CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Displaying 176 - 200 of 2446
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C08558 Risk Factor Questionnaire (RFQ) - taken Felodipine Plendil indicator

Taken Felodipine or Plendil as part of the Risk Factor Questionnaire for Nonsteroidal Anti-Inflammatory Drugs (NSAIDS) and Calcium Channel Blockers (CCB)

Supplemental Risk Factor Questionnaire (RFQ) - NSAIDS and Calcium Channel Blockers (CCB) Parkinson's Disease Parkinson's Disease
C09043 Risk Factor Questionnaire (RFQ-U) - work S compound use 36 45 age indicator

The indicator whether participant/subject used sulfur compounds at work from age 36 to 45 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticide (Work)

Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) Parkinson's Disease Parkinson's Disease
C17384 Parkinson's Disease Quality of Life (PDQUALIF) - less sexually desirable scale

Rating scale for feeling of less sexually desirable because of the illness as part of Parkinson's Disease Quality of Life (PDQUALIF) form

Supplemental Parkinson's Disease Quality of Life Scale (PDQUALIF) Parkinson's Disease Parkinson's Disease
C10310 Quality of Life in Swallowing Disorders (SWAL-QOL) - swallowing problem hard social life indicator

Scale assessing how true the following statement has been for the participant during the last month: My swallowing problem makes it hard to have a social life. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)

Supplemental Quality of Life in Swallowing Disorders (SWAL-QOL) Parkinson's Disease Parkinson's Disease
C17323 Parkinson's Disease Non Motor Symptoms (PD NMS) - urgency pass urine rush indicator

Indicator of participant/subject experiencing an urgent need to pass urine in the last month, as part of the Parkinson's Disease Non Motor Symptoms (PD NMS) Questionnaire.

Supplemental Non-Motor Symptom Questionnaire (NMS-Quest) (PD-NMS) Parkinson's Disease Parkinson's Disease
C10472 Risk Factor Questionnaire (RFQ) - currently working around metal dust fumes indicator

Currently working around metal dust or fumes as part of the Risk Factor Questionnaire for Toxicants

Supplemental Risk Factor Questionnaire (RFQ) - Toxicants Parkinson's Disease Parkinson's Disease
C09168 Risk Factor Questionnaire (RFQ-U) - work parathion product use 56 65 age indicator

The indicator whether participant/subject used parathion products at work from age 56 to 65 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) Parkinson's Disease Parkinson's Disease
C09503 Scale for the Assessment of Positive Symptoms (SAPS) - social and sexual behavior scale

Subject's likelihood to do things that are considered inappropriate according to usual social norms, as part of the Scale For The Assessment of Positive Symptoms (SAPS)- Aggressive Agitated Behavior indicator

Supplemental Scale for the Assessment of Positive Symptoms (SAPS) Parkinson's Disease Parkinson's Disease
C17706 Risk Factor Questionnaire (RFQ) - age 36 45 residential history residence street address text

Text specifying the partitipant's/subject's street address of residence from 36-45 years of age

Supplemental Risk Factor Questionnaire (RFQ) - Residential History Parkinson's Disease Parkinson's Disease
C09430 Rome III Constipation Module (RCM3) - pain discomfort relieve move change position frequency

The frequency for how often the participant relieved the discomfort or pain by moving or changing positions, as a part of Rome III Constipation Module (RCM3)

Supplemental Rome III/IV Constipation Module Parkinson's Disease Parkinson's Disease
C09953 World Health Organization Quality of Life (WHOQOL-BREF) - health access scale

Scale used to assess satisfaction with health services access, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

Supplemental World Health Organization Quality of Life Assessment (WHOQOL-BREF) Parkinson's Disease Parkinson's Disease
C09801 Food Frequency Questionnaire - (FFQ)-crackers regular low fat indicator

Average total amount of regular or low fat crackers the subject ate this past year, as part of Food Frequency Questionnaire -(FFQ)

Supplemental Food Frequency Questionnaire (FFQ) Parkinson's Disease Parkinson's Disease
C10166 Quantitative sudomotor axon reflex test (QSART) - resting skin temperature anatomic site

Location on body where probes are placed to obtain resting skin temperature from quantitative sudomotor axon reflex test (QSART)

Supplemental Other Non-Motor Guidance for CDE Use Parkinson's Disease Parkinson's Disease
C10326 Questionnaire About Buying Behavior (QABB) - avoid certain store buy too much indicator

Whether the participant has avoided certain stores because he or she was too afraid of spending too much as part of Questionnaire About Buying Behavior (QABB)

Supplemental Questionnaire about Buying Behavior (QABB) Parkinson's Disease Parkinson's Disease
C09637 Drooling Severity and Frequency Scale (DSFS) - drool severity scale

Scale of how severe subject's drooling is

Supplemental Drooling Severity and Frequency Scale (DSFS) Parkinson's Disease Parkinson's Disease
C19592 Genetic test mitochondrial DNA genome deletion duplication analysis tissue type

Type of tissue tested in the mtDNA genome deletion/duplication analysis test

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C09390 Rome III Constipation Module (RCM3) - unable finish regular size meal frequency

The frequency for how often the participant was unable to finish a regular-sized meal in the past 3 months, as a part of Rome III Constipation Module (RCM3)

Supplemental Rome III/IV Constipation Module Parkinson's Disease Parkinson's Disease
C18755 Stereotactic surgery frame type other text

The free-text field related to 'Stereotactic surgery frame type', specifying other text. Scaffold or support used for stereotactic surgery

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C09761 Food Frequency Questionnaire - (FFQ)-omega-3 fortified eggs indicator

Average total amount of omega-3 fortified eggs the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

Supplemental Food Frequency Questionnaire (FFQ) Parkinson's Disease Parkinson's Disease
C09582 Brief Pain Inventory (BPI) - relief received percentage number

Indicates the relief received from medication use, as part of the Brief Pain Inventory (BPI) form

Supplemental Brief Pain Inventory (BPI) Short Form Parkinson's Disease Parkinson's Disease
C10378 Scales for Outcomes in PD-Cognitive (SCOPA-COG) - digit span backward score

The score for the participant's/subject's cognitive ability to perform a digit span backwards, as part of the Scales for Outcomes in PD-Cognitive (SCOPA-COG) form.

Supplemental Scales for Outcomes in Parkinson's Disease-Cognitive (SCOPA-COG) Parkinson's Disease Parkinson's Disease
C18670 Subscribed drug or substance illicitly used category other text

The free-text field related to 'Subscribed drug or substance illicitly used category' specifying other text. Category of illegal drugs, prescription, or over-the-counter drugs the participant/subject used for purposes other than those for which they are meant to be used, or in large amounts

Supplemental Non-prescribed Drug Use Questionnaire Parkinson's Disease Parkinson's Disease
C12793 Gene exon predicted reading frame type

Type of predicted reading frame

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C08646 Risk Factor Questionnaire (RFQ) - age 26 35 vigorous physical activity indicator

Hours spent doing vigorous physical activities by the subject in an average week between the ages of 26 and 35, as part of the Risk Factor Questionnaire (RFQ)

Supplemental Risk Factor Questionnaire (RFQ) - Physical Activity and Sleep Parkinson's Disease Parkinson's Disease
C09216 Risk Factor Questionnaire (RFQ-U) - work other fungicide use 66 onward age indicator

The indicator whether participant/subject used other fungicides at work from age 66 onward as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) Parkinson's Disease Parkinson's Disease
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.