CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 176 - 200 of 759
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C59060 Diagnosis primary clinical parkinsonism type other text

The free-text field related to 'Diagnosis primary clinical parkinsonism type', specifying other text. Type of primary clinical parkinsonism diagnosis

Supplemental-Highly Recommended Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C08009 Diagnostic feature criterion presence status

Status of diagnostic feature or criterion observed during clinical assessment of the participant/subject

Core Medical History of Parkinson's Disease Parkinson's Disease Parkinson's Disease
C08008 Diagnostic feature criterion type

Type of diagnostic feature or criterion assessed in the participant/subject.

Core Medical History of Parkinson's Disease Parkinson's Disease Parkinson's Disease
C10179 Diffusion Capacity Corrected measurement

Diffusion Capacity Corrected (DLCO CORR) = A correction for predicted value is made using patients Hemoglobin

Supplemental Other Non-Motor Guidance for CDE Use Parkinson's Disease Parkinson's Disease
C10178 Diffusion Capacity Uncorrected measurement

Diffusion Capacity Uncorrected (DLCO UNC) = Participant/subject is asked to take a deep breath of air containing known concentration of carbon monoxide and to hold it for 10 seconds. The terminal (alveolar air) portion of expiration is collected to measure

Supplemental Other Non-Motor Guidance for CDE Use Parkinson's Disease Parkinson's Disease
C59079 DNA known variant description text

The free-text field describing the presence or absence of known variant(s) in subject's/participant's DNA

Supplemental-Highly Recommended Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C59078 DNA known variant status

Status of known variant(s) in subject's/participant's DNA

Supplemental-Highly Recommended Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C59097 Dopamine agonist specify text

The free-text field to specify the dopamine agonist taken by the participant/subject

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C08233 Drug or substance first illicit use date and time

Date (and time if applicable and known) the participant/subject first used the category of illegal drugs, prescription or over-the-counter drugs

Supplemental Non-prescribed Drug Use Questionnaire Parkinson's Disease Parkinson's Disease
C00716 Drug or substance illicit use duration

Duration, in years, the participant/subject has used unprescribed, controlled psychoactive drugs or substances

Supplemental Non-prescribed Drug Use Questionnaire Parkinson's Disease Parkinson's Disease
C08232 Drug or substance illicit use ever indicator

Indicator of participant's/subject's use of illegal drugs, prescription or over-the-counter drugs at any point in his/her lifetime for purposes other than those for which they are meant to be used, or in large amounts

Supplemental Non-prescribed Drug Use Questionnaire Parkinson's Disease Parkinson's Disease
C08235 Drug or substance illicit use frequency

The subject's/participant's average or typical use frequency during the year of greatest use of an unprescribed, controlled psychoactive drugs or substances used by the participant/subject

Supplemental Non-prescribed Drug Use Questionnaire Parkinson's Disease Parkinson's Disease
C08234 Drug or substance last illicit use date and time

Date (and time if applicable and known) of the participant's/subject's last use of an unprescribed, controlled psychoactive drugs or substances used by the participant/subject

Supplemental Non-prescribed Drug Use Questionnaire Parkinson's Disease Parkinson's Disease
C59585 Dyskinesia troublesome month duration

Duration in months of troublesome dyskinesias at the time of surgery

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C59087 Dyskinesia troublesome year duration

Duration in years of troublesome dyskinesias at the time of surgery

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C08013 Dystonia symptom text

The free-text field to specify symptoms experienced by the participant/subject related to dystonia

Supplemental Medical History of Parkinson's Disease Parkinson's Disease Parkinson's Disease
C00012 Education level USA type

Highest grade or level of school participant/subject has completed or the highest degree received

Core Demographics Parkinson's Disease Parkinson's Disease
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Supplemental-Highly Recommended General Core Parkinson's Disease Parkinson's Disease
C08039 Electrode brain count

Count of electrodes introduced in the brain

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C54700 Epworth Sleepiness Scale (ESS) - Doze off likelihood car passenger code

The code denoting the subect/participant's self-reported likelihood of dozing off while a passenger in a car, as part of the Epworth Sleepiness Scale (ESS)

Supplemental-Highly Recommended Epworth Sleepiness Scale (ESS) - Adult Version Parkinson's Disease Parkinson's Disease
C54701 Epworth Sleepiness Scale (ESS) - Doze off likelihood recline rest afternoon code

The code denoting the subect/participant's self-reported likelihood of dozing off while lying down to rest in the afternoon, as part of the Epworth Sleepiness Scale (ESS)

Supplemental-Highly Recommended Epworth Sleepiness Scale (ESS) - Adult Version Parkinson's Disease Parkinson's Disease
C54703 Epworth Sleepiness Scale (ESS) - Doze off likelihood sit after lunch code

The code denoting the subect/participant's self-reported likelihood of dozing off while sitting quietly after a lunch that did not include alcohol, as part of the Epworth Sleepiness Scale (ESS)

Supplemental-Highly Recommended Epworth Sleepiness Scale (ESS) - Adult Version Parkinson's Disease Parkinson's Disease
C54704 Epworth Sleepiness Scale (ESS) - Doze off likelihood sit car stop traffic code

The code denoting the subect/participant's self-reported likelihood of dozing off while sitting in a car stopped in traffic, as part of the Epworth Sleepiness Scale (ESS)

Supplemental-Highly Recommended Epworth Sleepiness Scale (ESS) - Adult Version Parkinson's Disease Parkinson's Disease
C54699 Epworth Sleepiness Scale (ESS) - Doze off likelihood sit inactive public place code

The code denoting the subect/participant's self-reported likelihood of dozing off while sitting inactive in a public place (for example during a meeting or movie), as part of the Epworth Sleepiness Scale (ESS)

Supplemental-Highly Recommended Epworth Sleepiness Scale (ESS) - Adult Version Parkinson's Disease Parkinson's Disease
C54697 Epworth Sleepiness Scale (ESS) - Doze off likelihood sit read code

The code denoting the subect/participant's self-reported likelihood of dozing off while sitting and reading, as part of the Epworth Sleepiness Scale (ESS)

Supplemental-Highly Recommended Epworth Sleepiness Scale (ESS) - Adult Version Parkinson's Disease Parkinson's Disease
Displaying 176 - 200 of 759

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.