SCI Classification motor neurological level left result

Result of the lowest key muscle on the left side of the body that has a grade of at least 3, provided the key muscles represented by segments above that level are judged to be normal (grade 5).

 Core International Standards for Neurological Classification of SCI Worksheet False Spinal Cord Injury Spinal Cord Injury
C06325 SCI Classification light touch anatomic site grade

Grade that documents the ability to sense light touch on the specific spinal cord level and side

 Core International Standards for Neurological Classification of SCI Worksheet False Spinal Cord Injury Spinal Cord Injury
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

 Core General Core False Spinal Cord Injury Spinal Cord Injury
C06347 SCI Classification motor strength lower limb total score

Total score of motor strength for the lower right and left limbs.

 Core International Standards for Neurological Classification of SCI Worksheet False Spinal Cord Injury Spinal Cord Injury
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

 Core International SCI Musculoskeletal Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19247 Subject ID

Subject identification ID

 Core International Standards for Neurological Classification of SCI Worksheet False Spinal Cord Injury Spinal Cord Injury
C05400 Injury date time

Date (and time, if applicable and known) of injury

 Core History of Injury False Spinal Cord Injury Spinal Cord Injury
C06006 SCI Classification sensory neurological level left result

Result of the most caudal segment of the spinal cord on the left side of the body with normal sensory function for pinprick and light touch.

 Core International Standards for Neurological Classification of SCI Worksheet False Spinal Cord Injury Spinal Cord Injury
C06324 SCI Classification motor exam anatomic site

Muscle (and associated spinal cord level) evaluated during the motor examination

 Core International Standards for Neurological Classification of SCI Worksheet False Spinal Cord Injury Spinal Cord Injury
Displaying 26 - 50 of 2057

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.