CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2952-C59130	C59130	Stimulation brain parameter negative contact text	Text related to negative contact brain stimulation parameters	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2955-C19605	C19605	Genetic test mitochondrial DNA variant mutation quantitative analysis evaluation method type	Type of evaluation method in quantitative analysis for mitochondrial DNA variant or mutation	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2952-C18763	C18763	Surgical complication post-operative type other text	The free-text field related to 'Surgical complications post-operative type', specifying other text. Type of post-operative surgical complications experienced by the participant/subject	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F3042-C09587	C09587	Brief Pain Inventory (BPI) - pain relations interference scale	Scale assessing how much the pain has interfered with relations with other people, as part of the Brief Pain Inventory (BPI) form	Supplemental	Brief Pain Inventory (BPI) Short Form	True	Parkinson's Disease	Parkinson's Disease
F2955-C12800	C12800	Gene missense nonsense variant point mutation insertion deletion type	Type of the insertion deletion of the missense/nonsense variant or point mutation	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2951-C59057	C59057	Imaging amyloid centiloid anatomic site	Anatomic site(s) for which quantitative estimations of amyloid plaque obtained by imaging were recorded using, or were scaled to, the Centiloid scale.	Supplemental	PET-SPECT Localization	False	Parkinson's Disease	Parkinson's Disease
F2945-C59063	C59063	Birth weight source	Source of the participant's/subject's birth weight data	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
F3043-C20358	C20358	Pittsburgh Sleep Quality Index (PSQI) - Awaken bathroom use past month scale	The scale to which the subject had to get up to use the bathroom during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Parkinson's Disease	Parkinson's Disease
F2955-C12808	C12808	Gene sequenced with no variant mutation indicator	Indicator of whether there are additional genes sequenced with no variants or mutations detected	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2952-C08018	C08018	Surgery age value	Age of the participant/subject at the time of the selected surgical procedure	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F3041-C20423	C20423	Beck Depression Inventory II (BDI-II) - Past failure scale	Scale identifying level of past failure, as part of the Beck Depression Inventory II (BDI-II)	Supplemental	Beck Depression Inventory II (BDI-II)	True	Parkinson's Disease	Parkinson's Disease
F2945-C59071	C59071	Shave facial hair regular begin age category	Categorization of the age at which the participant/subject began to regularly shave facial hair. Regular shaving is defined as once a week or more	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
F3043-C20366	C20366	Pittsburgh Sleep Quality Index (PSQI) - Trouble stay awake past month scale	The scale to which the subject had trouble staying awake while driving, eating meals, or engaging in social activity past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Parkinson's Disease	Parkinson's Disease
F2952-C08036	C08036	Stereotactic surgery mini-frame type	Type of mini-frame used for surgery. A mini-frame is a simpler and smaller support for stereotactic surgery; used mainly in image-guided surgery	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F3041-C20431	C20431	Beck Depression Inventory II (BDI-II) - Pessimism scale	Scale identifying level of pessimism, as part of the Beck Depression Inventory II (BDI-II)	Supplemental	Beck Depression Inventory II (BDI-II)	True	Parkinson's Disease	Parkinson's Disease
F2946-C08101	C08101	Pneumonia episode hospitalization indicator	Indicator of whether the participant/subject was hospitalized for the pneumonia episode	Supplemental	Infection History	False	Parkinson's Disease	Parkinson's Disease
F0796-C10422	C10422	Sialorrhea Clinical Scale for PD (SCS-PD) - social saliva score	When you go out or on social occasions, does saliva accumulation bother you? As part of SCS-PD questionnaire	Supplemental	Sialorrhea Clinical Scale for Parkinson's Disease (SCS-PD)	False	Parkinson's Disease	Parkinson's Disease
F3043-C20374	C20374	Pittsburgh Sleep Quality Index (PSQI) - Other reason past month other text	The free-text entry for other reason(s) the subject reported having trouble sleeping in the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Parkinson's Disease	Parkinson's Disease
F2955-C17893	C17893	Gene missense nonsense variant point mutation location other text	The free-text field about missense/nonsense variant or point mutation at locations other than the exon and intron	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2952-C08046	C08046	Medication anti-Parkinsonian reduced after surgery indicator	Indicator of whether anti-Parkinsonism medication(s) were reduced following optimization (X weeks after surgery)	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F3041-C20439	C20439	Beck Depression Inventory II (BDI-II) - Concentration difficulty scale	Scale identifying level of difficulty concentrating, as part of the Beck Depression Inventory II (BDI-II)	Supplemental	Beck Depression Inventory II (BDI-II)	True	Parkinson's Disease	Parkinson's Disease
F2947-C08233	C08233	Drug or substance first illicit use date and time	Date (and time if applicable and known) the participant/subject first used the category of illegal drugs, prescription or over-the-counter drugs	Supplemental	Non-prescribed Drug Use Questionnaire	False	Parkinson's Disease	Parkinson's Disease
F2955-C12690	C12690	Gene name	Name of the gene analyzed	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2945-C08079	C08079	Full biological brothers count	Count of full biological brothers the participant/subject has	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
F0803-C09597	C09597	Brief Psychiatric Rating Scale (BPRS) - grandiosity score	The score of the participant's/subject's grandiosity, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Supplemental	Brief Psychiatric Rating Scale (BPRS)	False	Parkinson's Disease	Parkinson's Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.