CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 651 - 675 of 749
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C10183 Thermoregulatory sweat test 30 minutes elapsed room temperature value

Temperature of the room which induced the participant/subject to sweat for 30 minutes during the Thermoregulatory Sweat Test (TST)

Supplemental Other Non-Motor Guidance for CDE Use Parkinson's Disease Parkinson's Disease
C18679 Family history medical condition relative type other text

The free-text field related to 'Family history medical condition relative type', specifying other text. Relationship of the family member or ancestor with the medical condition or health related event to the participant

Supplemental Family History Parkinson's Disease Parkinson's Disease
C59096 L-Dopa pre-operative challenge off dopamine agonist duration

Duration in hours the participant/subject was off of dopamine agonists as part of the pre-operative L-Dopa challenge

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C59030 Family history relative type psychiatric disorder member count

Count of family members and ancestors, for the specified relative type, with a psychiatric disorder(s)

Supplemental Family History Parkinson's Disease Parkinson's Disease
C59070 Shave facial hair regular begin age value

The age at which the participant/subject began to regularly shave facial hair. Regular shaving is defined as once a week or more

Supplemental History of Early Exposure Parkinson's Disease Parkinson's Disease
C07441 Patient Health Questionnaire (PHQ) - Difficulty performing scale

The scale related to how difficult it is to do work, take care of things at home, or get along with other people for the subject, as part of the Patient Health Questionnaire (PHQ)

Supplemental Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Parkinson's Disease Parkinson's Disease
C59152 Implantable pulse generator remove count

Count of implantable pulse generators (IPGs) removed

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C59107 Surgery head fixation text

The free-text field to specify the head fixation to the operating room table used for the subject/participant during surgery

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C08100 Pneumonia episode age value

Participant's/subject's age at the time of the pneumonia episode

Supplemental Infection History Parkinson's Disease Parkinson's Disease
C59162 Lead extender replacement reason other text

The free-text field related to 'Lead extender replacement reason', specifying other text. The reason the lead extender was replaced

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C59114 Genetic study data sample category type

Type of sample category data expected for the genetics study

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C59118 Brain lead type

Type of brain lead inserted

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C08232 Drug or substance illicit use ever indicator

Indicator of participant's/subject's use of illegal drugs, prescription or over-the-counter drugs at any point in his/her lifetime for purposes other than those for which they are meant to be used, or in large amounts

Supplemental Non-prescribed Drug Use Questionnaire Parkinson's Disease Parkinson's Disease
C08078 Full biological sisters count

Count of full biological sisters the participant/subject has

Supplemental History of Early Exposure Parkinson's Disease Parkinson's Disease
C59590 Anterior commissure posterior commissure target z coordinate value

Stereotactic z coordinate with respect to anterior and posterior commissure (brain nuclei)

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C59165 Genotype platform probe count

Count of probes for the genotype platform

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C59127 Pulse generator sensing function indicator

Indicator of whether the pulse generator inserted has sensing function

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C17687 Non-prescribed controlled psychoactive drug substance sedative barbiturate text

The text specifying the drugs within the 'Sedatives-barbiturates and others: phenobarbital, Seconol, Nembutal, Dorieden, Quaalude, Amytal, Fiorinal, downers,' category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject

Supplemental Non-prescribed Drug Use Questionnaire Parkinson's Disease Parkinson's Disease
C08108 Preschool attendance indicator

Indicator of whether the participant/subject attended preschool as a child

Supplemental History of Early Exposure Parkinson's Disease Parkinson's Disease
C59054 Imaging quantitative outcome dopamine transporter radioligand type

Type of dopamine transporter (DAT) radioligand used for the quantitative imaging outcome to describe tracer distribution and uptake for the imaging data analysis being documented.

Supplemental PET-SPECT Localization Parkinson's Disease Parkinson's Disease
C58780 Birth sex assigned type other text

The free-text field related to 'Birth sex assigned type', specifying other text

Supplemental General Core Parkinson's Disease Parkinson's Disease
C20355 Pittsburgh Sleep Quality Index (PSQI) - Feel hot past month scale

The scale to which the subject felt too hot during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Parkinson's Disease Parkinson's Disease
C12805 Gene mRNA variant mutation name

Name using the Human Genome Organisation (HUGO) variant or mutation nomenclature of the messenger ribonucleic acid (mRNA) variant or mutation

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C59040 Medication prior use report duration

Duration in days prior to the study that participant/subject should report taking any medications, specified by the study protocol

Supplemental Non-Parkinson's Disease Medication Log Parkinson's Disease Parkinson's Disease
Displaying 651 - 675 of 749

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.