CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 176 - 200 of 2446
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C08799 Risk Factor Questionnaire (RFQ) - age stopped regularly soldering period 2 value

Age when the participant stopped regularly soldering period 2 as part of the Risk Factor Questionnaire for Toxicants

 Supplemental Risk Factor Questionnaire (RFQ) - Toxicants True Parkinson's Disease Parkinson's Disease
C09819 Food Frequency Questionnaire - (FFQ)-milk chocolate indicator

Average total amount of milk chocolate (bar or packet) the subject ate this past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Parkinson's Disease Parkinson's Disease
C09481 Scale for the Assessment of Positive Symptoms (SAPS) - circumstantiality scale

Subject's likelihood of hearing voices that are commenting on his activities that are not actually there, as part of the Scale For The Assessment of Positive Symptoms (SAPS)- Aggressive Agitated Behavior indicator

 Supplemental Scale for the Assessment of Positive Symptoms (SAPS) True Parkinson's Disease Parkinson's Disease
C08714 Risk Factor Questionnaire (RFQ) - age 56 65 residential history residence zip code number

Number specifying the participant's/subject's zip code of residence from 56-65 years of age

 Supplemental Risk Factor Questionnaire (RFQ) - Residential History True Parkinson's Disease Parkinson's Disease
C09654 Food Frequency Questionnaire - (FFQ)-vitamin A daily dose

Dose per day of Vitamin A, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Parkinson's Disease Parkinson's Disease
C09408 Rome III Constipation Module (RCM3) - episode vomit frequency

The frequency for how often the vomiting the participant experienced in the last year occurred in separate episodes of a few days and then stopped, as a part of Rome III Constipation Module (RCM3)

 Supplemental Rome III/IV Constipation Module True Parkinson's Disease Parkinson's Disease
C09931 World Health Organization Quality of Life (WHOQOL-BREF) - health satisfaction scale

Scale used to assess health satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

 Supplemental World Health Organization Quality of Life Assessment (WHOQOL-BREF) True Parkinson's Disease Parkinson's Disease
C59099 Unified Parkinsons Disease Rating Scale part three on medication score

The score related to part three of the Unified Parkinson's Disease Rating Scale (UPDRS) when the participant/subject is on medications

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C09779 Food Frequency Questionnaire - (FFQ)-breaded fish cakes pieces fish sticks indicator

Average total amount of breaded fish cakes, pieces, or fish sticks the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Parkinson's Disease Parkinson's Disease
C20363 Pittsburgh Sleep Quality Index (PSQI) - Awaken night early morning past month scale

The scale to which the subject woke up in the middle of the night or early morning during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Supplemental Pittsburgh Sleep Quality Index (PSQI) False Parkinson's Disease Parkinson's Disease
C09601 Brief Psychiatric Rating Scale (BPRS) - halluncinatory behavior score

The score of the participant's/subject's hallucinatory, as part of the Brief Psychiatric Rating Scale (BPRS) form.

 Supplemental Brief Psychiatric Rating Scale (BPRS) False Parkinson's Disease Parkinson's Disease
C15545 Gene nucleotide change name

In cases of an genetic variant or mutation, specify the nucleotide name

 Supplemental Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C10050 Mini Nutritional Assessment (MNA) - pressure sore ulcer indicator

Whether the participant has any pressure sores or skin ulcers as part of MNA form

 Supplemental Mini Nutritional Assessment (MNA) True Parkinson's Disease Parkinson's Disease
C08033 Medication anti-Parkinsonian during procedure indicator

Indicator of whether the participant/subject was on anti-Parkinsonian medication(s) during the surgical procedure

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C20428 Beck Depression Inventory II (BDI-II) - Self-criticalness scale

Scale identifying level of self-criticalness, as part of the Beck Depression Inventory II (BDI-II)

 Supplemental Beck Depression Inventory II (BDI-II) True Parkinson's Disease Parkinson's Disease
C07457 Ohio State TBI Method Short Form (OSUTBIMS) - identification method person hit indicator

Number and cause of injuries to head or neck that which subject endured from a fight or from being hit by someone or from being shaken as part of Ohio State TBI Method Short Form (OSUTBIMS)

 Supplemental Ohio State University TBI Identification Method Short Form True Parkinson's Disease Parkinson's Disease
C09234 Risk Factor Questionnaire (RFQ-U) - work methyl bromide use 66 onward age indicator

The indicator whether participant/subject used methyl bromide at work from age 66 onward as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Parkinson's Disease Parkinson's Disease
C08098 Influenza vaccine received frequency type

Type of frequency with which the participant/subject has received the influenza vaccine since initial vaccination

 Supplemental Infection History False Parkinson's Disease Parkinson's Disease
C09069 Risk Factor Questionnaire (RFQ-U) - work pesticide exposure mixed applied 46 55 age indicator

The indicator whether work exposure to pesticides from age 46 to 55 was through mixed or applied pesticides as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Parkinson's Disease Parkinson's Disease
C08904 Risk Factor Questionnaire (RFQ-U) - farm ranch pesticide exposure animals birth 25 age indicator

The indicator whether participant/subject exposed to pesticides used on livestock/farm animals while working in farming or ranching from birth to age 25 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Parkinson's Disease Parkinson's Disease
C09194 Risk Factor Questionnaire (RFQ-U) - greenhouse work 66 onward age indicator

The indicator whether participant/subject worked in a nursery/greenhouse from age 66 onward as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Parkinson's Disease Parkinson's Disease
C08544 Risk Factor Questionnaire (RFQ) - age year started aspirin value

Age/year the participant started regularly taking aspirin as part of the Risk Factor Questionnaire for Nonsteroidal Anti-Inflammatory Drugs (NSAIDS) and Calcium Channel Blockers (CCB)

 Supplemental Risk Factor Questionnaire (RFQ) - NSAIDS and Calcium Channel Blockers (CCB) True Parkinson's Disease Parkinson's Disease
C09029 Risk Factor Questionnaire (RFQ-U) - days year work pesticide exposure 36 45 age frequency

The number of days with pesticide exposure during years with job with pesticide exposure from age 36 to 45 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticide (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Parkinson's Disease Parkinson's Disease
C10296 Quality of Life in Swallowing Disorders (SWAL-QOL) - figuring out eating problem indicator

Scale assessing how true the following statement has been for the participant during the last month: Figuring out what I can and can't eat is a problem for me. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)

 Supplemental Quality of Life in Swallowing Disorders (SWAL-QOL) True Parkinson's Disease Parkinson's Disease
C08807 Risk Factor Questionnaire (RFQ) - Stopped working around metal dust or fumes value

Age/year the participant stopped working around metal dust or fumes as part of the Risk Factor Questionnaire for Toxicants

 Supplemental Risk Factor Questionnaire (RFQ) - Toxicants True Parkinson's Disease Parkinson's Disease
Displaying 176 - 200 of 2446

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.