CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2945-C59062	C59062	Birth weight known indicator	Indicator of whether the participant/subject knows his/her birth weight	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
F2945-C59063	C59063	Birth weight source	Source of the participant's/subject's birth weight data	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
F2945-C59064	C59064	Breastfed duration range	The range of duration that the participant/subject was breastfed	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
F2945-C59065	C59065	Older full biological sibling count	Count of older full biological siblings the participant/subject has	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
F2945-C59066	C59066	Twin sibling birth sex assigned type	Sex assigned at birth of participant's/subject's twin sibling	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
F2945-C59067	C59067	Twin pea pod look indicator	Indicator of whether the participant/subject and his/her twin look like two peas in a pod	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
F2945-C59068	C59068	Twin difficult tell apart indicator	Indicator of whether the participant/subject and his/her twin are/were difficult for teachers or friends to tell apart	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
F2945-C59069	C59069	Menarche begin age category	Categorization of the age at which menarche began for the participant/subject	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
F2945-C59070	C59070	Shave facial hair regular begin age value	The age at which the participant/subject began to regularly shave facial hair. Regular shaving is defined as once a week or more	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
F2945-C59071	C59071	Shave facial hair regular begin age category	Categorization of the age at which the participant/subject began to regularly shave facial hair. Regular shaving is defined as once a week or more	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
F2945-C59072	C59072	Height in twenties measurement	Measurement of participant's/subject's height when in their twenties	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
F2945-C59073	C59073	Full biological sibling indicator	Indicator of whether the participant/subject has any full biological brothers and/or sisters. Full brothers and/or sisters are defined as those with whom a biological mother and father is shared	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
F2946-C08096	C08096	Influenza vaccine history indicator	Indicator of whether the participant/subject has ever received an influenza vaccination	Supplemental	Infection History	False	Parkinson's Disease	Parkinson's Disease
F2946-C08097	C08097	Influenza vaccine first receive age value	Age participant/subject received his/her first influenza vaccination	Supplemental	Infection History	False	Parkinson's Disease	Parkinson's Disease
F2946-C08098	C08098	Influenza vaccine received frequency type	Type of frequency with which the participant/subject has received the influenza vaccine since initial vaccination	Supplemental	Infection History	False	Parkinson's Disease	Parkinson's Disease
F2946-C08099	C08099	Pneumonia history indicator	Indicator of whether the participant/subject has ever had pneumonia diagnosed by a physician	Supplemental	Infection History	False	Parkinson's Disease	Parkinson's Disease
F2946-C08100	C08100	Pneumonia episode age value	Participant's/subject's age at the time of the pneumonia episode	Supplemental	Infection History	False	Parkinson's Disease	Parkinson's Disease
F2946-C08101	C08101	Pneumonia episode hospitalization indicator	Indicator of whether the participant/subject was hospitalized for the pneumonia episode	Supplemental	Infection History	False	Parkinson's Disease	Parkinson's Disease
F2946-C08114	C08114	Meningitis or encephalitis history indicator	Indicator of whether the participant/subject has ever had meningitis or encephalitis (brain infection) diagnosed by a physician	Supplemental	Infection History	False	Parkinson's Disease	Parkinson's Disease
F2946-C08115	C08115	Meningitis or encephalitis diagnosed type	Type of meningitis/encephalitis that participant/subject was diagnosed with	Supplemental	Infection History	False	Parkinson's Disease	Parkinson's Disease
F2946-C08116	C08116	Meningitis or encephalitis episode age value	Participant's/subject's age at the time of the meningitis or encephalitis episode	Supplemental	Infection History	False	Parkinson's Disease	Parkinson's Disease
F2946-C08117	C08117	Meningitis or encephalitis episode hospitalization indicator	Indicator of whether the participant/subject was hospitalized for the meningitis or encephalitis episode	Supplemental	Infection History	False	Parkinson's Disease	Parkinson's Disease
F2947-C00712	C00712	Subscribed drug or substance illicitly used category	Category of illegal drugs, prescription, or over-the-counter drugs subscribed by the participant/subject, and used for purposes other than those for which they are meant to be used, or in large amounts	Supplemental	Non-prescribed Drug Use Questionnaire	False	Parkinson's Disease	Parkinson's Disease
F2947-C00716	C00716	Drug or substance illicit use duration	Duration, in years, the participant/subject has used unprescribed, controlled psychoactive drugs or substances	Supplemental	Non-prescribed Drug Use Questionnaire	False	Parkinson's Disease	Parkinson's Disease
F2947-C08232	C08232	Drug or substance illicit use ever indicator	Indicator of participant's/subject's use of illegal drugs, prescription or over-the-counter drugs at any point in his/her lifetime for purposes other than those for which they are meant to be used, or in large amounts	Supplemental	Non-prescribed Drug Use Questionnaire	False	Parkinson's Disease	Parkinson's Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.