CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 401 - 425 of 749
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C59120 Brain lead directional type other text

The free-text field related to 'Brain lead type', specifying the other type of directional lead inserted

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C09349 Hamilton Anxiety Rating Scale (HAM-A) - somatic muscular score

The score of the participant's/subject's somatic (muscular) levels, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

 Supplemental Hamilton Anxiety Rating Scale (HAM-A) False Parkinson's Disease Parkinson's Disease
C02002 Medication prior or concomitant use indicator

Indicator of whether the participant/subject reported taking any medications during the time period relevant to the study protocol

 Supplemental Non-Parkinson's Disease Medication Log False Parkinson's Disease Parkinson's Disease
C59166 Genotype platform URL text

The free-text field specifying the genotype platform URL (uniform resource locator)

 Supplemental Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C59128 Imaging processing software name

Name of the software used for imaging processing

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C09357 Hamilton Anxiety Rating Scale (HAM-A) - behavior interview score

The score of the participant's/subject's behavior at interview, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

 Supplemental Hamilton Anxiety Rating Scale (HAM-A) False Parkinson's Disease Parkinson's Disease
C02025 Medication prior or concomitant RXNorm code

Code for name of the prior/concomitant agent or drug administered

 Supplemental Non-Parkinson's Disease Medication Log False Parkinson's Disease Parkinson's Disease
C59136 Stimulation brain parameter pulse width value

Value of the width of electric pulses (stimulation) on brain hemisphere

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C10175 FEF25-75 percentage value

Forced expiratory flow rate between 25 to 75% of FVC (Used to be known as maximal mid expiratory flow rate)

 Supplemental Other Non-Motor Guidance for CDE Use False Parkinson's Disease Parkinson's Disease
C07433 Patient Health Questionnaire (PHQ) - Tired little energy score

Score of how much the subject has been feeling tired in the past two weeks, as part of the Patient Health Questionnaire (PHQ)

 Supplemental Patient Health Questionnaire - 9 (PHQ-9) Depression Scale True Parkinson's Disease Parkinson's Disease
C59145 Brain lead post implant interval unit of measure

Unit of measure for the interval post implantation of brain leads at which the stimulation and parameters and clinical motor outcomes were documented

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C10184 Thermoregulatory sweat test room temperature unit of measurement

Unit temperature is measured in for the Thermoregulatory Sweat Test (TST)

 Supplemental Other Non-Motor Guidance for CDE Use False Parkinson's Disease Parkinson's Disease
C59097 Dopamine agonist specify text

The free-text field to specify the dopamine agonist taken by the participant/subject

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C59153 Lead extender remove count

Count of lead extenders removed

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C59084 Genetic study type

Type of genetics study conducted

 Supplemental Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C59108 Stereotactic surgery robotic guidance lead insert indicator

Indicator of whether robotic guidance was used during stereotactic surgery for lead insertion

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C20372 Pittsburgh Sleep Quality Index (PSQI) - Sleep quality past month scale

Rating of overall sleep quality past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Supplemental Pittsburgh Sleep Quality Index (PSQI) False Parkinson's Disease Parkinson's Disease
C17890 Allele number one missense nonsense variant or point mutation subclass information type

Type of missense/nonsense variant or point mutation subclass information, first allele number one

 Supplemental Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C08042 Surgery externalization use indicator

Indicator of whether a procedure of exposing the implanted electrodes out of the brain for stimulation purposes was performed

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C20437 Beck Depression Inventory II (BDI-II) - Irritability scale

Scale identifying level of irritability, as part of the Beck Depression Inventory II (BDI-II)

 Supplemental Beck Depression Inventory II (BDI-II) True Parkinson's Disease Parkinson's Disease
C00716 Drug or substance illicit use duration

Duration, in years, the participant/subject has used unprescribed, controlled psychoactive drugs or substances

 Supplemental Non-prescribed Drug Use Questionnaire False Parkinson's Disease Parkinson's Disease
C10845 Gene screened indicator

Indicator whether the participant/subject was screened for the specific gene mutation (e.g., Superoxide dismutase 1, Fused in sarcoma, TAR DNA binding protein) commonly seen in the disease or disorder

 Supplemental Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C08076 Breastfed indicator

Indicator of whether the participant/subject was breastfed by his/her mother

 Supplemental History of Early Exposure False Parkinson's Disease Parkinson's Disease
C09595 Brief Psychiatric Rating Scale (BPRS) - tension score

The score of the participant's/subject's tension, as part of the Brief Psychiatric Rating Scale (BPRS) form.

 Supplemental Brief Psychiatric Rating Scale (BPRS) False Parkinson's Disease Parkinson's Disease
C20380 Pittsburgh Sleep Quality Index (PSQI) - Bed partner roommate present scale

The scale that reflects the presence of a bed partner or roommate, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Supplemental Pittsburgh Sleep Quality Index (PSQI) False Parkinson's Disease Parkinson's Disease
Displaying 401 - 425 of 749

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.