CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C12789	Gene deletions duplications limits clearly defined indicator	Whether the limits of deletions and duplications are defined	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
C10307	Quality of Life in Swallowing Disorders (SWAL-QOL) - swallowing problem frustrating indicator	Scale assessing how true the following statement has been for the participant during the last month: My swallowing problem frustrates me. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)	Supplemental	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	Parkinson's Disease	Parkinson's Disease
C10469	Risk Factor Questionnaire (RFQ) - currently using solvents degreasers indicator	Currently using solvents or degreasers as part of the Risk Factor Questionnaire for Toxicants	Supplemental	Risk Factor Questionnaire (RFQ) - Toxicants	True	Parkinson's Disease	Parkinson's Disease
C09500	Scale for the Assessment of Positive Symptoms (SAPS) - pressured speech scale	Subject's likelihood to have an increase in the amount of spontaneous speech, as part of the Scale For The Assessment of Positive Symptoms (SAPS)- Aggressive Agitated Behavior indicator	Supplemental	Scale for the Assessment of Positive Symptoms (SAPS)	True	Parkinson's Disease	Parkinson's Disease
C17703	Risk Factor Questionnaire (RFQ) - residential history age 0 17 first residence street address text	Text specifying the partitipant's/subject's first street address of residence	Supplemental	Risk Factor Questionnaire (RFQ) - Residential History	True	Parkinson's Disease	Parkinson's Disease
C09427	Rome III Constipation Module (RCM3) - pain discomfort loose stool frequency	The frequency for how often the participant experienced looser stools after the discomfort or pain started, as a part of Rome III Constipation Module (RCM3)	Supplemental	Rome III/IV Constipation Module	True	Parkinson's Disease	Parkinson's Disease
C09950	World Health Organization Quality of Life (WHOQOL-BREF) - sex life scale	Scale used to assess sex life satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	Supplemental	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	Parkinson's Disease	Parkinson's Disease
C09798	Food Frequency Questionnaire - (FFQ)-French fried potatoes indicator	Average total amount of french fried potatoes the subject ate this past year, as part of Food Frequency Questionnaire -(FFQ)	Supplemental	Food Frequency Questionnaire (FFQ)	True	Parkinson's Disease	Parkinson's Disease
C10323	Questionnaire About Buying Behavior (QABB) - irresistible urge spend money anything indicator	Whether the participant has had the irresistible urge to spend money on anything at all as part of Questionnaire About Buying Behavior (QABB)	Supplemental	Questionnaire about Buying Behavior (QABB)	True	Parkinson's Disease	Parkinson's Disease
C09572	Berlin Questionnaire (BQ) - sleep drive indicator	Whether patient/subject has ever nodded off or fallen asleep while driving a vehicle as part of BQ form	Supplemental	Berlin Questionnaire	True	Parkinson's Disease	Parkinson's Disease
C09387	Rome III Constipation Module (RCM3) - food stick 6 month long indicator	The indicator for whether the participant's food sticking problem lasted 6 months or longer, as a part of Rome III Constipation Module (RCM3)	Supplemental	Rome III/IV Constipation Module	True	Parkinson's Disease	Parkinson's Disease
C18681	Functional neurosurgery target anatomic site other text	The free-text field related to 'Functional neurosurgery target anatomic site', specifying other text. The anatomic site in the brain nucleus or group of neurons to be intervened for surgery	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
C09758	Food Frequency Questionnaire - (FFQ)-onions garnish indicator	Average total amount of onions as garnish or in a salad the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)	Supplemental	Food Frequency Questionnaire (FFQ)	True	Parkinson's Disease	Parkinson's Disease
C18075	Ohio State TBI Method Short Form (OSUTBIMS) - anoxic injury number	Number of anoxic injuries (sum of incidents reported in #7) as part of Ohio State TBI Method Short Form (OSUTBIMS)	Supplemental	Ohio State University TBI Identification Method Short Form	True	Parkinson's Disease	Parkinson's Disease
C17688	Non-prescribed controlled psychoactive drug substance opioid text	The text specifying the drugs within the 'Opioids/Narcotics: heroin, opium, morphine, methadone, codeine, Darvon, Percodan, Oxycontin, Dilaudid, Demerol/meperidine,' category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject	Supplemental	Non-prescribed Drug Use Questionnaire	False	Parkinson's Disease	Parkinson's Disease
C10171	Trial number	The number representing the sequence for any repeated measure test or assessment when it is performed multiple times	Supplemental	Other Non-Motor Guidance for CDE Use	False	Parkinson's Disease	Parkinson's Disease
C19605	Genetic test mitochondrial DNA variant or mutation quantitative analysis evaluation method type	Type of evaluation method in quantitative analysis for mitochondrial DNA variant or mutation	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
C08923	Risk Factor Questionnaire (RFQ-U) - work other herbicide use birth 25 age text	The description of any other herbicides used at work from birth to age 25 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)	Supplemental	Risk Factor Questionnaire (RFQ-U) - Pesticides (Work)	True	Parkinson's Disease	Parkinson's Disease
C08643	Risk Factor Questionnaire (RFQ) - age 18 25 vigorous physical activity indicator	Hours spent doing vigorous physical activities by the subject in an average week between the ages of 18 and 25, as part of the Risk Factor Questionnaire (RFQ)	Supplemental	Risk Factor Questionnaire (RFQ) - Physical Activity and Sleep	True	Parkinson's Disease	Parkinson's Disease
C09213	Risk Factor Questionnaire (RFQ-U) - work maneb mancozeb product use 66 onward age indicator	The indicator whether participant/subject used maneb or mancozeb products at work from age 66 onward as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)	Supplemental	Risk Factor Questionnaire (RFQ-U) - Pesticides (Work)	True	Parkinson's Disease	Parkinson's Disease
C08109	Preschool start date	Date participant/subject first started preschool	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
C09587	Brief Pain Inventory (BPI) - pain relations interference scale	Scale assessing how much the pain has interfered with relations with other people, as part of the Brief Pain Inventory (BPI) form	Supplemental	Brief Pain Inventory (BPI) Short Form	True	Parkinson's Disease	Parkinson's Disease
C08563	Risk Factor Questionnaire (RFQ) - taken Nicardipine Cardene Carden SR reason	Reason took Nicardipine or Cardene, Carden SR as part of the Risk Factor Questionnaire for Nonsteroidal Anti-Inflammatory Drugs (NSAIDS) and Calcium Channel Blockers (CCB)	Supplemental	Risk Factor Questionnaire (RFQ) - NSAIDS and Calcium Channel Blockers (CCB)	True	Parkinson's Disease	Parkinson's Disease
C09048	Risk Factor Questionnaire (RFQ-U) - work aldrin product use 36 45 age indicator	The indicator whether participant/subject used aldrin products at work from age 36 to 45 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticide (Work)	Supplemental	Risk Factor Questionnaire (RFQ-U) - Pesticides (Work)	True	Parkinson's Disease	Parkinson's Disease
C17389	Parkinson's Disease Quality of Life (PDQUALIF) - usual share interfered 7 days scale	Rating scale for the ability to do usual share in the home interfered by the Parkinson's symptoms in past 7 days as part of Parkinson's Disease Quality of Life (PDQUALIF) form	Supplemental	Parkinson's Disease Quality of Life Scale (PDQUALIF)	True	Parkinson's Disease	Parkinson's Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.