CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Displaying 201 - 225 of 2446
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C12789 Gene deletions duplications limits clearly defined indicator

Whether the limits of deletions and duplications are defined

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C10307 Quality of Life in Swallowing Disorders (SWAL-QOL) - swallowing problem frustrating indicator

Scale assessing how true the following statement has been for the participant during the last month: My swallowing problem frustrates me. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)

Supplemental Quality of Life in Swallowing Disorders (SWAL-QOL) Parkinson's Disease Parkinson's Disease
C10469 Risk Factor Questionnaire (RFQ) - currently using solvents degreasers indicator

Currently using solvents or degreasers as part of the Risk Factor Questionnaire for Toxicants

Supplemental Risk Factor Questionnaire (RFQ) - Toxicants Parkinson's Disease Parkinson's Disease
C09500 Scale for the Assessment of Positive Symptoms (SAPS) - pressured speech scale

Subject's likelihood to have an increase in the amount of spontaneous speech, as part of the Scale For The Assessment of Positive Symptoms (SAPS)- Aggressive Agitated Behavior indicator

Supplemental Scale for the Assessment of Positive Symptoms (SAPS) Parkinson's Disease Parkinson's Disease
C17703 Risk Factor Questionnaire (RFQ) - residential history age 0 17 first residence street address text

Text specifying the partitipant's/subject's first street address of residence

Supplemental Risk Factor Questionnaire (RFQ) - Residential History Parkinson's Disease Parkinson's Disease
C09427 Rome III Constipation Module (RCM3) - pain discomfort loose stool frequency

The frequency for how often the participant experienced looser stools after the discomfort or pain started, as a part of Rome III Constipation Module (RCM3)

Supplemental Rome III/IV Constipation Module Parkinson's Disease Parkinson's Disease
C09950 World Health Organization Quality of Life (WHOQOL-BREF) - sex life scale

Scale used to assess sex life satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

Supplemental World Health Organization Quality of Life Assessment (WHOQOL-BREF) Parkinson's Disease Parkinson's Disease
C09798 Food Frequency Questionnaire - (FFQ)-French fried potatoes indicator

Average total amount of french fried potatoes the subject ate this past year, as part of Food Frequency Questionnaire -(FFQ)

Supplemental Food Frequency Questionnaire (FFQ) Parkinson's Disease Parkinson's Disease
C10323 Questionnaire About Buying Behavior (QABB) - irresistible urge spend money anything indicator

Whether the participant has had the irresistible urge to spend money on anything at all as part of Questionnaire About Buying Behavior (QABB)

Supplemental Questionnaire about Buying Behavior (QABB) Parkinson's Disease Parkinson's Disease
C09572 Berlin Questionnaire (BQ) - sleep drive indicator

Whether patient/subject has ever nodded off or fallen asleep while driving a vehicle as part of BQ form

Supplemental Berlin Questionnaire Parkinson's Disease Parkinson's Disease
C09387 Rome III Constipation Module (RCM3) - food stick 6 month long indicator

The indicator for whether the participant's food sticking problem lasted 6 months or longer, as a part of Rome III Constipation Module (RCM3)

Supplemental Rome III/IV Constipation Module Parkinson's Disease Parkinson's Disease
C18681 Functional neurosurgery target anatomic site other text

The free-text field related to 'Functional neurosurgery target anatomic site', specifying other text. The anatomic site in the brain nucleus or group of neurons to be intervened for surgery

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C09758 Food Frequency Questionnaire - (FFQ)-onions garnish indicator

Average total amount of onions as garnish or in a salad the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)

Supplemental Food Frequency Questionnaire (FFQ) Parkinson's Disease Parkinson's Disease
C18075 Ohio State TBI Method Short Form (OSUTBIMS) - anoxic injury number

Number of anoxic injuries (sum of incidents reported in #7) as part of Ohio State TBI Method Short Form (OSUTBIMS)

Supplemental Ohio State University TBI Identification Method Short Form Parkinson's Disease Parkinson's Disease
C17688 Non-prescribed controlled psychoactive drug substance opioid text

The text specifying the drugs within the 'Opioids/Narcotics: heroin, opium, morphine, methadone, codeine, Darvon, Percodan, Oxycontin, Dilaudid, Demerol/meperidine,' category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject

Supplemental Non-prescribed Drug Use Questionnaire Parkinson's Disease Parkinson's Disease
C10171 Trial number

The number representing the sequence for any repeated measure test or assessment when it is performed multiple times

Supplemental Other Non-Motor Guidance for CDE Use Parkinson's Disease Parkinson's Disease
C19605 Genetic test mitochondrial DNA variant or mutation quantitative analysis evaluation method type

Type of evaluation method in quantitative analysis for mitochondrial DNA variant or mutation

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C08923 Risk Factor Questionnaire (RFQ-U) - work other herbicide use birth 25 age text

The description of any other herbicides used at work from birth to age 25 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) Parkinson's Disease Parkinson's Disease
C08643 Risk Factor Questionnaire (RFQ) - age 18 25 vigorous physical activity indicator

Hours spent doing vigorous physical activities by the subject in an average week between the ages of 18 and 25, as part of the Risk Factor Questionnaire (RFQ)

Supplemental Risk Factor Questionnaire (RFQ) - Physical Activity and Sleep Parkinson's Disease Parkinson's Disease
C09213 Risk Factor Questionnaire (RFQ-U) - work maneb mancozeb product use 66 onward age indicator

The indicator whether participant/subject used maneb or mancozeb products at work from age 66 onward as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) Parkinson's Disease Parkinson's Disease
C08109 Preschool start date

Date participant/subject first started preschool

Supplemental History of Early Exposure Parkinson's Disease Parkinson's Disease
C09587 Brief Pain Inventory (BPI) - pain relations interference scale

Scale assessing how much the pain has interfered with relations with other people, as part of the Brief Pain Inventory (BPI) form

Supplemental Brief Pain Inventory (BPI) Short Form Parkinson's Disease Parkinson's Disease
C08563 Risk Factor Questionnaire (RFQ) - taken Nicardipine Cardene Carden SR reason

Reason took Nicardipine or Cardene, Carden SR as part of the Risk Factor Questionnaire for Nonsteroidal Anti-Inflammatory Drugs (NSAIDS) and Calcium Channel Blockers (CCB)

Supplemental Risk Factor Questionnaire (RFQ) - NSAIDS and Calcium Channel Blockers (CCB) Parkinson's Disease Parkinson's Disease
C09048 Risk Factor Questionnaire (RFQ-U) - work aldrin product use 36 45 age indicator

The indicator whether participant/subject used aldrin products at work from age 36 to 45 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticide (Work)

Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) Parkinson's Disease Parkinson's Disease
C17389 Parkinson's Disease Quality of Life (PDQUALIF) - usual share interfered 7 days scale

Rating scale for the ability to do usual share in the home interfered by the Parkinson's symptoms in past 7 days as part of Parkinson's Disease Quality of Life (PDQUALIF) form

Supplemental Parkinson's Disease Quality of Life Scale (PDQUALIF) Parkinson's Disease Parkinson's Disease
Displaying 201 - 225 of 2446

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.