CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
2446 results.
Operations
Selected 21 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C08524 36-item Short Form Health Survey (SF-36) - Times nervous score

Score of times being a very nervous person during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Supplemental-Highly Recommended Short Form 36-Item Health Survey (SF-36) True Parkinson's Disease Parkinson's Disease
C02022 Medication prior or concomitant dose unit of measure

Dosage unit of measure of the prior or concomitant medication administered

 Supplemental-Highly Recommended Parkinson's Disease Medication Log False Parkinson's Disease Parkinson's Disease
C18710 Imaging radioligand dose other text

The free-text field related to 'Imaging radioligand dose unit of measure' specifying other text. Unit of measure for the dose of injected radioligand for the imaging scan

 Supplemental-Highly Recommended PET-SPECT Localization False Parkinson's Disease Parkinson's Disease
C17253 Questionnaire for Impulsive-Compulsive Disorders in Parkinson's Disease (QUIP) - psychological medication increase indicator

Indicator of whether the participant has increased the intake of Parkinson's medication, without medical advice, for psychological reasons, such as improved mood or motivation, as part of the Questionnaire for Impulsive-Compulsive Disorders in Parkinson's Disease (QUIP)

 Supplemental-Highly Recommended Questionnaire for Impulsive-Compulsive Disorders in Parkinson's Disease (QUIP) (Long Form) True Parkinson's Disease Parkinson's Disease
C59038 Medication Parkinsons disease last dose date time

Time (and date, if applicable and known) of most recent Parkinson's disease medication dose

 Supplemental-Highly Recommended MRI and Spectroscopy False Parkinson's Disease Parkinson's Disease
C59082 Brain family member available indicator

Indicator of whether a brain of the participant's/subject's family member is available in a repository

 Supplemental-Highly Recommended Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C08532 36-item Short Form Health Survey (SF-36) - Times interfered social physical or emotional score

Score of times physical health or emotional problems interfered with social activities (like visiting with friends, relatives, etc) during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Supplemental-Highly Recommended Short Form 36-Item Health Survey (SF-36) True Parkinson's Disease Parkinson's Disease
C16198 Biological sample in repository consent form signed indicator

Indicates whether the participant/subject provided signed informed consent for the biological sample collection and storage in a repository

 Supplemental-Highly Recommended Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C08639 Risk Factor Questionnaire (RFQ) - longest occupation over 65 year fourth duty text

Text describing the participant's/subject's fourth of four major tasks or duties at the longest held occupation from the age of 66+ years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation

 Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status True Parkinson's Disease Parkinson's Disease
C10500 Symptom onset age value

Age when symptoms first experienced

 Supplemental-Highly Recommended Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C08599 Risk Factor Questionnaire (RFQ) - military service prisoner of war state text

The text describing the state the participant/subject was a prisoner of war as part of the Risk Factor Questionnaire (RFQ) - Occupation

 Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status True Parkinson's Disease Parkinson's Disease
C18723 Imaging volume of interest placement method type other text

The free-text field related to 'Imaging volume of interest placement method type' specifying other text. Type of method used for volume of interest (VOI) placement for the imaging data analysis

 Supplemental-Highly Recommended PET-SPECT Localization False Parkinson's Disease Parkinson's Disease
C08607 Risk Factor Questionnaire (RFQ) - current job fourth duty text

Text describing the fourth of four major duties or tasks at the participant's/subject's current job as part of the Risk Factor Questionnaire (RFQ) - Occupation

 Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status True Parkinson's Disease Parkinson's Disease
C59045 Imaging pre-scan procedure type carbidopa specify text

The free-text field related to 'Imaging pre-scan procedure type', specifying Carbidopa details. Type(s) of pre-scan procedures administered to the participant/subject

 Supplemental-Highly Recommended PET-SPECT Localization False Parkinson's Disease Parkinson's Disease
C17290 Questionnaire for Impulsive Disorders in Parkinson's Disease (QUIP-Current-Short) - medication use difficulty indicator

Indicates if there is a difficulty controlling medication, as part of the Questionnaire for Impulsive Disorders in Parkinson's Disease (QUIP-Current-Short)

 Supplemental-Highly Recommended Questionnaire for Impulsive-Compulsive Disorders in Parkinson's Disease (QUIP) (Short Form) True Parkinson's Disease Parkinson's Disease
C08615 Risk Factor Questionnaire (RFQ) - longest occupation 26 35 year text

Text describing the participant's/subject's longest held occupation from the age of 26-35 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation

 Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status True Parkinson's Disease Parkinson's Disease
C56033 Genetic test result source type

The source of the subject's genetic test results

 Supplemental-Highly Recommended Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C08623 Risk Factor Questionnaire (RFQ) - longest occupation 36 45 year third duty text

Text describing the participant's/subject's third of four major tasks or duties at the longest held occupation from the age of 36-45 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation

 Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status True Parkinson's Disease Parkinson's Disease
C59076 Response anti parkinsonism therapy status

Status of the participant's/subject's response to anti-parkinsonism therapy

 Supplemental-Highly Recommended Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C08631 Risk Factor Questionnaire (RFQ) - longest occupation 56 65 year first duty text

Text describing the participant's/subject's first of four major tasks or duties at the longest held occupation from the age of 56-65 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation

 Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status True Parkinson's Disease Parkinson's Disease
C08591 Risk Factor Questionnaire (RFQ) - military service state station longest text

The text describing the state the participant/subject was stationed in for the longest duration as part of the Risk Factor Questionnaire (RFQ) - Occupation

 Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status True Parkinson's Disease Parkinson's Disease
2446 results.

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.