CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 1826 - 1850 of 1886

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Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1791-C01002	C01002	Glasgow Coma Scale (GCS) - verbal response scale	Score that describes the participant's verbal response according to the Glasgow Coma Scale (GCS)	Supplemental	Pre-Hospital Assessment Form	False	Spinal Cord Injury	Spinal Cord Injury
F1791-c01001	C01001	Glasgow Coma Scale (GCS) - motor response scale	Glasgow Coma Scale (GCS) - Best motor response (M). The GCS is a standardized instrument for assessing the level of consciousness. It evaluates three aspects of responsiveness: eye opening, motor response, verbal response	Supplemental	Pre-Hospital Assessment Form	False	Spinal Cord Injury	Spinal Cord Injury
F1791-C01000	C01000	Glasgow Coma Scale (GCS) - eye response scale	Glasgow Coma Scale (GCS) - Best eye response (E). The GCS is a standardized instrument for assessing the level of consciousness. It evaluates three aspects of responsiveness: eye opening, motor response, verbal response	Supplemental	Pre-Hospital Assessment Form	False	Spinal Cord Injury	Spinal Cord Injury
F1727-C00730	C00730	Alcohol use frequency	The frequency of consumption of alcohol by the participant	Supplemental	Alcohol and Tobacco Use	False	Spinal Cord Injury	Spinal Cord Injury
F0830-C00730	C00730	Alcohol use frequency	The frequency of consumption of alcohol by the participant	Supplemental	International SCI Endocrine and Metabolic Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2068-C00724	C00724	APGAR five minute score	Score of a newborn recorded at five minutes from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness	Supplemental-Highly Recommended	Birth Injuries	False	Spinal Cord Injury	Spinal Cord Injury
F2068-C00723	C00723	APGAR ten minute score	Score of a newborn recorded at ten minutes from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness	Supplemental-Highly Recommended	Birth Injuries	False	Spinal Cord Injury	Spinal Cord Injury
F1759-C00722	C00722	Family history medical condition relative type	Relationship of the family member or ancestor with the medical condition or health related event to the participant	Exploratory	Family History	False	Spinal Cord Injury	Spinal Cord Injury
F0827-C00722	C00722	Family history medical condition relative type	Relationship of the family member or ancestor with the medical condition or health related event to the participant	Supplemental	International SCI Cardiovascular Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1759-C00721	C00721	Family history medical condition indicator	Indicator of whether a family member or first and second degree blood relatives of the participant has had a history of the particular medical condition or health related event	Exploratory	Family History	False	Spinal Cord Injury	Spinal Cord Injury
F0827-C00721	C00721	Family history medical condition indicator	Indicator of whether a family member or first and second degree blood relatives of the participant has had a history of the particular medical condition or health related event	Supplemental	International SCI Cardiovascular Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1759-C00720	C00720	Family history medical condition type	Type of medical condition or health related event for which the family history is taken	Exploratory	Family History	False	Spinal Cord Injury	Spinal Cord Injury
F0829-C00718	C00718	Tobacco use duration	Duration in years participant/subject has used tobacco products (e.g. cigarettes, cigars, chewing tobacco or pipe)	Supplemental	International SCI Pulmonary Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1727-C00718	C00718	Tobacco use duration	Duration in years participant/subject has used tobacco products (e.g. cigarettes, cigars, chewing tobacco or pipe)	Supplemental	Alcohol and Tobacco Use	False	Spinal Cord Injury	Spinal Cord Injury
F0829-C00709	C00709	Tobacco cigarettes smoked daily average number	Average number of cigarettes the participant/subject smokes daily (On the days you smoked cigarettes during the past 30 days, how many cigarettes did you smoke per day, on average?)	Supplemental	International SCI Pulmonary Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0830-C00707	C00707	Alcohol consume six or more drinks frequency	The rate of occurrence for when the participant/subject consumes six or more drinks containing alcohol on one occasion. It is noted that the meaning of "drinks consumed" differs from one nation and culture to another, so the most common alcoholic beverages likely to be consumed will be defined as well as quantity of each that constitutes a drink (approximately 10 grams of pure ethanol). For example, one bottle of beer (330 ml at 5% ethanol), a glass of wine (140 ml at 12% ethanol), and a shot of spirits (40 ml at 40% ethanol) represent a standard drink of about 13 g of ethanol	Supplemental	International SCI Endocrine and Metabolic Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1727-C00707	C00707	Alcohol consume six or more drinks frequency	The rate of occurrence for when the participant/subject consumes six or more drinks containing alcohol on one occasion. It is noted that the meaning of "drinks consumed" differs from one nation and culture to another, so the most common alcoholic beverages likely to be consumed will be defined as well as quantity of each that constitutes a drink (approximately 10 grams of pure ethanol). For example, one bottle of beer (330 ml at 5% ethanol), a glass of wine (140 ml at 12% ethanol), and a shot of spirits (40 ml at 40% ethanol) represent a standard drink of about 13 g of ethanol	Supplemental	Alcohol and Tobacco Use	False	Spinal Cord Injury	Spinal Cord Injury
F1725-C00322	C00322	Medical history condition text	Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history	Core	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F1807-C00322	C00322	Medical history condition text	Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history	Core	General Core	False	Spinal Cord Injury	Spinal Cord Injury
F0833-C00322	C00322	Medical history condition text	Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history	Core	International SCI Musculoskeletal Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1725-C00319	C00319	Medical history condition ongoing indicator	Indicator of whether a medical condition/disease experienced by the participant is ongoing	Supplemental	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F0827-C00317	C00317	Medical history condition start date and time	Date (and time, if applicable and known) for the start of an event in the participant's medical history	Supplemental	International SCI Cardiovascular Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1725-C00317	C00317	Medical history condition start date and time	Date (and time, if applicable and known) for the start of an event in the participant's medical history	Supplemental	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F0833-C00317	C00317	Medical history condition start date and time	Date (and time, if applicable and known) for the start of an event in the participant's medical history	Supplemental	International SCI Musculoskeletal Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1725-C00316	C00316	Medical history condition end date and time	Date (and time, if applicable and known) for the end of an event in the participant's medical history	Supplemental	Medical History	False	Spinal Cord Injury	Spinal Cord Injury

Displaying 1826 - 1850 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.