CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C06324	SCI Classification motor exam anatomic site	Muscle (and associated spinal cord level) evaluated during the motor examination	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
C00322	Medical history condition text	Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history	Core	International SCI Musculoskeletal Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
C06006	SCI Classification sensory neurological level left result	Result of the most caudal segment of the spinal cord on the left side of the body with normal sensory function for pinprick and light touch	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
C06348	SCI Classification anal sensation indicator	Indicator of whether or not the person has any anal sensation	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	General Core	False	Spinal Cord Injury	Spinal Cord Injury
C06320	SCI Classification motor strength upper limb total score	Total score of motor strength for the upper right and left limbs	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
C00322	Medical history condition text	Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history	Core	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
C06331	SCI Classification pin prick anatomic site grade	Grade of the ability to sense a pin prick on the specific spinal cord level and side	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
C06419	SCI Classification motor strength upper limb single side score	Score of motor strength for the upper limb on the specific side	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
C06325	SCI Classification light touch anatomic site grade	Grade that documents the ability to sense light touch on the specific spinal cord level and side	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
C06007	SCI Classification sensory neurological level right result	Result of the most caudal segment of the spinal cord on the right side of the body with normal sensory function for pinprick and light touch	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
C05400	Injury date time	Date (and time, if applicable and known) of injury	Core	History of Injury	False	Spinal Cord Injury	Spinal Cord Injury
C06387	SCI Classification anal contraction voluntary indicator	Indicator of whether or not the patient can have a voluntary anal contraction	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
C06000	Site identifier number	Unique identification number given to the study site to distinguish the location where data is recorded	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
C00313	Medical history condition SNOMED CT code	Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject	Core	General Core	False	Spinal Cord Injury	Spinal Cord Injury
C06322	SCI Classification sensory zone of partial preservation right result	Result of the caudal extent of partially innervated segments, demonstrating partial preservation of sensory function on the right side of the body	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
C06335	SCI Classification pin prick total score	Total score of a pin prick on the right and left sides of the body	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
C06420	SCI Classification motor strength lower limb single side score	Score of motor strength for the lower limb on the specific side	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
C06414	Spinal cord injury etiology type	Etiology of the spinal cord injury. Traumatic spinal cord injury is impairment of the spinal cord or cauda equina function resulting from the application of an external force of any magnitude	Core	History of Injury	False	Spinal Cord Injury	Spinal Cord Injury
C06326	SCI Classification sensory exam anatomic site	Spinal cord level evaluated during the sensory examination	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	Demographics	False	Spinal Cord Injury	Spinal Cord Injury
C18386	Less three years age value	Number of months from zero to thirty-six months of age	Core	Demographics	False	Spinal Cord Injury	Spinal Cord Injury
C06008	SCI Classification motor neurological level left result	Result of the lowest key muscle on the left side of the body that has a grade of at least 3, provided the key muscles represented by segments above that level are judged to be normal (grade 5)	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
C06410	SCI Classification S4-S5 sensory function result	Result of the extent to which motor or sensory function is preserved in the sacral segments S4-S5	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.