CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 451 - 475 of 1886

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2069-C21641	C21641	Fall details injury sustained test	Description of the injuries sustained when the fall recorded in the Falls Diary occurred	Supplemental	Falls Diary	False	Spinal Cord Injury	Spinal Cord Injury
F2069-C21636	C21636	Fall details location text	Location of the fall the participant/subject experienced recorded in the Falls Diary	Supplemental	Falls Diary	False	Spinal Cord Injury	Spinal Cord Injury
F2069-C21642	C21642	Fall details not walking type	Details of the participant's/subject's position if fall recorded in Falls Diary occurred when not walking	Supplemental	Falls Diary	False	Spinal Cord Injury	Spinal Cord Injury
F2069-C21643	C21643	Fall details specify type	Description of what the participant/subject was doing when the fall recorded in Falls Diary occurred when not walking	Supplemental	Falls Diary	False	Spinal Cord Injury	Spinal Cord Injury
F2069-C21635	C21635	Fall record date and time	Date and time for each fall recorded in the falls diary by the participant/subject	Supplemental	Falls Diary	False	Spinal Cord Injury	Spinal Cord Injury
F2069-C58652	C58652	Fall record time AM PM category	Category of the part of the day in which the time of the subject/participant's fall occurred	Supplemental	Falls Diary	False	Spinal Cord Injury	Spinal Cord Injury
F1759-C00721	C00721	Family history medical condition indicator	Indicator of whether a family member or first and second degree blood relatives of the participant has had a history of the particular medical condition or health related event	Exploratory	Family History	False	Spinal Cord Injury	Spinal Cord Injury
F0827-C00721	C00721	Family history medical condition indicator	Indicator of whether a family member or first and second degree blood relatives of the participant has had a history of the particular medical condition or health related event	Supplemental	International SCI Cardiovascular Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1759-C00722	C00722	Family history medical condition relative type	Relationship of the family member or ancestor with the medical condition or health related event to the participant	Exploratory	Family History	False	Spinal Cord Injury	Spinal Cord Injury
F0827-C00722	C00722	Family history medical condition relative type	Relationship of the family member or ancestor with the medical condition or health related event to the participant	Supplemental	International SCI Cardiovascular Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0827-C18679	C18679	Family history medical condition relative type other text	The free-text field related to 'Family history medical condition relative type', specifying other text. Relationship of the family member or ancestor with the medical condition or health related event to the participant	Supplemental	International SCI Cardiovascular Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1759-C18679	C18679	Family history medical condition relative type other text	The free-text field related to 'Family history medical condition relative type', specifying other text. Relationship of the family member or ancestor with the medical condition or health related event to the participant	Exploratory	Family History	False	Spinal Cord Injury	Spinal Cord Injury
F1759-C00720	C00720	Family history medical condition type	Type of medical condition or health related event for which the family history is taken	Exploratory	Family History	False	Spinal Cord Injury	Spinal Cord Injury
F0827-C18678	C18678	Family history medical condition type other text	The free-text field related to 'Family history medical condition type', specifying other text. Type of medical condition or health related event for which the family history is taken	Supplemental	International SCI Cardiovascular Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1759-C18678	C18678	Family history medical condition type other text	The free-text field related to 'Family history medical condition type', specifying other text. Type of medical condition or health related event for which the family history is taken	Exploratory	Family History	False	Spinal Cord Injury	Spinal Cord Injury
F1725-C18678	C18678	Family history medical condition type other text	The free-text field related to 'Family history medical condition type', specifying other text. Type of medical condition or health related event for which the family history is taken	Exploratory	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F1737-C00205	C00205	Family income range	Range, in U.S. dollars, of the annual pre-tax, pre-deduction total income, of the household of which the participant/subject is a member	Exploratory	Demographics	False	Spinal Cord Injury	Spinal Cord Injury
F0823-C06220	C06220	Fecal incontinence liquid stools frequency	The frequency of fecal incontinence to liquid stools within the last three months.	Supplemental	International SCI Bowel Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2357-C53037	C53037	Fecal incontinence past four week average frequency	Average frequency of incontinence to solid or liquid stools within the last four weeks. Fecal incontinence is defined as involuntary passage of stools	Supplemental	International SCI Bowel Function Basic Data Set Version 2.0	False	Spinal Cord Injury	Spinal Cord Injury
F0822-C06192	C06192	Fecal incontinence past three month average frequency	Average frequency of incontinence to solid or liquid stools within the last three months. Fecal incontinence is defined as involuntary passage of stools	Supplemental	International SCI Bowel Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0823-C06221	C06221	Fecal incontinence solid stools frequency	The frequency of fecal incontinence to solid stools within the last three months.	Supplemental	International SCI Bowel Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0823-C06219	C06219	Flatus incontinence frequency	The frequency of flatus incontinence within the last three months.	Supplemental	International SCI Bowel Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2357-C53041	C53041	Flatus incontinence indicator	The indicator related to flatus incontinence within the last four weeks	Supplemental	International SCI Bowel Function Basic Data Set Version 2.0	False	Spinal Cord Injury	Spinal Cord Injury
F1723-C21661	C21661	Follow-up care other text	Describes other types of follow-up care the subject/participant has received	Supplemental	Rehabilitation Therapies	False	Spinal Cord Injury	Spinal Cord Injury
F1723-C21662	C21662	Follow-up care type	Indicates the type of follow-up care the participant/ subject received	Supplemental	Rehabilitation Therapies	False	Spinal Cord Injury	Spinal Cord Injury

Displaying 451 - 475 of 1886

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.