CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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CRF Name

Displaying 2351 - 2375 of 2446

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C10413	Scale for Outcomes of Parkinsons disease (SCOPA) - sleep asleep talk past month frequency	Pre-specified frequencies for falling asleep while talking to someone in the past month	Supplemental-Highly Recommended	Scale for Outcomes in Parkinson's Disease-Sleep (SCOPA-SLEEP)	True	Parkinson's Disease	Parkinson's Disease
C17245	Questionnaire for Impulsive-Compulsive Disorders in Parkinson's Disease (QUIP) - difficult control indicator	Indicator of whether the participant has difficulty controlling his or her impulsive behaviors toward gambling, sex, buying, or eating, as part of the Questionnaire for Impulsive-Compulsive Disorders in Parkinson's Disease (QUIP)	Supplemental-Highly Recommended	Questionnaire for Impulsive-Compulsive Disorders in Parkinson's Disease (QUIP) (Long Form)	True	Parkinson's Disease	Parkinson's Disease
C18037	Imaging radioligand specific activity value indicator	Whether the specific activity value is known	Supplemental-Highly Recommended	PET-SPECT Localization	False	Parkinson's Disease	Parkinson's Disease
C59178	Blood sample repository indicator	Indicator whether the participant/subject provided a blood sample to a repository	Supplemental-Highly Recommended	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
C09310	Apathy Scale (AS) - Energy scale	The scale related to the subject's energy levels, as part of the Apathy Scale (AS) form	Supplemental-Highly Recommended	Apathy Scale (AS)	True	Parkinson's Disease	Parkinson's Disease
C57934	Imaging multiband use indicator	Indicator of whether a multiband method is used in imaging acquisition	Supplemental-Highly Recommended	MRI and Spectroscopy	False	Parkinson's Disease	Parkinson's Disease
C08522	36-item Short Form Health Survey (SF-36) - Pain interfere work score	Score of bodily pain interfering with work (in home and outside) during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Supplemental-Highly Recommended	Short Form 36-Item Health Survey (SF-36)	True	Parkinson's Disease	Parkinson's Disease
C02015	Medication prior or concomitant route type	Type of access route for the administration of the prior/concomitant medication	Supplemental-Highly Recommended	Parkinson's Disease Medication Log	False	Parkinson's Disease	Parkinson's Disease
C17253	Questionnaire for Impulsive-Compulsive Disorders in Parkinson's Disease (QUIP) - psychological medication increase indicator	Indicator of whether the participant has increased the intake of Parkinson's medication, without medical advice, for psychological reasons, such as improved mood or motivation, as part of the Questionnaire for Impulsive-Compulsive Disorders in Parkinson's Disease (QUIP)	Supplemental-Highly Recommended	Questionnaire for Impulsive-Compulsive Disorders in Parkinson's Disease (QUIP) (Long Form)	True	Parkinson's Disease	Parkinson's Disease
C18707	Imaging pre-scan procedure type other text	The free-text field related to 'Imaging pre-scan procedure type' specifying other text. Type(s) of pre-scan procedures administered to the participant/subject	Supplemental-Highly Recommended	PET-SPECT Localization	False	Parkinson's Disease	Parkinson's Disease
C59036	Imaging scan initiation time	Time of scan initiation	Supplemental-Highly Recommended	MRI and Spectroscopy	False	Parkinson's Disease	Parkinson's Disease
C59080	Biological sample in repository specimen type other text	The free-text field related to 'Biological sample in repository specimen type', specifying other text. Type of biological sample or specimen collected and stored in a repository	Supplemental-Highly Recommended	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
C08530	36-item Short Form Health Survey (SF-36) - Times happy score	Score of times being a happy person during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Supplemental-Highly Recommended	Short Form 36-Item Health Survey (SF-36)	True	Parkinson's Disease	Parkinson's Disease
C17283	Questionnaire for Impulsive Disorders in Parkinson's Disease (QUIP-Current-Short) - buying behavior indicator	Indicates if there is an issue with too much buying behavior, as part of the Questionnaire for Impulsive Disorders in Parkinson's Disease (QUIP-Current-Short)	Supplemental-Highly Recommended	Questionnaire for Impulsive-Compulsive Disorders in Parkinson's Disease (QUIP) (Short Form)	True	Parkinson's Disease	Parkinson's Disease
C20533	European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Anxiety depression category	Category determining the extent to which the participant has problems with anxiety or depression category, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)	Supplemental-Highly Recommended	EuroQoL-5 Dimension Questionnaire (EQ-5D)	True	Parkinson's Disease	Parkinson's Disease
C17290	Questionnaire for Impulsive Disorders in Parkinson's Disease (QUIP-Current-Short) - medication use difficulty indicator	Indicates if there is a difficulty controlling medication, as part of the Questionnaire for Impulsive Disorders in Parkinson's Disease (QUIP-Current-Short)	Supplemental-Highly Recommended	Questionnaire for Impulsive-Compulsive Disorders in Parkinson's Disease (QUIP) (Short Form)	True	Parkinson's Disease	Parkinson's Disease
C08605	Risk Factor Questionnaire (RFQ) - current job second duty text	Text describing the second of four major duties or tasks at the participant's/subject's current job as part of the Risk Factor Questionnaire (RFQ) - Occupation	Supplemental-Highly Recommended	Risk Factor Questionnaire (RFQ) - Occupation and Employment Status	True	Parkinson's Disease	Parkinson's Disease
C59043	Imaging camera type	Type of imaging camera used	Supplemental-Highly Recommended	PET-SPECT Localization	False	Parkinson's Disease	Parkinson's Disease
C08613	Risk Factor Questionnaire (RFQ) - longest occupation 25 year third duty text	Text describing the participant's/subject's third of four major tasks or duties at the longest held occupation from the age of 0-25 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation	Supplemental-Highly Recommended	Risk Factor Questionnaire (RFQ) - Occupation and Employment Status	True	Parkinson's Disease	Parkinson's Disease
C59051	Imaging MRI acquire co-registration indicator	Indicator of whether MRI was acquired for co-registration with the imaging study being documented.	Supplemental-Highly Recommended	PET-SPECT Localization	False	Parkinson's Disease	Parkinson's Disease
C08621	Risk Factor Questionnaire (RFQ) - longest occupation 36 45 year first duty text	Text describing the participant's/subject's first of four major tasks or duties at the longest held occupation from the age of 36-45 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation	Supplemental-Highly Recommended	Risk Factor Questionnaire (RFQ) - Occupation and Employment Status	True	Parkinson's Disease	Parkinson's Disease
C59074	Diagnosis Parkinsons disease support sign type	Type of sign supportive of Parkinsons disease diagnosis	Supplemental-Highly Recommended	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
C08629	Risk Factor Questionnaire (RFQ) - longest occupation 46 55 year fourth duty text	Text describing the participant's/subject's fourth of four major tasks or duties at the longest held occupation from the age of 46-55 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation	Supplemental-Highly Recommended	Risk Factor Questionnaire (RFQ) - Occupation and Employment Status	True	Parkinson's Disease	Parkinson's Disease
C08589	Risk Factor Questionnaire (RFQ) - military service branch type	The type of branch the participant/subject was in for the longest duration as part of the Risk Factor Questionnaire (RFQ) - Occupation	Supplemental-Highly Recommended	Risk Factor Questionnaire (RFQ) - Occupation and Employment Status	True	Parkinson's Disease	Parkinson's Disease
C16196	Biological sample in repository study initially requested name	The name of the study for which the biological sample or specimen was initially taken	Supplemental-Highly Recommended	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.