CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 201 - 225 of 749
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19600 Genetic test diagnostic laboratory name

Name of diagnostic laboratory for genetic testing

 Supplemental Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C09586 Brief Pain Inventory (BPI) - pain normal work interference scale

Scale assessing how much the pain has interfered with normal work, as part of the Brief Pain Inventory (BPI) form

 Supplemental Brief Pain Inventory (BPI) Short Form True Parkinson's Disease Parkinson's Disease
C12798 Gene missense nonsense variant point mutation location type

Type of location of the missense/nonsense variant or point mutation

 Supplemental Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C10416 Sialorrhea Clinical Scale for PD (SCS-PD) - day saliva score

During the day, when do you feel there is more saliva in your mouth? As part of SCS-PD questionnaire

 Supplemental Sialorrhea Clinical Scale for Parkinson's Disease (SCS-PD) False Parkinson's Disease Parkinson's Disease
C20357 Pittsburgh Sleep Quality Index (PSQI) - Sleep efficiency scale

The sleep efficiency scale calculated, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Supplemental Pittsburgh Sleep Quality Index (PSQI) False Parkinson's Disease Parkinson's Disease
C12807 Gene second disease allele indicator

Indicator of whether a second disease allele was identified

 Supplemental Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C20422 Beck Depression Inventory II (BDI-II) - Agitation scale

Scale identifying level of agitation, as part of the Beck Depression Inventory II (BDI-II)

 Supplemental Beck Depression Inventory II (BDI-II) True Parkinson's Disease Parkinson's Disease
C09344 Hamilton Anxiety Rating Scale (HAM-A) - anxious mood score

The score of the participant's/subject's anxious mood, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

 Supplemental Hamilton Anxiety Rating Scale (HAM-A) False Parkinson's Disease Parkinson's Disease
C09591 Brief Psychiatric Rating Scale (BPRS) - anxiety score

The score of the participant's/subject's anxiety, as part of the Brief Psychiatric Rating Scale (BPRS) form.

 Supplemental Brief Psychiatric Rating Scale (BPRS) False Parkinson's Disease Parkinson's Disease
C20365 Pittsburgh Sleep Quality Index (PSQI) - Cough snore loudly past month scale

The scale to which the subject coughed or snored loudly during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Supplemental Pittsburgh Sleep Quality Index (PSQI) False Parkinson's Disease Parkinson's Disease
C15557 Gene detection method type

The method used to detect the gene mutation or variant

 Supplemental Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C20430 Beck Depression Inventory II (BDI-II) - Crying scale

Scale identifying level of crying, as part of the Beck Depression Inventory II (BDI-II)

 Supplemental Beck Depression Inventory II (BDI-II) True Parkinson's Disease Parkinson's Disease
C09352 Hamilton Anxiety Rating Scale (HAM-A) - cardiovascular symptom score

The score of the participant's/subject's cardiovascular symptoms, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

 Supplemental Hamilton Anxiety Rating Scale (HAM-A) False Parkinson's Disease Parkinson's Disease
C09599 Brief Psychiatric Rating Scale (BPRS) - hostility score

The score of the participant's/subject's hostility, as part of the Brief Psychiatric Rating Scale (BPRS) form.

 Supplemental Brief Psychiatric Rating Scale (BPRS) False Parkinson's Disease Parkinson's Disease
C20373 Pittsburgh Sleep Quality Index (PSQI) - Problem maintain enthusiasm past month category

The scale to which the subject had problems keeping up enough enthusiasm to get things done past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Supplemental Pittsburgh Sleep Quality Index (PSQI) False Parkinson's Disease Parkinson's Disease
C18682 Functional neurosurgery target planning method type other text

The free-text field related to 'Functional neurosurgery target planning method type', specifying other text. The type of method used to determine the coordinates of the target (brain nucleus)

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C17689 Non-prescribed controlled psychoactive drug substance inhalant text

The text specifying the drugs within the 'Inhalants: glue, toluene, gasoline, aerosols, paint thinner, nitrous oxide, amyl nitrite,' category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject

 Supplemental Non-prescribed Drug Use Questionnaire False Parkinson's Disease Parkinson's Disease
C08110 Preschool end date

Date participant/subject ended preschool

 Supplemental History of Early Exposure False Parkinson's Disease Parkinson's Disease
C59585 Dyskinesia troublesome month duration

Duration in months of troublesome dyskinesias at the time of surgery

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C59141 Genetic study data sequencing category type

Type of sequencing category data expected for the genetics study

 Supplemental Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C59122 Brain lead intercontact space interval type

Type of intercontact spacing interval for the implanted brain leads (between ends of contacts, not centers)

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C54898 Surgery procedure minute duration

Duration in minutes of surgery or procedure

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C59058 Imaging amyloid centiloid anatomic site other text

The free-text field related to 'Imaging amyloid centiloid anatomic site' specifying other text.

 Supplemental PET-SPECT Localization False Parkinson's Disease Parkinson's Disease
C59064 Breastfed duration range

The range of duration that the participant/subject was breastfed

 Supplemental History of Early Exposure False Parkinson's Disease Parkinson's Disease
C02008 Medication prior or concomitant end date and time

The date (and time, if applicable and known) the administration of the prior/concomitant medication ended

 Supplemental Non-Parkinson's Disease Medication Log False Parkinson's Disease Parkinson's Disease
Displaying 201 - 225 of 749

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.