CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 151 - 175 of 759
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C09304 Apathy Scale (AS) - Condition concern scale

The scale related to subject's concern for ones own condition, as part of the Apathy Scale (AS) form

Supplemental-Highly Recommended Apathy Scale (AS) Parkinson's Disease Parkinson's Disease
C59026 Imaging radio frequency coil manufacturer name other text

The free-text field related to 'Imaging radio frequency coil manufacturer name', specifying other text. Name of the manufacturer of the radio frequency (RF) coil used for the imaging scan

Supplemental-Highly Recommended MRI and Spectroscopy Parkinson's Disease Parkinson's Disease
C08516 36-item Short Form Health Survey (SF-36) - Difficulty work activities physical health indicator

Indicator for surveyee-reported difficulty performing work or other activities as a result of physical health during past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Supplemental-Highly Recommended Short Form 36-Item Health Survey (SF-36) Parkinson's Disease Parkinson's Disease
C09312 Apathy Scale (AS) - Start task ability no prompt scale

The scale related to subject's ability to start tasks without prompting, as part of the Apathy Scale (AS) form

Supplemental-Highly Recommended Apathy Scale (AS) Parkinson's Disease Parkinson's Disease
C59038 Medication Parkinsons disease last dose date time

Time (and date, if applicable and known) of most recent Parkinson's disease medication dose

Supplemental-Highly Recommended MRI and Spectroscopy Parkinson's Disease Parkinson's Disease
C08524 36-item Short Form Health Survey (SF-36) - Times nervous score

Score of times being a very nervous person during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Supplemental-Highly Recommended Short Form 36-Item Health Survey (SF-36) Parkinson's Disease Parkinson's Disease
C08244 Imaging slice thickness value

Value of the thickness of the slice measured in millimeters (mm)

Supplemental-Highly Recommended PET-SPECT Localization Parkinson's Disease Parkinson's Disease
C08532 36-item Short Form Health Survey (SF-36) - Times interfered social physical or emotional score

Score of times physical health or emotional problems interfered with social activities (like visiting with friends, relatives, etc) during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Supplemental-Highly Recommended Short Form 36-Item Health Survey (SF-36) Parkinson's Disease Parkinson's Disease
C02498 Imaging scanner software version number text

Free-text field specifying the version number of the imaging scanner software

Supplemental-Highly Recommended MRI and Spectroscopy Parkinson's Disease Parkinson's Disease
C10408 Scale for Outcomes of Parkinsons disease (SCOPA) - sleep night little sleep past month scale

Pre-specified scales for too little sleep at night in the past month

Supplemental-Highly Recommended Scale for Outcomes in Parkinson's Disease-Sleep (SCOPA-SLEEP) Parkinson's Disease Parkinson's Disease
C08637 Risk Factor Questionnaire (RFQ) - longest occupation over 65 year second duty text

Text describing the participant's/subject's second of four major tasks or duties at the longest held occupation from the age of 66+ years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation

Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status Parkinson's Disease Parkinson's Disease
C59045 Imaging pre-scan procedure type carbidopa specify text

The free-text field related to 'Imaging pre-scan procedure type', specifying Carbidopa details. Type(s) of pre-scan procedures administered to the participant/subject

Supplemental-Highly Recommended PET-SPECT Localization Parkinson's Disease Parkinson's Disease
C59175 Brain donation register indicator

Indicator of whether the participant/subject has registered for brain donation

Supplemental-Highly Recommended Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C56035 Genetic test result source type other text

The free-text field related to 'Genetic test result source type', specifying other text. Type of source of the participant's genetic test results

Supplemental-Highly Recommended Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C08625 Risk Factor Questionnaire (RFQ) - longest occupation 46 55 year text

Text describing the participant's/subject's longest held occupation from the age of 46-55 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation

Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status Parkinson's Disease Parkinson's Disease
C08585 Risk Factor Questionnaire (RFQ) - military service indicator

The indicator as to whether or not the participant/subject has ever been active in the military as part of the Risk Factor Questionnaire (RFQ) - Occupation

Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status Parkinson's Disease Parkinson's Disease
C02016 Medication prior or concomitant start date and time

The date (and time, if applicable and known) on which the prior/concomitant medication usage began

Supplemental-Highly Recommended Parkinson's Disease Medication Log Parkinson's Disease Parkinson's Disease
C59077 Genetic test result participant inform source type

Type of source that informed the participant of the genetic test results

Supplemental-Highly Recommended Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C16198 Biological sample in repository consent form signed indicator

Indicates whether the participant provided signed informed consent for the biological sample collection and storage in a repository

Supplemental-Highly Recommended Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C20527 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Self-care category

Category determining the extent to which the participant has problems with self-care, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

Supplemental-Highly Recommended EuroQoL-5 Dimension Questionnaire (EQ-5D) Parkinson's Disease Parkinson's Disease
C08593 Risk Factor Questionnaire (RFQ) - military service combat indicator

The indicator as to whether the participant/subject was ever in combat as part of the Risk Factor Questionnaire (RFQ) - Occupation

Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status Parkinson's Disease Parkinson's Disease
C18048 Imaging visual analysis blinded other text

Specify in text whether the visual analysis of imaging was performed blinded to clinical data if the answer is not listed above

Supplemental-Highly Recommended PET-SPECT Localization Parkinson's Disease Parkinson's Disease
C10500 Symptom onset age value

Age when symptoms first experienced

Supplemental-Highly Recommended Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C54700 Epworth Sleepiness Scale (ESS) - Doze off likelihood car passenger code

The code denoting the subect/participant's self-reported likelihood of dozing off while a passenger in a car, as part of the Epworth Sleepiness Scale (ESS)

Supplemental-Highly Recommended Epworth Sleepiness Scale (ESS) - Adult Version Parkinson's Disease Parkinson's Disease
C08601 Risk Factor Questionnaire (RFQ) - military service prisoner of war length value

The time the participant/subject was a prisoner of war as part of the Risk Factor Questionnaire (RFQ) - Occupation

Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status Parkinson's Disease Parkinson's Disease
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.