CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 651 - 675 of 749

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2953-C02003	C02003	Medication prior or concomitant ongoing indicator	Indicator of or description that the prior/concomitant medication usage is ongoing	Supplemental	Non-Parkinson's Disease Medication Log	False	Parkinson's Disease	Parkinson's Disease
F2952-C59129	C59129	Stimulation brain parameter contact configuration text	Text related to contact configuration brain stimulation parameters	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2955-C59166	C59166	Genotype platform URL text	The free-text field specifying the genotype platform URL (uniform resource locator)	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2953-C08216	C08216	Medication prior or concomitant total daily as needed dose measurement	Total daily dose or PRN (as needed) dose of the non-Parkinson's disease (PD) medication taken by the participant/subject	Supplemental	Non-Parkinson's Disease Medication Log	False	Parkinson's Disease	Parkinson's Disease
F2951-C08271	C08271	Imaging quantitative outcome type	Primary quantitative outcome to describe tracer distribution and uptake for the imaging data analysis	Supplemental	PET-SPECT Localization	False	Parkinson's Disease	Parkinson's Disease
F2952-C59137	C59137	Stimulation brain paradigm type	Type of brain stimulation paradigm	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2952-C59088	C59088	Deep brain stimulation indication type	Type of indications for deep brain stimulation (DBS)	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F3048-C10175	C10175	FEF25-75 percentage value	Forced expiratory flow rate between 25 to 75% of FVC (Used to be known as maximal mid expiratory flow rate)	Supplemental	Other Non-Motor Guidance for CDE Use	False	Parkinson's Disease	Parkinson's Disease
F2952-C59146	C59146	Surgical complication hemorrhage symptom status	Status of hemorrhage symptoms related to intra-operative or post-operative surgical complications	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F3028-C07433	C07433	Patient Health Questionnaire (PHQ) - Tired little energy score	Score of how much the subject has been feeling tired in the past two weeks, as part of the Patient Health Questionnaire (PHQ)	Supplemental	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Parkinson's Disease	Parkinson's Disease
F2952-C59099	C59099	Unified Parkinsons Disease Rating Scale part three on medication score	The score related to part three of the Unified Parkinson's Disease Rating Scale (UPDRS) when the participant/subject is on medications	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F3048-C10184	C10184	Thermoregulatory sweat test room temperature unit of measurement	Unit temperature is measured in for the Thermoregulatory Sweat Test (TST)	Supplemental	Other Non-Motor Guidance for CDE Use	False	Parkinson's Disease	Parkinson's Disease
F2952-C59154	C59154	Brain lead replacement manipulation count	Count of brain leads replaced or manipulated	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2952-C59109	C59109	Stereotactic surgery robotic guidance lead insert platform text	The free-text field related to the robotic guidance platform used during stereotactic surgery for lead insertion	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2949-C19529	C19529	Motor symptom parkinsonian initial type ambulatory axial difficulty abnormal posture gait other text	The free-text field related to 'Motor symptom parkinsonian initial type', specifying ambulatory/axial difficulties-other abnormality of posture or gait other text. Type(s) of initial motor symptoms of Parkinson's disease described by the participant/subject.	Supplemental	Medical History of Parkinson's Disease	False	Parkinson's Disease	Parkinson's Disease
F2955-C59084	C59084	Genetic study type	Type of genetics study conducted	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2955-C17890	C17890	Allele number one missense nonsense variant or point mutation subclass information type	Type of missense/nonsense variant or point mutation subclass information, first allele number one	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F3041-C20437	C20437	Beck Depression Inventory II (BDI-II) - Irritability scale	Scale identifying level of irritability, as part of the Beck Depression Inventory II (BDI-II)	Supplemental	Beck Depression Inventory II (BDI-II)	True	Parkinson's Disease	Parkinson's Disease
F2945-C08078	C08078	Full biological sisters count	Count of full biological sisters the participant/subject has	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
F2955-C10845	C10845	Gene screened indicator	Indicator whether the participant/subject was screened for the specific gene mutation (e.g., Superoxide dismutase 1, Fused in sarcoma, TAR DNA binding protein) commonly seen in the disease or disorder	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F0803-C09607	C09607	Brief Psychiatric Rating Scale (BPRS) - disorientation score	The score of the participant's/subject's disorientation, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Supplemental	Brief Psychiatric Rating Scale (BPRS)	False	Parkinson's Disease	Parkinson's Disease
F2952-C14517	C14517	Device manufacturer name	The company responsible for development of the device	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F3043-C20380	C20380	Pittsburgh Sleep Quality Index (PSQI) - Bed partner roommate present scale	The scale that reflects the presence of a bed partner or roommate, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Parkinson's Disease	Parkinson's Disease
F2947-C17687	C17687	Non-prescribed controlled psychoactive drug substance sedative barbiturate text	The text specifying the drugs within the 'Sedatives-barbiturates and others: phenobarbital, Seconol, Nembutal, Dorieden, Quaalude, Amytal, Fiorinal, downers,' category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject	Supplemental	Non-prescribed Drug Use Questionnaire	False	Parkinson's Disease	Parkinson's Disease
F2955-C18875	C18875	Gene targeted variant mutational analysis other text	The free-text field related to 'Gene targeted variant or mutational analysis type', specifying other text. Type of targeted variant or mutational analysis performed for the gene	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease

Displaying 651 - 675 of 749

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.