CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 201 - 225 of 749
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C59139 Optimal programming limit stimulation adverse effect indicator

Indicator related to whether optimal programming is limited by stimulation-induced adverse effects

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C10178 Diffusion Capacity Uncorrected measurement

Diffusion Capacity Uncorrected (DLCO UNC) = Participant/subject is asked to take a deep breath of air containing known concentration of carbon monoxide and to hold it for 10 seconds. The terminal (alveolar air) portion of expiration is collected to measure

Supplemental Other Non-Motor Guidance for CDE Use Parkinson's Disease Parkinson's Disease
C59090 Deep brain stimulation indication type other text

The free-text field related to 'Deep brain stimulation indication type', specifying other text. Type of indications for deep brain stimulation (DBS)

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C07437 Patient Health Questionnaire (PHQ) - Concentration impairment score

Score of how much the subject has been bothered with troubling concentrating in the past two weeks, as part of the Patient Health Questionnaire (PHQ)

Supplemental Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Parkinson's Disease Parkinson's Disease
C59148 Adverse event outcome status other text

The free-text field related to 'Adverse event outcome status', specifying other text. Final status of the participant/subject related to the adverse event

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C10187 Videofluoroscopic swallowing study liquid type

Type of liquid used in the Videofluoroscopic Swallowing Study (VFSS)

Supplemental Other Non-Motor Guidance for CDE Use Parkinson's Disease Parkinson's Disease
C59101 Functional neurosurgery target planning software type text

The free-text field to describe the type of functional neurosurgery target planning software used to determine the coordinates of the target (brain nucleus)

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C09346 Hamilton Anxiety Rating Scale (HAM-A) - insomnia score

The score of the participant's/subject's insomnia, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

Supplemental Hamilton Anxiety Rating Scale (HAM-A) Parkinson's Disease Parkinson's Disease
C59156 Pulse generator replacement reason

The reason the pulse generator was replaced

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C59098 Database of Genotypes and Phenotypes study title text

The free-text field to specify the title of the of the database of Genotypes and Phenotypes (dbGaP) study

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C59111 Microelectrode record microstimulation sedation type

Type of sedation used during microelectrode recording or microstimulation for intra-operative target verification

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C09354 Hamilton Anxiety Rating Scale (HAM-A) - gastrointestinal symptom score

The score of the participant's/subject's gastrointestinal symptoms, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

Supplemental Hamilton Anxiety Rating Scale (HAM-A) Parkinson's Disease Parkinson's Disease
C08112 Birth weight category

Categorization of the participant's/subject's birth weight

Supplemental History of Early Exposure Parkinson's Disease Parkinson's Disease
C20384 Pittsburgh Sleep Quality Index (PSQI) - Sleep latency scale

The scale to which sleep latency was calculated, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Parkinson's Disease Parkinson's Disease
C18682 Functional neurosurgery target planning method type other text

The free-text field related to 'Functional neurosurgery target planning method type', specifying other text. The type of method used to determine the coordinates of the target (brain nucleus)

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C09580 Brief Pain Inventory (BPI) - current pain rating scale

Scale rating the pain the subject is feeling right now, as part of the Brief Pain Inventory (BPI) form

Supplemental Brief Pain Inventory (BPI) Short Form Parkinson's Disease Parkinson's Disease
C08002 Family history relative type biological sample identifier number

Identification (ID) number assigned to family member's biological sample in repository

Supplemental Family History Parkinson's Disease Parkinson's Disease
C09595 Brief Psychiatric Rating Scale (BPRS) - tension score

The score of the participant's/subject's tension, as part of the Brief Psychiatric Rating Scale (BPRS) form.

Supplemental Brief Psychiatric Rating Scale (BPRS) Parkinson's Disease Parkinson's Disease
C12790 Gene exon first deleted duplicated name

Name of the first exon deleted or duplicated

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C59066 Twin sibling birth sex assigned type

Sex assigned at birth of participant's/subject's twin sibling

Supplemental History of Early Exposure Parkinson's Disease Parkinson's Disease
C19607 Genetic test mitochondrial DNA variant mutation quantitative analysis heteroplasmy level type

Type of heteroplasmy level in quantitative analysis for mitochondrial DNA variant or mutation

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C54898 Surgery procedure minute duration

Duration in minutes of surgery or procedure

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C09588 Brief Pain Inventory (BPI) - pain sleep interference scale

Scale assessing how much the pain has interfered with sleep, as part of the Brief Pain Inventory (BPI) form

Supplemental Brief Pain Inventory (BPI) Short Form Parkinson's Disease Parkinson's Disease
C09603 Brief Psychiatric Rating Scale (BPRS) - uncooperativeness score

The score of the participant's/subject's uncooperativeness, as part of the Brief Psychiatric Rating Scale (BPRS) form.

Supplemental Brief Psychiatric Rating Scale (BPRS) Parkinson's Disease Parkinson's Disease
C12801 Gene point mutation nonsense variant codon type

Type of nonsense variant or point mutation

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
Displaying 201 - 225 of 749

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.