CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 201 - 225 of 2660
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C08531 36-item Short Form Health Survey (SF-36) - Times tired score

Score of times feeling tired during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Supplemental-Highly Recommended Short Form 36-Item Health Survey (SF-36) True Parkinson's Disease Parkinson's Disease
C09492 Scale for the Assessment of Positive Symptoms (SAPS) - global rating of severity of delusions scale

Subject's global rating based on duration, persistence, and preoccupation with delusions, degree of conviction, and effect on his actions, as part of the Scale For The Assessment of Positive Symptoms (SAPS)- Aggressive Agitated Behavior indicator

 Supplemental-Highly Recommended Scale for the Assessment of Positive Symptoms (SAPS) True Parkinson's Disease Parkinson's Disease
C17383 Parkinson's Disease Quality of Life (PDQUALIF) - family friends view change scale

Rating scale for feeing that your spouse/children/friends' view of you has changed because of your illness as part of Parkinson's Disease Quality of Life (PDQUALIF) form

 Supplemental-Highly Recommended Parkinson's Disease Quality of Life Scale (PDQUALIF) True Parkinson's Disease Parkinson's Disease
C09346 Hamilton Anxiety Rating Scale (HAM-A) - insomnia score

The score of the participant's/subject's insomnia, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

 Supplemental-Highly Recommended Hamilton Anxiety Rating Scale (HAM-A) False Parkinson's Disease Parkinson's Disease
C09500 Scale for the Assessment of Positive Symptoms (SAPS) - pressured speech scale

Subject's likelihood to have an increase in the amount of spontaneous speech, as part of the Scale For The Assessment of Positive Symptoms (SAPS)- Aggressive Agitated Behavior indicator

 Supplemental-Highly Recommended Scale for the Assessment of Positive Symptoms (SAPS) True Parkinson's Disease Parkinson's Disease
C08680 Risk Factor Questionnaire (RFQ) - age 18 25 residential history residence pesticide use frequency

Frequency of pesticide spraying near the participant's/subject's residence from 18-25 years of age during the span of residence

 Supplemental Risk Factor Questionnaire (RFQ) - Residential History True Parkinson's Disease Parkinson's Disease
C08947 Risk Factor Questionnaire (RFQ-U) - work other rodenticide use birth 25 age text

The description of any other rodenticides used at work from birth to age 25 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticide (Work).

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Parkinson's Disease Parkinson's Disease
C17311 Structured Clinical Interview for Pathological Gambling (SCI-PG) - illegal acts value

Value that represents committed illegal acts such as forgery fraud theft or embezzlement to finance gambling. Committed illegal acts to finance gambling-related loans. Acts may or may not have resulted in arrests. Includes financial acts against family members that would be crimes if committed against non-family members as part of Structured Clinical Interview for Pathological Gambling (SCI-PG).

 Supplemental Structured Clinical Interview for Pathological Gambling (SCI-PG) True Parkinson's Disease Parkinson's Disease
C09952 World Health Organization Quality of Life (WHOQOL-BREF) - living place scale

Scale used to assess how satisfied the participant is with his living space, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

 Supplemental World Health Organization Quality of Life Assessment (WHOQOL-BREF) True Parkinson's Disease Parkinson's Disease
C10465 Risk Factor Questionnaire (RFQ) - currently taking CCB medication indicator

Indicator whther the participant currently takes CCB medication as part of the Risk Factor Questionnaire for Nonsteroidal Anti-Inflammatory Drugs (NSAIDS) and Calcium Channel Blockers (CCB)

 Supplemental Risk Factor Questionnaire (RFQ) - NSAIDS and Calcium Channel Blockers (CCB) True Parkinson's Disease Parkinson's Disease
C10325 Questionnaire About Buying Behavior (QABB) - agitate irritate cannot buy something indicator

Whether the participant has ever felt edge, agitated, irritable when he or she can't purchase something as part of Questionnaire About Buying Behavior (QABB).

 Supplemental Questionnaire about Buying Behavior (QABB) True Parkinson's Disease Parkinson's Disease
C18107 Quality of Life in Swallowing Disorders (SWAL-QOL) - completion date

Date the subject completed this questionnaire, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL)

 Supplemental Quality of Life in Swallowing Disorders (SWAL-QOL) True Parkinson's Disease Parkinson's Disease
C09425 Rome III Constipation Module (RCM3) - pain discomfort frequent bowel movement frequency

The frequency for how often the participant experienced frequent bowel movements after the discomfort or pain started, as a part of Rome III Constipation Module (RCM3)

 Supplemental Rome III Constipation Module True Parkinson's Disease Parkinson's Disease
C10215 Parkinson's Impact Scale (PIMS) - worst symptom safety scale

Safety: Refers to your ability to do what you want without injuring yourself or others (driving, being outdoors, in the kitchen, in the bathroom, etc.). If your symptoms fluctuate complete for worse, As part of PIMS Questionnaire

 Supplemental Parkinson's Impact Scale (PIMS) True Parkinson's Disease Parkinson's Disease
C10042 Mini Nutritional Assessment (MNA) - weight loss 3 month score

The score for the degree of weight loss during the last 3 months by the participant as part of MNA form.

 Supplemental Mini Nutritional Assessment (MNA) True Parkinson's Disease Parkinson's Disease
C09557 Survey Screen for Sleep Apnea (SSSA) - jumpy jerk leg frequency

The frequency for how often the participant's legs felt jumpy or jerked in the last month as part of the Survey Screen for Sleep Apnea (SSSA).

 Supplemental Survey Screen for Sleep Apnea (SSSA) True Parkinson's Disease Parkinson's Disease
C09731 Food Frequency Questionnaire - (FFQ)-apricots indicator

Average amount of apricots the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Parkinson's Disease Parkinson's Disease
C09385 Rome III Constipation Module (RCM3) - food drink stuck slow frequency

The frequency for how often the participant had food or drinks get stuck after swallowing or go down slowly through his or her chest in the past 3 months, as a part of Rome III Constipation Module (RCM3)

 Supplemental Rome III Constipation Module True Parkinson's Disease Parkinson's Disease
C17281 Questionnaire for Impulsive Disorders in Parkinson's Disease (QUIP-Current-Short) - sex behavior indicator

Indicates if there is an issue with too much sex behavior, as part of the Questionnaire for Impulsive Disorders in Parkinson's Disease (QUIP-Current-Short)

 Supplemental Questionnaire for Impulsive-Compulsive Behaviors in Parkinson's Disease (QUIP) (Short form) True Parkinson's Disease Parkinson's Disease
C09856 Food Frequency Questionnaire - (FFQ)-low fat fat free mayonnaise indicator

Average total amount of low fat or fat free mayonnaise the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Parkinson's Disease Parkinson's Disease
C18720 Imaging visual analysis location performed other text

The free-text field related to 'Imaging visual analysis location performed type' specifying other text. Location where visual analysis of the imaging data are performed

 Supplemental MRI and Spectroscopy False Parkinson's Disease Parkinson's Disease
C18074 Ohio State TBI Method Short Form (OSUTBIMS) - worst injury result

Result to whether the subject has: 1 an "improbable TBI", 2 a "possible TBI", 3 a "mild TBI", 4 a "moderate TBI", or 5 a "severe TBI" as part of Ohio State TBI Method Short Form (OSUTBIMS).

 Supplemental Ohio State University TBI Identification Method Short Form True Parkinson's Disease Parkinson's Disease
C09691 Food Frequency Questionnaire - (FFQ)-other supplements taken indicator

Name of the other supplements are you taking currently on a regular basis (at least once per week), as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Parkinson's Disease Parkinson's Disease
C08995 Risk Factor Questionnaire (RFQ-U) - work lindane product use 26 35 age indicator

The indicator whether participant/subject used lindane products at work from age 26 to 35 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticide (Work).

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Parkinson's Disease Parkinson's Disease
C17339 Parkinson's Disease Non Motor Symptoms (PD NMS) - intense vivid frightening dream indicator

Indicator of participant/subject experiencing intense/vivid/frightening dreams in the last month, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire.

 Supplemental Non-Motor Symptom Questionnaire (NMS-Quest) (PD-NMS) True Parkinson's Disease Parkinson's Disease
Displaying 201 - 225 of 2660

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.