CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2952-C18734	C18734	Lead reposition reason other text	The free-text field related to 'Lead reposition reason', specifying other text. Reason the lead was repositioned in the participant/subject	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2952-C18755	C18755	Stereotactic surgery frame type other text	The free-text field related to 'Stereotactic surgery frame type', specifying other text. Scaffold or support used for stereotactic surgery	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2952-C18757	C18757	Surgery lead secure method type other text	The free-text field related to 'Surgery lead secure method type', specifying other text. Type of method or device used to protect and secure the lead (part of the electrode that is introduced into the brain), this part must be safely secured and held still	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2952-C18758	C18758	Surgery post-operative target verification method source other text	The free-text field related to 'Surgery post-operative target verification method source', specifying other text. Post-operative source method used for verifying the brain nucleus (target) was reached	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2952-C18760	C18760	Surgery skull opening type other text	The free-text field related to 'Surgery skull opening type', specifying other text. Type of drilling or perforation of the skull in order to get access to the brain	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2952-C18761	C18761	Surgical complication intra-operative type other text	The free-text field related to 'Surgical complications intra-operative type', specifying other text. Type of intra-operative surgical complications experienced by the participant/subject	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2952-C18763	C18763	Surgical complication post-operative type other text	The free-text field related to 'Surgical complications post-operative type', specifying other text. Type of post-operative surgical complications experienced by the participant/subject	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2952-C54898	C54898	Surgery procedure minute duration	Duration in minutes of surgery or procedure	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2952-C59085	C59085	Parkinsons disease motor sign year duration	Duration in years of motor signs related to Parkinson's disease at the time of surgery	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2952-C59086	C59086	Motor fluctuation year duration	Duration in years of motor fluctuations at the time of surgery	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2952-C59087	C59087	Dyskinesia troublesome year duration	Duration in years of troublesome dyskinesias at the time of surgery	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2952-C59088	C59088	Deep brain stimulation indication type	Type of indications for deep brain stimulation (DBS)	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2952-C59089	C59089	Deep brain stimulation indication type medication side effect other text	The free text field related to 'Deep brain stimulation indication type', specifying other medication side effects	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2952-C59090	C59090	Deep brain stimulation indication type other text	The free-text field related to 'Deep brain stimulation indication type', specifying other text. Type of indications for deep brain stimulation (DBS)	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2952-C59092	C59092	Unified Parkinsons Disease Rating Scale version type	Type of version of the Unified Parkinson's Disease Rating Scale (UPDRS) administered	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2952-C59094	C59094	Unified Parkinsons Disease Rating Scale part three off levodopa score	The score related to part three of the Unified Parkinson's Disease Rating Scale (UPDRS) when the participant/subject is off of levodopa	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2952-C59095	C59095	L-Dopa pre-operative challenge off levodopa duration	Duration in hours the participant/subject was off of levodopa as part of the pre-operative L-Dopa challenge	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2952-C59096	C59096	L-Dopa pre-operative challenge off dopamine agonist duration	Duration in hours the participant/subject was off of dopamine agonists as part of the pre-operative L-Dopa challenge	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2952-C59097	C59097	Dopamine agonist specify text	The free-text field to specify the dopamine agonist taken by the participant/subject	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2952-C59099	C59099	Unified Parkinsons Disease Rating Scale part three on medication score	The score related to part three of the Unified Parkinson's Disease Rating Scale (UPDRS) when the participant/subject is on medications	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2952-C59100	C59100	Functional neurosurgery target anatomic site multiple ipsilateral lead specify text	The free-text field to specify the anatomic site targets when multiple ipsilateral leads are used in functional neurosurgery procedure	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2952-C59101	C59101	Functional neurosurgery target planning software type text	The free-text field to describe the type of functional neurosurgery target planning software used to determine the coordinates of the target (brain nucleus)	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2952-C59103	C59103	Functional neurosurgery target planning adjunct type	Type of functional neurosurgery planning adjuncts used to determine the coordinates of the target (brain nucleus)	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2952-C59105	C59105	Anesthesia type	Type of anesthesia given to the participant/subject	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2952-C59106	C59106	Surgery head fixation status	Status of the participant's/subject's head fixation to the operating room table during surgery	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.