CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 76 - 100 of 759
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C59062 Birth weight known indicator

Indicator of whether the participant/subject knows his/her birth weight

Supplemental History of Early Exposure Parkinson's Disease Parkinson's Disease
C59063 Birth weight source

Source of the participant's/subject's birth weight data

Supplemental History of Early Exposure Parkinson's Disease Parkinson's Disease
C59064 Breastfed duration range

The range of duration that the participant/subject was breastfed

Supplemental History of Early Exposure Parkinson's Disease Parkinson's Disease
C59065 Older full biological sibling count

Count of older full biological siblings the participant/subject has

Supplemental History of Early Exposure Parkinson's Disease Parkinson's Disease
C59066 Twin sibling birth sex assigned type

Sex assigned at birth of participant's/subject's twin sibling

Supplemental History of Early Exposure Parkinson's Disease Parkinson's Disease
C59067 Twin pea pod look indicator

Indicator of whether the participant/subject and his/her twin look like two peas in a pod

Supplemental History of Early Exposure Parkinson's Disease Parkinson's Disease
C59068 Twin difficult tell apart indicator

Indicator of whether the participant/subject and his/her twin are/were difficult for teachers or friends to tell apart

Supplemental History of Early Exposure Parkinson's Disease Parkinson's Disease
C59069 Menarche begin age category

Categorization of the age at which menarche began for the participant/subject

Supplemental History of Early Exposure Parkinson's Disease Parkinson's Disease
C59070 Shave facial hair regular begin age value

The age at which the participant/subject began to regularly shave facial hair. Regular shaving is defined as once a week or more

Supplemental History of Early Exposure Parkinson's Disease Parkinson's Disease
C59071 Shave facial hair regular begin age category

Categorization of the age at which the participant/subject began to regularly shave facial hair. Regular shaving is defined as once a week or more

Supplemental History of Early Exposure Parkinson's Disease Parkinson's Disease
C59072 Height in twenties measurement

Measurement of participant's/subject's height when in their twenties

Supplemental History of Early Exposure Parkinson's Disease Parkinson's Disease
C59073 Full biological sibling indicator

Indicator of whether the participant/subject has any full biological brothers and/or sisters. Full brothers and/or sisters are defined as those with whom a biological mother and father is shared

Supplemental History of Early Exposure Parkinson's Disease Parkinson's Disease
C08096 Influenza vaccine history indicator

Indicator of whether the participant/subject has ever received an influenza vaccination

Supplemental Infection History Parkinson's Disease Parkinson's Disease
C08097 Influenza vaccine first receive age value

Age participant/subject received his/her first influenza vaccination

Supplemental Infection History Parkinson's Disease Parkinson's Disease
C08098 Influenza vaccine received frequency type

Type of frequency with which the participant/subject has received the influenza vaccine since initial vaccination

Supplemental Infection History Parkinson's Disease Parkinson's Disease
C08099 Pneumonia history indicator

Indicator of whether the participant/subject has ever had pneumonia diagnosed by a physician

Supplemental Infection History Parkinson's Disease Parkinson's Disease
C08100 Pneumonia episode age value

Participant's/subject's age at the time of the pneumonia episode

Supplemental Infection History Parkinson's Disease Parkinson's Disease
C08101 Pneumonia episode hospitalization indicator

Indicator of whether the participant/subject was hospitalized for the pneumonia episode

Supplemental Infection History Parkinson's Disease Parkinson's Disease
C08114 Meningitis or encephalitis history indicator

Indicator of whether the participant/subject has ever had meningitis or encephalitis (brain infection) diagnosed by a physician

Supplemental Infection History Parkinson's Disease Parkinson's Disease
C08115 Meningitis or encephalitis diagnosed type

Type of meningitis/encephalitis that participant/subject was diagnosed with

Supplemental Infection History Parkinson's Disease Parkinson's Disease
C08116 Meningitis or encephalitis episode age value

Participant's/subject's age at the time of the meningitis or encephalitis episode

Supplemental Infection History Parkinson's Disease Parkinson's Disease
C08117 Meningitis or encephalitis episode hospitalization indicator

Indicator of whether the participant/subject was hospitalized for the meningitis or encephalitis episode

Supplemental Infection History Parkinson's Disease Parkinson's Disease
C00712 Subscribed drug or substance illicitly used category

Category of illegal drugs, prescription, or over-the-counter drugs subscribed by the participant/subject, and used for purposes other than those for which they are meant to be used, or in large amounts

Supplemental Non-prescribed Drug Use Questionnaire Parkinson's Disease Parkinson's Disease
C00716 Drug or substance illicit use duration

Duration, in years, the participant/subject has used unprescribed, controlled psychoactive drugs or substances

Supplemental Non-prescribed Drug Use Questionnaire Parkinson's Disease Parkinson's Disease
C08232 Drug or substance illicit use ever indicator

Indicator of participant's/subject's use of illegal drugs, prescription or over-the-counter drugs at any point in his/her lifetime for purposes other than those for which they are meant to be used, or in large amounts

Supplemental Non-prescribed Drug Use Questionnaire Parkinson's Disease Parkinson's Disease
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.