CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 526 - 550 of 749

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2955-C18027	C18027	Comment text	Provide any additional information that pertains to the question	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2952-C08065	C08065	Surgical complication category	Category of the surgical complication experienced by the participant/subject	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F3042-C09575	C09575	Brief Pain Inventory (BPI) - other pain indicator	Indicates if the subject had pain other than everyday kinds of pain, as part of the Brief Pain Inventory (BPI) form	Supplemental	Brief Pain Inventory (BPI) Short Form	True	Parkinson's Disease	Parkinson's Disease
F2947-C17684	C17684	Non-prescribed controlled psychoactive drug substance stimulant cocaine text	The text specifying the drugs within the Stimulants: cocaine/crack category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject	Supplemental	Non-prescribed Drug Use Questionnaire	False	Parkinson's Disease	Parkinson's Disease
F2955-C12785	C12785	Gene variant mutation detected result type	Type of gene variant or mutation detected	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2945-C08105	C08105	Day care start date	Date participant/subject first started day care outside of home	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
F0803-C09601	C09601	Brief Psychiatric Rating Scale (BPRS) - halluncinatory behavior score	The score of the participant's/subject's hallucinatory, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Supplemental	Brief Psychiatric Rating Scale (BPRS)	False	Parkinson's Disease	Parkinson's Disease
F3048-C10167	C10167	Quantitative sudomotor axon reflex test (QSART) - resting skin temperature measurement	Measurement of resting skin temperature at a "normal" state from quantitative sudomotor axon reflex test (QSART)	Supplemental	Other Non-Motor Guidance for CDE Use	False	Parkinson's Disease	Parkinson's Disease
F2955-C19595	C19595	Genetic test karyotype tissue type	Type of tissue tested in the karyotype test	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2952-C18757	C18757	Surgery lead secure method type other text	The free-text field related to 'Surgery lead secure method type', specifying other text. Type of method or device used to protect and secure the lead (part of the electrode that is introduced into the brain), this part must be safely secured and held still	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F3042-C09583	C09583	Brief Pain Inventory (BPI) - pain general activity interference scale	Scale assessing how much the pain has interfered with general activity, as part of the Brief Pain Inventory (BPI) form	Supplemental	Brief Pain Inventory (BPI) Short Form	True	Parkinson's Disease	Parkinson's Disease
F2953-C02024	C02024	Medication prior or concomitant indication text	Text describing reason for administration of a prior/concomitant (nonstudy) agent or measure. This is not the pharmacologic classification of an agent (antibiotic, analgesic, etc.), but the reason for its administration to the participant/subject	Supplemental	Non-Parkinson's Disease Medication Log	False	Parkinson's Disease	Parkinson's Disease
F2955-C59173	C59173	Gene pathogenic certainty status other text	The free-text field related to 'Gene pathogenic certainty status', specifying other text. Status related to pathogenic certainty for the gene screened in the participant/subject	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2952-C59135	C59135	Stimulation brain parameter frequency value	Value of the frequency (Hz) of electric pulses (stimulation) on brain hemisphere	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F3048-C10174	C10174	FEV1/FVC percentage value	Forced Expired Volume in One Second (FEV1) volume divided by Forced Vital Capacity (FVC), expressed as percent	Supplemental	Other Non-Motor Guidance for CDE Use	False	Parkinson's Disease	Parkinson's Disease
F2955-C19615	C19615	Genetic test name	The name of the genetic test used	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F3028-C07432	C07432	Patient Health Questionnaire (PHQ) - Sleep impairment score	Score of how much the subject has been bothered with troubling falling/staying asleep or sleeping too much in the past two weeks, as part of the Patient Health Questionnaire (PHQ)	Supplemental	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Parkinson's Disease	Parkinson's Disease
F2952-C59144	C59144	Brain lead post implant interval	Interval post implantation of brain leads at which the stimulation and parameters and clinical motor outcomes were documented	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F3048-C10183	C10183	Thermoregulatory sweat test 30 minutes elapsed room temperature value	Temperature of the room which induced the participant/subject to sweat for 30 minutes during the Thermoregulatory Sweat Test (TST)	Supplemental	Other Non-Motor Guidance for CDE Use	False	Parkinson's Disease	Parkinson's Disease
F2952-C59096	C59096	L-Dopa pre-operative challenge off dopamine agonist duration	Duration in hours the participant/subject was off of dopamine agonists as part of the pre-operative L-Dopa challenge	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2948-C59030	C59030	Family history relative type psychiatric disorder member count	Count of family members and ancestors, for the specified relative type, with a psychiatric disorder(s)	Supplemental	Family History	False	Parkinson's Disease	Parkinson's Disease
F3028-C07441	C07441	Patient Health Questionnaire (PHQ) - Difficulty performing scale	The scale related to how difficult it is to do work, take care of things at home, or get along with other people for the subject, as part of the Patient Health Questionnaire (PHQ)	Supplemental	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Parkinson's Disease	Parkinson's Disease
F2952-C59152	C59152	Implantable pulse generator remove count	Count of implantable pulse generators (IPGs) removed	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2952-C59107	C59107	Surgery head fixation text	The free-text field to specify the head fixation to the operating room table used for the subject/participant during surgery	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2952-C59162	C59162	Lead extender replacement reason other text	The free-text field related to 'Lead extender replacement reason', specifying other text. The reason the lead extender was replaced	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.