CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2069-C21643	C21643	Fall details specify type	Description of what the participant/subject was doing when the fall recorded in Falls Diary occurred when not walking	Supplemental	Falls Diary	False	Spinal Cord Injury	Spinal Cord Injury
F2069-C21642	C21642	Fall details not walking type	Details of the participant's/subject's position if fall recorded in Falls Diary occurred when not walking	Supplemental	Falls Diary	False	Spinal Cord Injury	Spinal Cord Injury
F2069-C21641	C21641	Fall details injury sustained test	Description of the injuries sustained when the fall recorded in the Falls Diary occurred	Supplemental	Falls Diary	False	Spinal Cord Injury	Spinal Cord Injury
F2069-C21640	C21640	Fall details assistive device specify text	The free-text field to specify the other type of assistive device used when the fall recorded in the Falls Diary occurred	Supplemental	Falls Diary	False	Spinal Cord Injury	Spinal Cord Injury
F2069-C21639	C21639	Fall details assistive device type	Type of assistive device(s) the participant/subject was using when the fall recorded in the Falls Diary occurred	Supplemental	Falls Diary	False	Spinal Cord Injury	Spinal Cord Injury
F2069-C21638	C21638	Fall details footwear specify text	The free-text field to specify the type of other footwear worn when the fall recorded in the Falls Diary occurred	Supplemental	Falls Diary	False	Spinal Cord Injury	Spinal Cord Injury
F2069-C21637	C21637	Fall details footwear type	Type of footwear the participant/subject was wearing when the fall recorded in the Falls Diary occurred	Supplemental	Falls Diary	False	Spinal Cord Injury	Spinal Cord Injury
F2069-C21636	C21636	Fall details location text	Location of the fall the participant/subject experienced recorded in the Falls Diary	Supplemental	Falls Diary	False	Spinal Cord Injury	Spinal Cord Injury
F2069-C21635	C21635	Fall record date and time	Date and time for each fall recorded in the falls diary by the participant/subject	Supplemental	Falls Diary	False	Spinal Cord Injury	Spinal Cord Injury
F2069-C21634	C21634	Diary day falls date	Date in the diary when the participant/subject recorded a fall	Supplemental	Falls Diary	False	Spinal Cord Injury	Spinal Cord Injury
F1723-C21633	C21633	Rehabilitation services received population type	They type of population (i.e., adult, pediatric) receiving rehabilitation services	Supplemental	Rehabilitation Therapies	False	Spinal Cord Injury	Spinal Cord Injury
F1724-C21632	C21632	Intensive care unit type	Type of intensive care unit the participant/subject is in	Supplemental	Acute Admission/Discharge	False	Spinal Cord Injury	Spinal Cord Injury
F1791-C21628	C21628	Pediatric Glasgow coma scale date and time	Date (and time, if known) of Pediatric Glasgow Coma Scale assessment	Supplemental	Pre-Hospital Assessment Form	False	Spinal Cord Injury	Spinal Cord Injury
F1791-C21627	C21627	Hospital transport board mattress pad indicator	Indicates whether the hospital transport board was modified with a double matress pad	Supplemental	Pre-Hospital Assessment Form	False	Spinal Cord Injury	Spinal Cord Injury
F1791-C21626	C21626	Hospital transport board cut-out indicator	Indicates whether the hospital transport board was modified with a cut-out	Supplemental	Pre-Hospital Assessment Form	False	Spinal Cord Injury	Spinal Cord Injury
F1791-C21625	C21625	Vehicular protective device position type	Where the participant/subject was positioned in the vehicle at the time of the incident causing injury	Supplemental	Pre-Hospital Assessment Form	False	Spinal Cord Injury	Spinal Cord Injury
F1791-C21624	C21624	Vehicular protective device seat belt type	Type of seat belt used in the vehicle	Supplemental	Pre-Hospital Assessment Form	False	Spinal Cord Injury	Spinal Cord Injury
F1791-C21623	C21623	Vehicular protective device safety restraint type	Type of child safety restraint used in the vehicle	Supplemental	Pre-Hospital Assessment Form	False	Spinal Cord Injury	Spinal Cord Injury
F1791-C21622	C21622	Hypotensive episode pediatric indicator	Indicator of pediatric hypotensive episode. In children, it is defined as systolic blood pressure	Supplemental	Pre-Hospital Assessment Form	False	Spinal Cord Injury	Spinal Cord Injury
F2068-C21621	C21621	Twin sibling vital status	The vital status of twin of the participant/subject	Supplemental-Highly Recommended	Birth Injuries	False	Spinal Cord Injury	Spinal Cord Injury
F2068-C21620	C21620	Gestational age value range	Range of time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject	Supplemental-Highly Recommended	Birth Injuries	False	Spinal Cord Injury	Spinal Cord Injury
F0823-C21618	C21618	Bowel care time stool pass care past three month average indicator	The indicator related to average time duration spent waiting after last stool passes before ending bowel care within the last three months	Supplemental	International SCI Bowel Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0823-C21617	C21617	Stool defecation assistance past three month average indicator	The indicator related to the average time duration in minutes during bowel movement that stool intermittently or continuously (in the case of a single defecation) comes out with or without assistance within the last three months	Supplemental	International SCI Bowel Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0823-C21616	C21616	Bowel care initiation stool out past three month average indicator	The indicator related to average time duration in minutes from initiation of bowel care to first stool coming out within the last three months	Supplemental	International SCI Bowel Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2589-C20385	C20385	Pittsburgh Sleep Quality Index (PSQI) - Day dysfunction due to sleepiness scale	The scale to which day dysfunction due to sleepiness was calculated, as part of the Pittsburgh Sleep quality Index (PSQI)	Exploratory	Pittsburgh Sleep Quality Index (PSQI)	False	Spinal Cord Injury	Spinal Cord Injury

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.