CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0821-C18127	C18127	Xray urinary tract other finding text	Free-text field to specify other findings from the urinary tract X-ray study	Supplemental	International SCI Urinary Tract Imaging Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C18127	C18127	Xray urinary tract other finding text	Free-text field to specify other findings from the urinary tract X-ray study	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F0821-C18121	C18121	Xray urinary tract code	Type of x-ray of the urinary tract study performed on the urinary tract	Supplemental	International SCI Urinary Tract Imaging Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0821-C18123	C18123	Xray study urinary tract global result type	The result type related to the X-ray study of the urinary tract found functional and anatomical conditions	Supplemental	International SCI Urinary Tract Imaging Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C18123	C18123	Xray study urinary tract global result type	The result type related to the X-ray study of the urinary tract found functional and anatomical conditions	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F0821-C18122	C18122	Xray date	Date X-ray was performed	Supplemental	International SCI Urinary Tract Imaging Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2070-C12685	C12685	Wheelchair use frequency	Frequency with which the participant/subject uses their wheelchair, if applicable	Supplemental	Assistive/Mobility Devices and Orthoses	False	Spinal Cord Injury	Spinal Cord Injury
F2070-C18183	C18183	Wheelchair driven subject indicator	Indicator for whether the power wheelchair is driven by the participant/subject	Supplemental	Assistive/Mobility Devices and Orthoses	False	Spinal Cord Injury	Spinal Cord Injury
F0830-C01581	C01581	Weight unit of measure	Unit of measure for the weight numerical value	Supplemental	International SCI Endocrine and Metabolic Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C01541	C01541	Weight measurement	Measurement of participant's/subject's weight	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F0830-C01541	C01541	Weight measurement	Measurement of participant's/subject's weight	Supplemental	International SCI Endocrine and Metabolic Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2070-C21648	C21648	Walker wheel number	Designates the number of wheels the walker has that the participant/subject uses	Supplemental	Assistive/Mobility Devices and Orthoses	False	Spinal Cord Injury	Spinal Cord Injury
F1708-C19483	C19483	Volunteer work hour week count	The number of hours per week in volunteer work	Supplemental	International SCI Activities and Participation Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0821-C18136	C18136	Void cystogram results type	Results of voiding cystogram performed on the urinary tract	Supplemental	International SCI Urinary Tract Imaging Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C18136	C18136	Void cystogram results type	Results of voiding cystogram performed on the urinary tract	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F1722-C19133	C19133	Vital status type	The type of vital status held by the patient on discharge	Supplemental	Rehabilitation Admission/Discharge	False	Spinal Cord Injury	Spinal Cord Injury
F1724-C04807	C04807	Vital status	Status of participant/subject as alive or dead	Supplemental	Acute Admission/Discharge	False	Spinal Cord Injury	Spinal Cord Injury
F0832-C01519	C01519	Vital signs date and time	Date (and time, if applicable and known) the vital signs and other body measurements were taken by indicating the month, day, and year for the date and am, pm, or 24 hour clock for time	Supplemental	International SCI Skin and Thermoregulation Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1790-C17409	C17409	Visit date	Date of interview or visit (actually the date when data in the form were captured)	Core	History of Injury	False	Spinal Cord Injury	Spinal Cord Injury
F0821-C06145	C06145	Vesicouretic reflux laterality type	The laterality type related to reflux to the ureter observed at the right and/or the left side	Supplemental	International SCI Urinary Tract Imaging Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C06145	C06145	Vesicouretic reflux laterality type	The laterality type related to reflux to the ureter observed at the right and/or the left side	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F2513-C06004	C06004	Ventilatory assistance utilization frequency indicator	Documents any use of any type of ventilatory assistance used to sustain respiration on the date of final inpatient discharge (the date of discharge from the last inpatient rehabilitation hospital or discharge from the last acute care hospital if the patient is not admitted to a rehabilitation hospital)	Supplemental	International SCI Core Data Set v2.0	False	Spinal Cord Injury	Spinal Cord Injury
F0818-C06004	C06004	Ventilatory assistance utilization frequency indicator	Documents any use of any type of ventilatory assistance used to sustain respiration on the date of final inpatient discharge (the date of discharge from the last inpatient rehabilitation hospital or discharge from the last acute care hospital if the patient is not admitted to a rehabilitation hospital)	Supplemental-Highly Recommended	International SCI Core Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0829-C06113	C06113	Ventilatory assistance type utilized start date	Date (and time, if applicable and known) the specific ventilatory assistance device (only for diaphragmatic pacing, phrenic nerve stimulation, or bi-level positive airway pressure) was inserted or its use started	Supplemental	International SCI Pulmonary Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0829-C06119	C06119	Ventilatory assistance type utilized during evaluation indicator	Indicator of whether the assistance device was utilized at the time of evaluation to augment ventilation	Supplemental	International SCI Pulmonary Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.