CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 526 - 550 of 749
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20384 Pittsburgh Sleep Quality Index (PSQI) - Sleep latency scale

The scale to which sleep latency was calculated, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Supplemental Pittsburgh Sleep Quality Index (PSQI) False Parkinson's Disease Parkinson's Disease
C20385 Pittsburgh Sleep Quality Index (PSQI) - Day dysfunction due to sleepiness scale

The scale to which day dysfunction due to sleepiness was calculated, as part of the Pittsburgh Sleep quality Index (PSQI)

 Supplemental Pittsburgh Sleep Quality Index (PSQI) False Parkinson's Disease Parkinson's Disease
C10166 Quantitative sudomotor axon reflex test (QSART) - resting skin temperature anatomic site

Location on body where probes are placed to obtain resting skin temperature from quantitative sudomotor axon reflex test (QSART)

 Supplemental Other Non-Motor Guidance for CDE Use False Parkinson's Disease Parkinson's Disease
C10167 Quantitative sudomotor axon reflex test (QSART) - resting skin temperature measurement

Measurement of resting skin temperature at a "normal" state from quantitative sudomotor axon reflex test (QSART)

 Supplemental Other Non-Motor Guidance for CDE Use False Parkinson's Disease Parkinson's Disease
C10168 Quantitative sudomotor axon reflex test (QSART) - resting skin temperature unit of measure

Unit resting skin temperature is measured in from quantitative sudomotor axon reflex test (QSART)

 Supplemental Other Non-Motor Guidance for CDE Use False Parkinson's Disease Parkinson's Disease
C10169 Quantitative sudomotor axon reflex test (QSART) - resting sweat output value

Amount of sweat that the participant/subject produces at a "normal" state from quantitative sudomotor axon reflex test (QSART)

 Supplemental Other Non-Motor Guidance for CDE Use False Parkinson's Disease Parkinson's Disease
C10170 Quantitative sudomotor axon reflex test (QSART) - result type

Type of overall results of quantitative sudomotor axon reflex test (QSART)

 Supplemental Other Non-Motor Guidance for CDE Use False Parkinson's Disease Parkinson's Disease
C10171 Trial number

The number representing the sequence for any repeated measure test or assessment when it is performed multiple times

 Supplemental Other Non-Motor Guidance for CDE Use False Parkinson's Disease Parkinson's Disease
C10172 Forced vital capacity result value

Value of the Forced Vital Capacity (FVC), in liters, as the maximum volume of air that can be exhaled as rapidly, forcefully, and completely as possible from the point of maximal inhalation

 Supplemental Other Non-Motor Guidance for CDE Use False Parkinson's Disease Parkinson's Disease
C10173 Forced expiratory volume second result value

Value of the amount of air, in liters, that can be blown in the first second in the Forced Expiratory Volume maneuver (FEV1)

 Supplemental Other Non-Motor Guidance for CDE Use False Parkinson's Disease Parkinson's Disease
C10174 FEV1/FVC percentage value

Forced Expired Volume in One Second (FEV1) volume divided by Forced Vital Capacity (FVC), expressed as percent

 Supplemental Other Non-Motor Guidance for CDE Use False Parkinson's Disease Parkinson's Disease
C10175 FEF25-75 percentage value

Forced expiratory flow rate between 25 to 75% of FVC (Used to be known as maximal mid expiratory flow rate)

 Supplemental Other Non-Motor Guidance for CDE Use False Parkinson's Disease Parkinson's Disease
C10176 Peak Expiratory Flow Rate Percentage value

Peak expiratory flow rate (PEFR)

 Supplemental Other Non-Motor Guidance for CDE Use False Parkinson's Disease Parkinson's Disease
C10177 Slow vital capacity percent of predicted normal value

Value representing the percentage of the predicted normal value of Slow Vital Capacity (sVC) to grade the severity of the abnormality, where sVC is the total amount of air that can be blown out leisurely after a maximal deep breath

 Supplemental Other Non-Motor Guidance for CDE Use False Parkinson's Disease Parkinson's Disease
C10178 Diffusion Capacity Uncorrected measurement

Diffusion Capacity Uncorrected (DLCO UNC) = Participant/subject is asked to take a deep breath of air containing known concentration of carbon monoxide and to hold it for 10 seconds. The terminal (alveolar air) portion of expiration is collected to measure

 Supplemental Other Non-Motor Guidance for CDE Use False Parkinson's Disease Parkinson's Disease
C10179 Diffusion Capacity Corrected measurement

Diffusion Capacity Corrected (DLCO CORR) = A correction for predicted value is made using patients Hemoglobin

 Supplemental Other Non-Motor Guidance for CDE Use False Parkinson's Disease Parkinson's Disease
C10180 Thermoregulatory sweat test sweat chemical type

Type of chemical used for Thermoregulatory Sweat Test (TST) that shows a significant color change when mingled with sweat

 Supplemental Other Non-Motor Guidance for CDE Use False Parkinson's Disease Parkinson's Disease
C10182 Thermoregulatory sweat test baseline room temperature value

Baseline (starting) temperature of the room the participant/subject is placed in for Thermoregulatory Sweat Test (TST)

 Supplemental Other Non-Motor Guidance for CDE Use False Parkinson's Disease Parkinson's Disease
C10183 Thermoregulatory sweat test 30 minutes elapsed room temperature value

Temperature of the room which induced the participant/subject to sweat for 30 minutes during the Thermoregulatory Sweat Test (TST)

 Supplemental Other Non-Motor Guidance for CDE Use False Parkinson's Disease Parkinson's Disease
C10184 Thermoregulatory sweat test room temperature unit of measurement

Unit temperature is measured in for the Thermoregulatory Sweat Test (TST)

 Supplemental Other Non-Motor Guidance for CDE Use False Parkinson's Disease Parkinson's Disease
C10185 Thermoregulatory sweat test intensity color change value

Intensity of the color change of the chemical on participant/subject's body during the Thermoregulatory Sweat Test (TST)

 Supplemental Other Non-Motor Guidance for CDE Use False Parkinson's Disease Parkinson's Disease
C10186 Videofluoroscopic swallowing study swallow effort number

Each swallow effort of the Videofluoroscopic Swallowing Study (VFSS) is numbered; first swallow effort is numbered 1, second swallow effort is numbered 2, etc

 Supplemental Other Non-Motor Guidance for CDE Use False Parkinson's Disease Parkinson's Disease
C10187 Videofluoroscopic swallowing study liquid type

Type of liquid used in the Videofluoroscopic Swallowing Study (VFSS)

 Supplemental Other Non-Motor Guidance for CDE Use False Parkinson's Disease Parkinson's Disease
C10188 Videofluoroscopic swallowing study penetration aspiration scale

Penetration aspiration scale of the Videofluoroscopic Swallowing Study (VFSS)

 Supplemental Other Non-Motor Guidance for CDE Use False Parkinson's Disease Parkinson's Disease
C10189 Videofluoroscopic swallowing study dysphagia severity rating scale

Dysphagia severity rating scale of the Videofluoroscopic Swallowing Study (VFSS)

 Supplemental Other Non-Motor Guidance for CDE Use False Parkinson's Disease Parkinson's Disease
Displaying 526 - 550 of 749

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.