CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 201 - 225 of 2660
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C18669 Diagnosis final clinical death other text

The free-text field related to 'Diagnosis final clinical death type' specifying other text. Physician's final clinical diagnosis for the participant/subject

 Supplemental Neuropathology False Parkinson's Disease Parkinson's Disease
C08149 Diagnosis final clinical death type

Physician's final clinical diagnosis for the participant/subject

 Supplemental Neuropathology False Parkinson's Disease Parkinson's Disease
C08007 Diagnosis first given date and time

Date (and time if applicable and known) the participant/subject was initially diagnosed with the disease or disorder

 Supplemental Medical History of Parkinson's Disease False Parkinson's Disease Parkinson's Disease
C08011 Diagnostic alternative reason

Reason for other important diagnostic alternative(s) to Parkinson's disease.

 Supplemental Medical History of Parkinson's Disease False Parkinson's Disease Parkinson's Disease
C08009 Diagnostic feature criterion presence indicator

Indicator of whether the diagnostic feature or criterion is observed during clinical assessment of the participant/subject

 Supplemental Medical History of Parkinson's Disease False Parkinson's Disease Parkinson's Disease
C08008 Diagnostic feature criterion type

Type of diagnostic feature or criterion assessed in the participant/subject.

 Supplemental Medical History of Parkinson's Disease False Parkinson's Disease Parkinson's Disease
C18031 Diffuse plaques brain region score anatomic site

The anatomic site as it relates to the region in the brain where the diffuse plaques were scored

 Supplemental Neuropathology False Parkinson's Disease Parkinson's Disease
C08171 Diffuse plaques density category

Density of diffuse plaques (plaques with non-compact amyloid and no apparent dystrophic neurites)

 Supplemental Neuropathology False Parkinson's Disease Parkinson's Disease
C10179 Diffusion Capacity Corrected measurement

Diffusion Capacity Corrected (DLCO CORR) = A correction for predicted value is made using patients Hemoglobin

 Supplemental Other Non-motor Guidelines for CDE Use False Parkinson's Disease Parkinson's Disease
C10178 Diffusion Capacity Uncorrected measurement

Diffusion Capacity Uncorrected (DLCO UNC) = Participant/subject is asked to take a deep breath of air containing known concentration of carbon monoxide and to hold it for 10 seconds. The terminal (alveolar air) portion of expiration is collected to measure

 Supplemental Other Non-motor Guidelines for CDE Use False Parkinson's Disease Parkinson's Disease
C08019 Disease duration

Duration of disease at time of surgery

 Supplemental Functional Neurosurgery False Parkinson's Disease Parkinson's Disease
C09638 Drooling Severity and Frequency Scale (DSFS) - drool frequency scale

Scale of how frequent the subject drools.

 Supplemental Drooling Severity and Frequency Scale (DSFS) True Parkinson's Disease Parkinson's Disease
C09637 Drooling Severity and Frequency Scale (DSFS) - drool severity scale

Scale of how severe subject's drooling is.

 Supplemental Drooling Severity and Frequency Scale (DSFS) True Parkinson's Disease Parkinson's Disease
C08233 Drug or substance first illicit use date and time

Date (and time if applicable and known) the participant/subject first used the category of illegal drugs, prescription or over-the-counter drugs

 Supplemental Non-prescribed Drug Use Questionnaire False Parkinson's Disease Parkinson's Disease
C00716 Drug or substance illicit use duration

Duration, in years, the participant/subject has used unprescribed, controlled psychoactive drugs or substances.

 Supplemental Non-prescribed Drug Use Questionnaire False Parkinson's Disease Parkinson's Disease
C08232 Drug or substance illicit use ever indicator

Indicator of participant's/subject's use of illegal drugs, prescription or over-the-counter drugs at any point in his/her lifetime for purposes other than those for which they are meant to be used, or in large amounts

 Supplemental Non-prescribed Drug Use Questionnaire False Parkinson's Disease Parkinson's Disease
C08235 Drug or substance illicit use frequency

The subject's/participant's average or typical use frequency during the year of greatest use of an unprescribed, controlled psychoactive drugs or substances used by the participant/subject.

 Supplemental Non-prescribed Drug Use Questionnaire False Parkinson's Disease Parkinson's Disease
C08234 Drug or substance last illicit use date and time

Date (and time if applicable and known) of the participant's/subject's last use of an unprescribed, controlled psychoactive drugs or substances used by the participant/subject.

 Supplemental Non-prescribed Drug Use Questionnaire False Parkinson's Disease Parkinson's Disease
C08013 Dystonia symptom text

Symptoms experienced by the participant/subject related to dystonia.

 Supplemental Medical History of Parkinson's Disease False Parkinson's Disease Parkinson's Disease
C00012 Education level USA type

Highest grade or level of school participant/subject has completed or the highest degree received

 Core Demographics False Parkinson's Disease Parkinson's Disease
C00015 Education year count

Number of years of education completed (age 5 and beyond)

 Supplemental-Highly Recommended General Core False Parkinson's Disease Parkinson's Disease
C08039 Electrode brain count

Count of electrodes introduced in the brain

 Supplemental Functional Neurosurgery False Parkinson's Disease Parkinson's Disease
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

 Core General Core False Parkinson's Disease Parkinson's Disease
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

 Core Demographics False Parkinson's Disease Parkinson's Disease
C20533 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Anxiety depression category

Category determining the extent to which the participant has problems with anxiety or depression category, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L).

 Supplemental-Highly Recommended EuroQoL-5 Dimension Questionnaire (EQ-5D) True Parkinson's Disease Parkinson's Disease
Displaying 201 - 225 of 2660

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.