CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 1826 - 1850 of 1886

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0009-C02304	C02304	Adverse event relatedness scale	Scale of the causality between the treatment modality/intervention and the specific adverse event	Supplemental	Adverse Events	False	Spinal Cord Injury	Spinal Cord Injury
F0009-C02303	C02303	Adverse event outcome status	Final status of the participant/subject related to the adverse event	Supplemental	Adverse Events	False	Spinal Cord Injury	Spinal Cord Injury
F0009-C02302	C02302	Adverse event other action taken type	Type of action taken due to adverse event other than action taken with study intervention/ treatment	Supplemental	Adverse Events	False	Spinal Cord Injury	Spinal Cord Injury
F0009-C02311	C02311	Adverse event MedDRA lower level term code	Code that corresponds to the Medical Dictionary for Regulatory Activities (MedDRA) Lower Level Term (LLT) for an adverse event	Supplemental	Adverse Events	False	Spinal Cord Injury	Spinal Cord Injury
F0009-C02301	C02301	Adverse event end date and time	Date (and time, if applicable and known) on which the adverse event discontinued/stopped	Supplemental	Adverse Events	False	Spinal Cord Injury	Spinal Cord Injury
F0009-C02308	C02308	Adverse event during study indicator	Indicator of whether the participant/subject experienced any adverse events during the study	Supplemental	Adverse Events	False	Spinal Cord Injury	Spinal Cord Injury
F0009-C02310	C02310	Adverse event CTCAE low level term name	Text that represents the Common Terminology Criteria for Adverse Events (CTCAE) low level term name for an adverse event	Supplemental	Adverse Events	False	Spinal Cord Injury	Spinal Cord Injury
F0830-C18161	C18161	Adrenal disease specify name	Specifies the name of adrenal disease diagnosed	Supplemental	International SCI Endocrine and Metabolic Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1803-C19463	C19463	Acute spinal cord injury features integer range value	Value on the integer range for acute spinal cord injury feature	Supplemental	Magnetic Resonance Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1803-C19461	C19461	Acute spinal cord injury feature type	Type of acute spinal cord injury feature	Supplemental	Magnetic Resonance Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1724-C19163	C19163	Acute care unit admission time	The time at which participant was admitted to acute care unit	Supplemental	Acute Admission/Discharge	False	Spinal Cord Injury	Spinal Cord Injury
F1724-C19162	C19162	Acute care unit admission date	The date at which participant was admitted to acute care unit	Supplemental	Acute Admission/Discharge	False	Spinal Cord Injury	Spinal Cord Injury
F1723-C19142	C19142	Activity type	The types of activities related to rehabilitation services	Supplemental	Rehabilitation Therapies	False	Spinal Cord Injury	Spinal Cord Injury
F1723-C19143	C19143	Activity other text	The free text field related to "Activity types" specifying other text. The type of activity	Supplemental	Rehabilitation Therapies	False	Spinal Cord Injury	Spinal Cord Injury
F1723-C19146	C19146	Activity frequency other text	The free text field related to "Activity frequency" specifying other text. The frequency of the activity	Supplemental	Rehabilitation Therapies	False	Spinal Cord Injury	Spinal Cord Injury
F1723-C19145	C19145	Activity frequency	The frequency of the activity related to rehabilitation services	Supplemental	Rehabilitation Therapies	False	Spinal Cord Injury	Spinal Cord Injury
F2069-C19144	C19144	Activity description	Description of activity	Supplemental	Falls Diary	False	Spinal Cord Injury	Spinal Cord Injury
F2357-C53074	C53074	Abdominal pain discomfort last four week average frequency	The average frequency of abdominal pain/discomfort within the last four weeks	Supplemental	International SCI Bowel Function Basic Data Set Version 2.0	False	Spinal Cord Injury	Spinal Cord Injury
F0823-C06216	C06216	Abdominal pain discomfort frequency	The frequency of abdominal pain/discomfort within the last three months.	Supplemental	International SCI Bowel Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0823-C06215	C06215	Abdominal bloating frequency	The frequency of abdominal bloating within the last three months.	Supplemental	International SCI Bowel Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1791-C19365	C19365	Abbreviated injury scale six body region category	The six body regions assessed with the 6 point intermediate ordinal severity scale	Supplemental	Pre-Hospital Assessment Form	False	Spinal Cord Injury	Spinal Cord Injury
F1791-C19367	C19367	Abbreviated injury scale nine body region category	The nine body regions assessed with the 6 point advanced ordinal severity scale	Supplemental	Pre-Hospital Assessment Form	False	Spinal Cord Injury	Spinal Cord Injury
F2076-C19324	C19324	Abbreviated injury scale grade value	Value of grade on the association impairment scale	Exploratory	Electrical Perceptual Thresholds (Pediatric CDEs)	False	Spinal Cord Injury	Spinal Cord Injury
F1739-C19324	C19324	Abbreviated injury scale grade value	Value of grade on the association impairment scale	Supplemental	Electrical Perceptual Thresholds	False	Spinal Cord Injury	Spinal Cord Injury
F1791-C05450	C05450	Abbreviated Injury Scale body region score	Score for the body region measured by Abbreviated Injury Scale	Supplemental	Pre-Hospital Assessment Form	False	Spinal Cord Injury	Spinal Cord Injury

Displaying 1826 - 1850 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.