CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 76 - 100 of 749
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C59068 Twin difficult tell apart indicator

Indicator of whether the participant/subject and his/her twin are/were difficult for teachers or friends to tell apart

Supplemental History of Early Exposure Parkinson's Disease Parkinson's Disease
C59040 Medication prior use report duration

Duration in days prior to the study that participant/subject should report taking any medications, specified by the study protocol

Supplemental Non-Parkinson's Disease Medication Log Parkinson's Disease Parkinson's Disease
C20363 Pittsburgh Sleep Quality Index (PSQI) - Awaken night early morning past month scale

The scale to which the subject woke up in the middle of the night or early morning during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Parkinson's Disease Parkinson's Disease
C15545 Gene nucleotide change name

In cases of an genetic variant or mutation, specify the nucleotide name

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C08033 Medication anti-Parkinsonian during procedure indicator

Indicator of whether the participant/subject was on anti-Parkinsonian medication(s) during the surgical procedure

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C20428 Beck Depression Inventory II (BDI-II) - Self-criticalness scale

Scale identifying level of self-criticalness, as part of the Beck Depression Inventory II (BDI-II)

Supplemental Beck Depression Inventory II (BDI-II) Parkinson's Disease Parkinson's Disease
C08098 Influenza vaccine received frequency type

Type of frequency with which the participant/subject has received the influenza vaccine since initial vaccination

Supplemental Infection History Parkinson's Disease Parkinson's Disease
C59153 Lead extender remove count

Count of lead extenders removed

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C59084 Genetic study type

Type of genetics study conducted

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C59108 Stereotactic surgery robotic guidance lead insert indicator

Indicator of whether robotic guidance was used during stereotactic surgery for lead insertion

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C08013 Dystonia symptom text

The free-text field to specify symptoms experienced by the participant/subject related to dystonia

Supplemental Medical History of Parkinson's Disease Parkinson's Disease Parkinson's Disease
C59583 Parkinsons disease motor sign month duration

Duration in months of motor signs related to Parkinson's disease at the time of surgery

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C59116 Genetic study data array data category type

Type of array data category data expected for the genetics study

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C59120 Brain lead directional type other text

The free-text field related to 'Brain lead type', specifying the other type of directional lead inserted

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C09349 Hamilton Anxiety Rating Scale (HAM-A) - somatic muscular score

The score of the participant's/subject's somatic (muscular) levels, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

Supplemental Hamilton Anxiety Rating Scale (HAM-A) Parkinson's Disease Parkinson's Disease
C02002 Medication prior or concomitant use indicator

Indicator of whether the participant/subject reported taking any medications during the time period relevant to the study protocol

Supplemental Non-Parkinson's Disease Medication Log Parkinson's Disease Parkinson's Disease
C59166 Genotype platform URL text

The free-text field specifying the genotype platform URL (uniform resource locator)

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C59128 Imaging processing software name

Name of the software used for imaging processing

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C09357 Hamilton Anxiety Rating Scale (HAM-A) - behavior interview score

The score of the participant's/subject's behavior at interview, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

Supplemental Hamilton Anxiety Rating Scale (HAM-A) Parkinson's Disease Parkinson's Disease
C02025 Medication prior or concomitant RXNorm code

Code for name of the prior/concomitant agent or drug administered

Supplemental Non-Parkinson's Disease Medication Log Parkinson's Disease Parkinson's Disease
C59136 Stimulation brain parameter pulse width value

Value of the width of electric pulses (stimulation) on brain hemisphere

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C10175 FEF25-75 percentage value

Forced expiratory flow rate between 25 to 75% of FVC (Used to be known as maximal mid expiratory flow rate)

Supplemental Other Non-Motor Guidance for CDE Use Parkinson's Disease Parkinson's Disease
C07433 Patient Health Questionnaire (PHQ) - Tired little energy score

Score of how much the subject has been feeling tired in the past two weeks, as part of the Patient Health Questionnaire (PHQ)

Supplemental Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Parkinson's Disease Parkinson's Disease
C59145 Brain lead post implant interval unit of measure

Unit of measure for the interval post implantation of brain leads at which the stimulation and parameters and clinical motor outcomes were documented

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
Displaying 76 - 100 of 749

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.