CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C59090	Deep brain stimulation indication type other text	The free-text field related to 'Deep brain stimulation indication type', specifying other text. Type of indications for deep brain stimulation (DBS)	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
C14517	Device manufacturer name	The company responsible for development of the device	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
C59124	Device model name	The name of the model of the device	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
C59020	Diagnosis certainty category	Category of the clinician's certainty of the medical diagnosis of the disease or disorder	Core	Medical History of Parkinson's Disease	False	Parkinson's Disease	Parkinson's Disease
C08007	Diagnosis first given date and time	Date (and time if applicable and known) the participant/subject was initially diagnosed with the disease or disorder	Core	Medical History of Parkinson's Disease	False	Parkinson's Disease	Parkinson's Disease
C59075	Diagnosis Parkinsons disease support sign status	Status of the sign supportive of Parkinsons disease diagnosis	Supplemental-Highly Recommended	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
C59074	Diagnosis Parkinsons disease support sign type	Type of sign supportive of Parkinsons disease diagnosis	Supplemental-Highly Recommended	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
C59061	Diagnosis primary clinical parkinsonism status	Status of the primary clinical parkinsonism diagnosis	Supplemental-Highly Recommended	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
C59059	Diagnosis primary clinical parkinsonism type	Type of primary clinical parkinsonism diagnosis	Supplemental-Highly Recommended	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
C59060	Diagnosis primary clinical parkinsonism type other text	The free-text field related to 'Diagnosis primary clinical parkinsonism type', specifying other text. Type of primary clinical parkinsonism diagnosis	Supplemental-Highly Recommended	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
C08009	Diagnostic feature criterion presence status	Status of diagnostic feature or criterion observed during clinical assessment of the participant/subject	Core	Medical History of Parkinson's Disease	False	Parkinson's Disease	Parkinson's Disease
C08008	Diagnostic feature criterion type	Type of diagnostic feature or criterion assessed in the participant/subject.	Core	Medical History of Parkinson's Disease	False	Parkinson's Disease	Parkinson's Disease
C10179	Diffusion Capacity Corrected measurement	Diffusion Capacity Corrected (DLCO CORR) = A correction for predicted value is made using patients Hemoglobin	Supplemental	Other Non-Motor Guidance for CDE Use	False	Parkinson's Disease	Parkinson's Disease
C10178	Diffusion Capacity Uncorrected measurement	Diffusion Capacity Uncorrected (DLCO UNC) = Participant/subject is asked to take a deep breath of air containing known concentration of carbon monoxide and to hold it for 10 seconds. The terminal (alveolar air) portion of expiration is collected to measure	Supplemental	Other Non-Motor Guidance for CDE Use	False	Parkinson's Disease	Parkinson's Disease
C59079	DNA known variant description text	The free-text field describing the presence or absence of known variant(s) in subject's/participant's DNA	Supplemental-Highly Recommended	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
C59078	DNA known variant status	Status of known variant(s) in subject's/participant's DNA	Supplemental-Highly Recommended	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
C59097	Dopamine agonist specify text	The free-text field to specify the dopamine agonist taken by the participant/subject	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
C09638	Drooling Severity and Frequency Scale (DSFS) - drool frequency scale	Scale of how frequent the subject drools	Supplemental	Drooling Severity and Frequency Scale (DSFS)	True	Parkinson's Disease	Parkinson's Disease
C09637	Drooling Severity and Frequency Scale (DSFS) - drool severity scale	Scale of how severe subject's drooling is	Supplemental	Drooling Severity and Frequency Scale (DSFS)	True	Parkinson's Disease	Parkinson's Disease
C08233	Drug or substance first illicit use date and time	Date (and time if applicable and known) the participant/subject first used the category of illegal drugs, prescription or over-the-counter drugs	Supplemental	Non-prescribed Drug Use Questionnaire	False	Parkinson's Disease	Parkinson's Disease
C00716	Drug or substance illicit use duration	Duration, in years, the participant/subject has used unprescribed, controlled psychoactive drugs or substances	Supplemental	Non-prescribed Drug Use Questionnaire	False	Parkinson's Disease	Parkinson's Disease
C08232	Drug or substance illicit use ever indicator	Indicator of participant's/subject's use of illegal drugs, prescription or over-the-counter drugs at any point in his/her lifetime for purposes other than those for which they are meant to be used, or in large amounts	Supplemental	Non-prescribed Drug Use Questionnaire	False	Parkinson's Disease	Parkinson's Disease
C08235	Drug or substance illicit use frequency	The subject's/participant's average or typical use frequency during the year of greatest use of an unprescribed, controlled psychoactive drugs or substances used by the participant/subject	Supplemental	Non-prescribed Drug Use Questionnaire	False	Parkinson's Disease	Parkinson's Disease
C08234	Drug or substance last illicit use date and time	Date (and time if applicable and known) of the participant's/subject's last use of an unprescribed, controlled psychoactive drugs or substances used by the participant/subject	Supplemental	Non-prescribed Drug Use Questionnaire	False	Parkinson's Disease	Parkinson's Disease
C59585	Dyskinesia troublesome month duration	Duration in months of troublesome dyskinesias at the time of surgery	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease

Displaying 176 - 200 of 2446

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.