CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Displaying 151 - 175 of 2446
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C18605 Unified Parkinson's Disease Rating Scale (UPDRS) - Heart rate seated measurement

Measurement of participant's/subject's heart rate when seated

Core Unified Parkinson's Disease Rating Scale (UPDRS) Parkinson's Disease Parkinson's Disease
C09904 Unified Parkinson's Disease Rating Scale (UPDRS) - facial scale

Subjects facial expression flexibility as part of Unified Parkinsons Disease Rating Scale (UPDRS)

Core Unified Parkinson's Disease Rating Scale (UPDRS) Parkinson's Disease Parkinson's Disease
C09912 Unified Parkinson's Disease Rating Scale (UPDRS) - arise from chair scale

Subject's ability to arise from chair as part of Unified Parkinsons Disease Rating Scale (UPDRS)

Core Unified Parkinson's Disease Rating Scale (UPDRS) Parkinson's Disease Parkinson's Disease
C09963 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - apathy score

Score for the participant's/subject's apathy, considering the level of spontaneous activity, assertiveness, motivation and initiative and how it affects the performance of daily routines, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Parkinson's Disease Parkinson's Disease
C09920 Unified Parkinson's Disease Rating Scale (UPDRS) - early morning dystonia scale

Indicator of whether or not the subject has early morning dystonia as part of Unified Parkinsons Disease Rating Scale (UPDRS)

Core Unified Parkinson's Disease Rating Scale (UPDRS) Parkinson's Disease Parkinson's Disease
C09971 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - light headedness on stand score

Score for the participant's/subject's level of light headedness when standing, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Parkinson's Disease Parkinson's Disease
C17405 Family history relative type neurological disorder not parkinsonian count

Count of family members and ancestors, for the specified relative type, with a neurological disorder(s) other than Parkinson's Disease or Parkinsonism

Core Family History Parkinson's Disease Parkinson's Disease
C09928 Unified Parkinson's Disease Rating Scale (UPDRS) - Modified Hoen Yahr Stage

Modified Hoehn and Yahr Stages

Core Unified Parkinson's Disease Rating Scale (UPDRS) Parkinson's Disease Parkinson's Disease
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

Core Medical History of Parkinson's Disease Parkinson's Disease Parkinson's Disease
C18597 Unified Parkinson Disease Rating Scale (UPDRS) - right upper extremity rigidity scale

Subject's rigidity in the right upper extremity as judged on passive movement of major joints with patient relaxed in sitting position as part of Unified Parkinsons Disease Rating Scale (UPDRS)

Core Unified Parkinson's Disease Rating Scale (UPDRS) Parkinson's Disease Parkinson's Disease
C10021 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - rest tremor amplitude lip jaw score

Score for the participant's/subject's lip and jaw rest tremor amplitude, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Parkinson's Disease Parkinson's Disease
C09981 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - turn bed score

Score for the participant's/subject's ability to turn in bed, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Parkinson's Disease Parkinson's Disease
C10029 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - percent dyskinesia value

Value of the percent of time the participant/subject has dyskinesia, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Parkinson's Disease Parkinson's Disease
C09989 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - last levodopa dose time

Duration of time, in minutes, since the participant/subject last took Levodopa, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Parkinson's Disease Parkinson's Disease
C10037 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - painful off state dystonia score

Score for the participant's/subject's level of painful off-state dystonia, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Parkinson's Disease Parkinson's Disease
C09997 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - finger tap right hand score

Score for the participant's/subject's ability to tap the right hand fingers evaluating the speed, amplitude, hesitations, halts and decrementing amplitude, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Parkinson's Disease Parkinson's Disease
C09890 Unified Parkinson's Disease Rating Scale (UPDRS) - speech scale

Subjects level of speech impairment as part of Unified Parkinsons Disease Rating Scale (UPDRS)

Core Unified Parkinson's Disease Rating Scale (UPDRS) Parkinson's Disease Parkinson's Disease
C10005 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - leg agility right leg score

Score for the participant's/subject's right leg agility evaluating speed, amplitude, hesitations, halts and decrementing amplitude

Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Parkinson's Disease Parkinson's Disease
C09898 Unified Parkinson's Disease Rating Scale (UPDRS) - fall scale

Subjects frequency to fall as part of Unified Parkinsons Disease Rating Scale (UPDRS)

Core Unified Parkinson's Disease Rating Scale (UPDRS) Parkinson's Disease Parkinson's Disease
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

Core Demographics Parkinson's Disease Parkinson's Disease
C10013 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - postural tremor right hand score

Score for the participant's/subject's level of postural tremor of the right hand observing the highest amplitude seen, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Parkinson's Disease Parkinson's Disease
C09491 Scale for the Assessment of Positive Symptoms (SAPS) - global rating of severity of bizarre behavior scale

Subject's global rating of severity of bizarre behavior, as part of the Scale For The Assessment of Positive Symptoms (SAPS)- Aggressive Agitated Behavior indicator

Supplemental Scale for the Assessment of Positive Symptoms (SAPS) Parkinson's Disease Parkinson's Disease
C08647 Risk Factor Questionnaire (RFQ) - age 26 35 moderate physical activity indicator

Hours spent doing moderate physical activities by the subject in a week between the ages of 26 and 35, as part of the Risk Factor Questionnaire (RFQ)

Supplemental Risk Factor Questionnaire (RFQ) - Physical Activity and Sleep Parkinson's Disease Parkinson's Disease
C08724 Risk Factor Questionnaire (RFQ) - age 66 and over residential history residence zip code number

Number specifying the participant's/subject's zip code of residence from 66+ years of age

Supplemental Risk Factor Questionnaire (RFQ) - Residential History Parkinson's Disease Parkinson's Disease
C09418 Rome III Constipation Module (RCM3) - bothersome belch start more 6 month indicator

The indicator for whether the bothersome belching started more than 6 months ago, as a part of Rome III Constipation Module (RCM3)

Supplemental Rome III/IV Constipation Module Parkinson's Disease Parkinson's Disease
Displaying 151 - 175 of 2446

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.