CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 76 - 100 of 2446
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C08005 Family history relative type Parkinsons disease parkinsonism other neurological disorder member count

Count of family members and ancestors, for the specified relative type, with Parkinson's disease (PD) or Parkinsonism and other neurological disorder(s)

 Core Family History False Parkinson's Disease Parkinson's Disease
C09927 Unified Parkinson's Disease Rating Scale (UPDRS) - symptomatic orthostasis indicator

Indicator of whether or not the patient has symptomatic orthostasis as part of Unified Parkinsons Disease Rating Scale (UPDRS)

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C09965 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - questionnaire information provider type

The type as related to the provider of the participant's/subject's information, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C00314 Medical history taken date and time

Date (and time, if applicable and known) the participant/subject's medical history was taken

 Core Medical History of Parkinson's Disease False Parkinson's Disease Parkinson's Disease
C18596 Unified Parkinson Disease Rating Scale (UPDRS) - left hand action tremor scale

Subject's action or postural tremor of participant's left hand as part of Unified Parkinsons Disease Rating Scale (UPDRS)

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C09973 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - speech score

Score for the participant's/subject's level of speech, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C18604 Unified Parkinson Disease Rating Scale (UPDRS) - left leg agility scale

Subject's level of left leg agility as part of Unified Parkinsons Disease Rating Scale (UPDRS)

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C09903 Unified Parkinson's Disease Rating Scale (UPDRS) - speech ability scale

Subjects motor speech ability as part of Unified Parkinsons Disease Rating Scale (UPDRS)

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C09911 Unified Parkinson's Disease Rating Scale (UPDRS) - right leg agility scale

Subject's level of right leg agility as part of Unified Parkinsons Disease Rating Scale (UPDRS)

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C09919 Unified Parkinson's Disease Rating Scale (UPDRS) - dyskinesia pain scale

Subject's pain intensity due to dyskinesias as part of Unified Parkinsons Disease Rating Scale (UPDRS)

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C10036 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - complexity motor fluctuation score

Score for the participant's/subject's level of complex motor fluctuations, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C09996 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - left lower extremity rigid score

Score for the participant's/subject's lower left extremities rigidity, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C09889 Unified Parkinson's Disease Rating Scale (UPDRS) - motivation scale

Subjects level of motivation and initiative as part of Unified Parkinsons Disease Rating Scale (UPDRS)

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C10004 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - left foot toe tap score

Score for the participant's/subject's ability to tap the left foot toes evaluating speed, amplitude, hesitations, halts and decrementing amplitude, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C09897 Unified Parkinson's Disease Rating Scale (UPDRS) - hygiene bed scale

Subjects ability to turn in bed and adjust bed clothes as part of Unified Parkinsons Disease Rating Scale (UPDRS)

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

 Core Demographics False Parkinson's Disease Parkinson's Disease
C10012 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - global spontaneity of movement score

Score for the participant's/subject's level of global spontaneity of movement observing the slowness, hesitancy, and small amplitude and poverty of movement in general

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C10020 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - rest tremor amplitude left lower extremity score

Score for the participant's/subject's left lower extremities rest tremor amplitude, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C09980 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - hobby other activity score

Score for the participant's/subject's ability to perform hobbies or other activities, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C10028 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - total hours with dyskinesia number

Number of total number of hours the participant/subject has dyskinesia, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C09988 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - patient use levodopa indicator

Indicator for whether the participant/subject is taking Levodopa, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C09958 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - primary source information type

The type as related to the primary source of information for the participant's/subject's information, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
C17405 Family history relative type neurological disorder not parkinsonian count

Count of family members and ancestors, for the specified relative type, with a neurological disorder(s) other than Parkinson's Disease or Parkinsonism

 Core Family History False Parkinson's Disease Parkinson's Disease
C09928 Unified Parkinson's Disease Rating Scale (UPDRS) - Modified Hoen Yahr Stage

Modified Hoehn and Yahr Stages

 Core Unified Parkinson's Disease Rating Scale (UPDRS) True Parkinson's Disease Parkinson's Disease
C09966 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - sleep problem score

Score for the participant's/subject's ability to sleep considering how rested he or she felt waking up in the morning, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS)

 Core Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) True Parkinson's Disease Parkinson's Disease
Displaying 76 - 100 of 2446

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.