CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 701 - 725 of 749
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C18700 Imaging matrix size value other text

The free-text field related to 'Imaging matrix size value', specifying other text. Value representing the imaging matrix size in millimeters

Supplemental-Highly Recommended PET-SPECT Localization Parkinson's Disease Parkinson's Disease
C08505 36-item Short Form Health Survey (SF-36) - Health limited carrying groceries score

Score of surveyee-reported limited lifting or carrying groceries due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Supplemental-Highly Recommended Short Form 36-Item Health Survey (SF-36) Parkinson's Disease Parkinson's Disease
C09315 Apathy Scale (AS) - total score

Total Score on the apathy scale, as part of the Apathy Scale (AS) form

Supplemental-Highly Recommended Apathy Scale (AS) Parkinson's Disease Parkinson's Disease
C16194 Biological sample in repository indicator

Indicates whether participant had a biological sample or specimen drawn and banked in a repository

Supplemental-Highly Recommended Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C09301 Apathy Scale (AS) - Learn eagerness scale

The scale related to subject's eagerness to learn new things, as part of the Apathy Scale (AS) form

Supplemental-Highly Recommended Apathy Scale (AS) Parkinson's Disease Parkinson's Disease
C59179 Medication prior or concomitant suppository route type

Type of access route for the administration of the prior/concomitant medication in suppository dosage form

Supplemental-Highly Recommended Parkinson's Disease Medication Log Parkinson's Disease Parkinson's Disease
C18716 Imaging scanner manufacturer name other text

The free-text field related to 'Imaging scanner manufacturer name', specifying other text. Name of manufacturer of imaging scanner

Supplemental-Highly Recommended PET-SPECT Localization Parkinson's Disease Parkinson's Disease
C08513 36-item Short Form Health Survey (SF-36) - Cut time on work activities physical health indicator

Indicator for surveyee-reported cut down time on work or other activities as a result of physical health during past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Supplemental-Highly Recommended Short Form 36-Item Health Survey (SF-36) Parkinson's Disease Parkinson's Disease
C09309 Apathy Scale (AS) - Motivation scale

The scale related to the subject's self motivation, as part of the Apathy Scale (SC) form

Supplemental-Highly Recommended Apathy Scale (AS) Parkinson's Disease Parkinson's Disease
C59038 Medication Parkinsons disease last dose date time

Time (and date, if applicable and known) of most recent Parkinson's disease medication dose

Supplemental-Highly Recommended PET-SPECT Localization Parkinson's Disease Parkinson's Disease
C08521 36-item Short Form Health Survey (SF-36) - Bodily pain score

Score of bodily pain during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Supplemental-Highly Recommended Short Form 36-Item Health Survey (SF-36) Parkinson's Disease Parkinson's Disease
C19516 Blood sample repository name

Name of repository to which the participant gave a blood sample

Supplemental-Highly Recommended Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C08617 Risk Factor Questionnaire (RFQ) - longest occupation 26 35 year second duty text

Text describing the participant's/subject's second of four major tasks or duties at the longest held occupation from the age of 26-35 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation

Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status Parkinson's Disease Parkinson's Disease
C10404 Scale for Outcomes of Parkinsons disease (SCOPA) - sleep night trouble fall asleep past month scale

Pre-specified scales for trouble falling asleep at night in the past month

Supplemental-Highly Recommended Scale for Outcomes in Parkinson's Disease-Sleep (SCOPA-SLEEP) Parkinson's Disease Parkinson's Disease
C08265 Imaging attenuation correction method type

Type of method to correct for different tissues density when analyzing the image

Supplemental-Highly Recommended PET-SPECT Localization Parkinson's Disease Parkinson's Disease
C10685 Imaging slice orientation type

Type of slice orientation used in imaging acquisition

Supplemental-Highly Recommended MRI and Spectroscopy Parkinson's Disease Parkinson's Disease
C08625 Risk Factor Questionnaire (RFQ) - longest occupation 46 55 year text

Text describing the participant's/subject's longest held occupation from the age of 46-55 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation

Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status Parkinson's Disease Parkinson's Disease
C08585 Risk Factor Questionnaire (RFQ) - military service indicator

The indicator as to whether or not the participant/subject has ever been active in the military as part of the Risk Factor Questionnaire (RFQ) - Occupation

Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status Parkinson's Disease Parkinson's Disease
C20247 Imaging scanner model name text

The free-text field related to name of model of imaging scanner

Supplemental-Highly Recommended MRI and Spectroscopy Parkinson's Disease Parkinson's Disease
C59059 Diagnosis primary clinical parkinsonism type

Type of primary clinical parkinsonism diagnosis

Supplemental-Highly Recommended Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C08593 Risk Factor Questionnaire (RFQ) - military service combat indicator

The indicator as to whether the participant/subject was ever in combat as part of the Risk Factor Questionnaire (RFQ) - Occupation

Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status Parkinson's Disease Parkinson's Disease
C59035 Imaging echo count

Count of echoes for multiecho method used in image acquisition

Supplemental-Highly Recommended MRI and Spectroscopy Parkinson's Disease Parkinson's Disease
C59079 DNA known variant description text

The free-text field describing the presence or absence of known variant(s) in participant's DNA

Supplemental-Highly Recommended Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C08601 Risk Factor Questionnaire (RFQ) - military service prisoner of war length value

The time the participant/subject was a prisoner of war as part of the Risk Factor Questionnaire (RFQ) - Occupation

Supplemental-Highly Recommended Risk Factor Questionnaire (RFQ) - Occupation and Employment Status Parkinson's Disease Parkinson's Disease
C20531 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Pain discomfort category

Category determining the extent to which the participant has problems with pain or discomfort category, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

Supplemental-Highly Recommended EuroQoL-5 Dimension Questionnaire (EQ-5D) Parkinson's Disease Parkinson's Disease
Displaying 701 - 725 of 749

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.