CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 576 - 600 of 749
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C59135 Stimulation brain parameter frequency value

Value of the frequency (Hz) of electric pulses (stimulation) on brain hemisphere

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C08115 Meningitis or encephalitis diagnosed type

Type of meningitis/encephalitis that participant/subject was diagnosed with

 Supplemental Infection History False Parkinson's Disease Parkinson's Disease
C58781 Gender identity type other text

The free-text field related to 'Gender identity type', specifying other text

 Supplemental Demographics False Parkinson's Disease Parkinson's Disease
C12805 Gene mRNA variant mutation name

Name using the Human Genome Organisation (HUGO) variant or mutation nomenclature of the messenger ribonucleic acid (mRNA) variant or mutation

 Supplemental Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C10177 Slow vital capacity percent of predicted normal value

Value representing the percentage of the predicted normal value of Slow Vital Capacity (sVC) to grade the severity of the abnormality, where sVC is the total amount of air that can be blown out leisurely after a maximal deep breath

 Supplemental Other Non-Motor Guidance for CDE Use False Parkinson's Disease Parkinson's Disease
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C56038 Genetic test performed other text

The free-text field specifying the other genetic test that was performed

 Supplemental Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C10416 Sialorrhea Clinical Scale for PD (SCS-PD) - day saliva score

During the day, when do you feel there is more saliva in your mouth? As part of SCS-PD questionnaire

 Supplemental Sialorrhea Clinical Scale for Parkinson's Disease (SCS-PD) False Parkinson's Disease Parkinson's Disease
C59040 Medication prior use report duration

Duration in days prior to the study that participant/subject should report taking any medications, specified by the study protocol

 Supplemental Non-Parkinson's Disease Medication Log False Parkinson's Disease Parkinson's Disease
C09346 Hamilton Anxiety Rating Scale (HAM-A) - insomnia score

The score of the participant's/subject's insomnia, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

 Supplemental Hamilton Anxiety Rating Scale (HAM-A) False Parkinson's Disease Parkinson's Disease
C07436 Patient Health Questionnaire (PHQ) - Feeling failure score

Score of how much the subject has been feeling bad for himself/herself in the past two weeks, as part of the Patient Health Questionnaire (PHQ)

 Supplemental Patient Health Questionnaire - 9 (PHQ-9) Depression Scale True Parkinson's Disease Parkinson's Disease
C15545 Gene nucleotide change name

In cases of an genetic variant or mutation, specify the nucleotide name

 Supplemental Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C10186 Videofluoroscopic swallowing study swallow effort number

Each swallow effort of the Videofluoroscopic Swallowing Study (VFSS) is numbered; first swallow effort is numbered 1, second swallow effort is numbered 2, etc

 Supplemental Other Non-Motor Guidance for CDE Use False Parkinson's Disease Parkinson's Disease
C08033 Medication anti-Parkinsonian during procedure indicator

Indicator of whether the participant/subject was on anti-Parkinsonian medication(s) during the surgical procedure

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C09591 Brief Psychiatric Rating Scale (BPRS) - anxiety score

The score of the participant's/subject's anxiety, as part of the Brief Psychiatric Rating Scale (BPRS) form.

 Supplemental Brief Psychiatric Rating Scale (BPRS) False Parkinson's Disease Parkinson's Disease
C09354 Hamilton Anxiety Rating Scale (HAM-A) - gastrointestinal symptom score

The score of the participant's/subject's gastrointestinal symptoms, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

 Supplemental Hamilton Anxiety Rating Scale (HAM-A) False Parkinson's Disease Parkinson's Disease
C17889 Gene missense nonsense variant point mutation location exon text

The free-text field about missense/nonsense variant or point mutation at the exon

 Supplemental Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C08041 Surgery lead secure method type

Type of method or device used to protect and secure the lead (part of the electrode that is introduced into the brain), this part must be safely secured and held still in position

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C59093 Database of Genotypes and Phenotypes phenotype study accession number text

The free-text field to specify the study phenotype study (phs) accession number for the database of Genotypes and Phenotypes (dbGaP) study

 Supplemental Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C09599 Brief Psychiatric Rating Scale (BPRS) - hostility score

The score of the participant's/subject's hostility, as part of the Brief Psychiatric Rating Scale (BPRS) form.

 Supplemental Brief Psychiatric Rating Scale (BPRS) False Parkinson's Disease Parkinson's Disease
C10844 Gene type

The type of gene screened in the participant/subject for the disease or disorder

 Supplemental Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C18874 Gene variant mutation category other text

The free-text field related to 'Gene variant or mutation category', specifying other text. Category of the variant or mutation detected on the gene

 Supplemental Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C08066 Surgical complication intra-operative type

Type of intra-operative surgical complications experienced by the participant/subject

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C59141 Genetic study data sequencing category type

Type of sequencing category data expected for the genetics study

 Supplemental Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C09607 Brief Psychiatric Rating Scale (BPRS) - disorientation score

The score of the participant's/subject's disorientation, as part of the Brief Psychiatric Rating Scale (BPRS) form.

 Supplemental Brief Psychiatric Rating Scale (BPRS) False Parkinson's Disease Parkinson's Disease
Displaying 576 - 600 of 749

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.