CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 26 - 50 of 1886
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C53037 Fecal incontinence past four week average frequency

Average frequency of incontinence to solid or liquid stools within the last four weeks. Fecal incontinence is defined as involuntary passage of stools

Supplemental International SCI Bowel Function Basic Data Set Version 2.0 Spinal Cord Injury Spinal Cord Injury
C53031 Digital rectal stimulation evacuation anorectum past four week average frequency

The indicator related to digital rectal stimulation or evacuation of the anorectum

Supplemental International SCI Bowel Function Basic Data Set Version 2.0 Spinal Cord Injury Spinal Cord Injury
C53029 Defecation uneasiness headache perspiration past four week indicator

The indicator related to uneasiness, headache or perspiration during defecation

Supplemental International SCI Bowel Function Basic Data Set Version 2.0 Spinal Cord Injury Spinal Cord Injury
C22842 Pain current treatment side effect adverse event text

Free-text field to specify side effects or adverse events the participant is currently receiving

Supplemental International SCI Pain Extended Data Set Spinal Cord Injury Spinal Cord Injury
C22841 Pain current treatment Patient Global Impression Change text

Free-text field to specify the Patient Global Impression of Change (PGIC) of treatments the participant is currently receiving

Supplemental International SCI Pain Extended Data Set Spinal Cord Injury Spinal Cord Injury
C22840 Pain current treatment frequency text

Free-text field to specify frequency of treatments the participant is currently receiving

Supplemental International SCI Pain Extended Data Set Spinal Cord Injury Spinal Cord Injury
C22839 Pain current treatment dose text

Free-text field to specify dose of treatments the participant is currently receiving

Supplemental International SCI Pain Extended Data Set Spinal Cord Injury Spinal Cord Injury
C22838 Pain current treatment text

Free-text field to specify treatments the participant is currently receiving

Supplemental International SCI Pain Extended Data Set Spinal Cord Injury Spinal Cord Injury
C22837 Pain past treatment other text

Free-text field to specify other types of treatment participant received for pain

Supplemental International SCI Pain Extended Data Set Spinal Cord Injury Spinal Cord Injury
C22836 Pain past treatment surgical intervention other text

Free-text field to indicate the type of surgical interventions the participant received for pain

Supplemental International SCI Pain Extended Data Set Spinal Cord Injury Spinal Cord Injury
C22835 Pain past treatment surgical intervention type

The type of past surgical interventions the participant received for pain

Supplemental International SCI Pain Extended Data Set Spinal Cord Injury Spinal Cord Injury
C22834 Pain past treatment procedural intervention other text

Free-text field to indicate the type of procedural interventions the participant received for pain

Supplemental International SCI Pain Extended Data Set Spinal Cord Injury Spinal Cord Injury
C22833 Pain past treatment procedural intervention type

The type of past procedural interentions the participant received for pain

Supplemental International SCI Pain Extended Data Set Spinal Cord Injury Spinal Cord Injury
C22832 Pain past treatment oral topical medication other text

Free-text field to indicate the type of oral and topical medication the participant received for pain

Supplemental International SCI Pain Extended Data Set Spinal Cord Injury Spinal Cord Injury
C22831 Pain past treatment oral topical medication type

The type of past oral and topical medication the participant received for pain

Supplemental International SCI Pain Extended Data Set Spinal Cord Injury Spinal Cord Injury
C22830 Pain past treatment relaxation psychotherapy other text

Free-text field to indicate the type of other past relaxation and psychotherapy treatment the participant received for pain

Supplemental International SCI Pain Extended Data Set Spinal Cord Injury Spinal Cord Injury
C22829 Pain past treatment relaxation psychotherapy type

The type of past relaxation and psychotherapy treatment the participant received for pain

Supplemental International SCI Pain Extended Data Set Spinal Cord Injury Spinal Cord Injury
C22828 Pain past treatment passive stimulaiton therapy other text

Free-text field to indicate the type of other past passive and stimulation therapy treatment the participant received for pain

Supplemental International SCI Pain Extended Data Set Spinal Cord Injury Spinal Cord Injury
C22827 Pain past treatment passive stimulation therapy type

The type of past passive and stimulation therapy treatment the participant received for pain

Supplemental International SCI Pain Extended Data Set Spinal Cord Injury Spinal Cord Injury
C22826 Pain past treatment physiotherapy other text

Free-text field to indicate the type of other pastphysiotherapy treatment the participant received for pain

Supplemental International SCI Pain Extended Data Set Spinal Cord Injury Spinal Cord Injury
C22825 Pain past treatment physiotherapy type

The type of past physiotherapy treatment the participant received for pain

Supplemental International SCI Pain Extended Data Set Spinal Cord Injury Spinal Cord Injury
C22824 Injury below level cold allodynia intensity scale

The scale related to intensity if allodynia for cold below the level of injury

Supplemental International SCI Pain Extended Data Set Spinal Cord Injury Spinal Cord Injury
C22823 Injury below level cold other text

Free-text field to indicate what other type of response the participant experiences from cold below the level of injury

Supplemental International SCI Pain Extended Data Set Spinal Cord Injury Spinal Cord Injury
C22822 Injury below level cold response type

The type of response related to cold below the level of injury

Supplemental International SCI Pain Extended Data Set Spinal Cord Injury Spinal Cord Injury
C22821 Injury level cold allodynia intensity scale

The scale related to intensity if allodynia for cold at the level of injury

Supplemental International SCI Pain Extended Data Set Spinal Cord Injury Spinal Cord Injury
Displaying 26 - 50 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.