CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 276 - 300 of 1886
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19389 Spine ligamentous injury rupture status

Status of ligamentous injury or rupture in spine

Supplemental Magnetic Resonance Imaging Spinal Cord Injury Spinal Cord Injury
C19474 Spine length integer range value

Value on the integer range of spine length in millimeters

Supplemental Magnetic Resonance Imaging Spinal Cord Injury Spinal Cord Injury
C19381 Spine extra-axial fluid upper limit level anatomic site

Upper limit of level for anatomic site as related with an overdrainage of cerebrospinal fluid

Supplemental Magnetic Resonance Imaging Spinal Cord Injury Spinal Cord Injury
C19383 Spine extra-axial fluid point of maximum compression level anatomic site

The anatomic site level for point of maximum compression in area with an overdrainage of cerebrospinal fluid

Supplemental Magnetic Resonance Imaging Spinal Cord Injury Spinal Cord Injury
C19382 Spine extra-axial fluid lower limit level anatomic site

The anatomic site lower limit of level with an overdrainage of cerebrospinal fluid

Supplemental Magnetic Resonance Imaging Spinal Cord Injury Spinal Cord Injury
C19394 Spine degenerative feature type

The type related to degenerative feature of spine

Supplemental Magnetic Resonance Imaging Spinal Cord Injury Spinal Cord Injury
C19391 Spine degenerative feature indicator

Indicator for developmental feature in spine

Supplemental Magnetic Resonance Imaging Spinal Cord Injury Spinal Cord Injury
C19392 Spine degenerative abnormality upper limit level anatomic site

Level of upper limit in spine for abnormality from degenerative feature

Supplemental Magnetic Resonance Imaging Spinal Cord Injury Spinal Cord Injury
C19393 Spine degenerative abnormality lower limit level anatomic site

The anatomic site level of spine related to the degenerative features of abnormality

Supplemental Magnetic Resonance Imaging Spinal Cord Injury Spinal Cord Injury
C19460 Spine canal cord measurement not applicable indicator

Indicator for not applicable response

Supplemental Magnetic Resonance Imaging Spinal Cord Injury Spinal Cord Injury
C19449 Spine canal cord location type

Type of canal/cord location

Supplemental Magnetic Resonance Imaging Spinal Cord Injury Spinal Cord Injury
C19451 Spine canal cord level anatomic site

Anatomic level of spinal cord

Supplemental Magnetic Resonance Imaging Spinal Cord Injury Spinal Cord Injury
C19473 Spine caliber integer range value

Value on the integer range of spine caliber

Supplemental Magnetic Resonance Imaging Spinal Cord Injury Spinal Cord Injury
C19380 Spine angulation level anatomic site

The anatomic site level of angulation in spine

Supplemental Magnetic Resonance Imaging Spinal Cord Injury Spinal Cord Injury
C06413 Spinal surgery indicator

Whether any of the following spinal surgical procedures were performed during the inpatient hospitalization following spinal cord injury: laminectomy, neural canal restoration, reduction, spinal fusion, or internal fixation of the spine. Laminectomy is defined as removal of normal intact lamina or foreign body at the site of spinal cord damage. Neural canal restoration is defined as the removal of bone or disk fragments, blood clots, or foreign bodies (such as bullet fragments) from the spinal canal. Reduction is defined as replacement of one or more dislocated, subluxed or angulated vertebra into anatomic or near anatomic alignment. Spinal fusion is defined as the addition of a bone graft to the vertebrae for the purpose of achieving intervertebral fusion or stability. Internal fixation of the spine is defined as attaching rods, plates, wires, etc. to the spine (individually or in combination) to provide internal surgical stabilization of the vertebral column

Supplemental International SCI Core Data Set Spinal Cord Injury Spinal Cord Injury
C06413 Spinal surgery indicator

Whether any of the following spinal surgical procedures were performed during the inpatient hospitalization following spinal cord injury: laminectomy, neural canal restoration, reduction, spinal fusion, or internal fixation of the spine. Laminectomy is defined as removal of normal intact lamina or foreign body at the site of spinal cord damage. Neural canal restoration is defined as the removal of bone or disk fragments, blood clots, or foreign bodies (such as bullet fragments) from the spinal canal. Reduction is defined as replacement of one or more dislocated, subluxed or angulated vertebra into anatomic or near anatomic alignment. Spinal fusion is defined as the addition of a bone graft to the vertebrae for the purpose of achieving intervertebral fusion or stability. Internal fixation of the spine is defined as attaching rods, plates, wires, etc. to the spine (individually or in combination) to provide internal surgical stabilization of the vertebral column

Supplemental International SCI Core Data Set v2.0 Spinal Cord Injury Spinal Cord Injury
C19080 Spinal intervention surgical procedure performance nonparticipating facility indicator

Indicates performance of a spinal intervention or a surgical procedure at a nonparticipating facility

Supplemental Surgical and Procedural Interventions Spinal Cord Injury Spinal Cord Injury
C19081 Spinal intervention or surgical procedure performance study facility indicator

Indicator for performance of a spinal intervention or a surgical procedure at the study facility

Supplemental Surgical and Procedural Interventions Spinal Cord Injury Spinal Cord Injury
C06431 Spinal injury traumatic translation indicator

For each of the spinal column injury level(s) whether there was any traumatic translation (occiput to sacrum). Translation is defined as sagittal and/or coronal plane mal-alignment of adjacent vertebra as seen on lateral and/or AP radiographs respectively; it consists of movement of 3.5 mm or more of one cervical vertebra on top of the adjacent vertebra or movement of 2.5 mm or more of one thoracic and lumbar vertebra on top of the adjacent vertebra1 (on available imaging)

Supplemental International SCI Spinal Column Injury Basic Data Set Spinal Cord Injury Spinal Cord Injury
C05452 Spinal injury anatomic site

Anatomic site(s) of the spine injury represented as level(s) of the spinal-injured vertebrae

Supplemental International SCI Spinal Column Injury Basic Data Set Spinal Cord Injury Spinal Cord Injury
C19084 Spinal elements close manipulation & reduction indicator

The indicator related to closed manipulation and/or reduction of spinal elements in a spinal intervention

Supplemental International SCI Spinal Intervention and Spinal Procedures Basic Data Set Spinal Cord Injury Spinal Cord Injury
C19084 Spinal elements close manipulation & reduction indicator

The indicator related to closed manipulation and/or reduction of spinal elements in a spinal intervention

Supplemental Surgical and Procedural Interventions Spinal Cord Injury Spinal Cord Injury
C19492 Spinal cord injury upper extremity shoulder function status

The status of shoulder function as part of the test in spinal cord injury

Supplemental-Highly Recommended International SCI Upper Extremity Basic Data Set Spinal Cord Injury Spinal Cord Injury
C19492 Spinal cord injury upper extremity shoulder function status

The status of shoulder function as part of the test in spinal cord injury

Supplemental-Highly Recommended International SCI Upper Extremity Basic Data Set Spinal Cord Injury Spinal Cord Injury
C19491 Spinal cord injury upper extremity reach grasp basic assessment status

The status of the ability to reach and grasp as part of the test in spinal cord injury

Supplemental-Highly Recommended International SCI Upper Extremity Basic Data Set Spinal Cord Injury Spinal Cord Injury
Displaying 276 - 300 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.