CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 326 - 350 of 759
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C10421 Sialorrhea Clinical Scale for PD (SCS-PD) - drool day score

How many times do you drool during the daytime? As part of SCS-PD questionnaire

Supplemental Sialorrhea Clinical Scale for Parkinson's Disease (SCS-PD) Parkinson's Disease Parkinson's Disease
C20373 Pittsburgh Sleep Quality Index (PSQI) - Problem maintain enthusiasm past month category

The scale to which the subject had problems keeping up enough enthusiasm to get things done past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Parkinson's Disease Parkinson's Disease
C17891 Gene additional variants unknown significance text

Text about additional variants in other genes of unknown significance

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C08045 Surgery post-operative target verification method source

Post-operative source method used for verifying the brain nucleus (target) was reached

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C20438 Beck Depression Inventory II (BDI-II) - Appetite change scale

Scale identifying level of change in appetite, as part of the Beck Depression Inventory II (BDI-II)

Supplemental Beck Depression Inventory II (BDI-II) Parkinson's Disease Parkinson's Disease
C08232 Drug or substance illicit use ever indicator

Indicator of participant's/subject's use of illegal drugs, prescription or over-the-counter drugs at any point in his/her lifetime for purposes other than those for which they are meant to be used, or in large amounts

Supplemental Non-prescribed Drug Use Questionnaire Parkinson's Disease Parkinson's Disease
C10846 Gene variant or mutation indicator

Indicator whether a variant or mutation was found in the common gene screened in the participant/subject for the disease or disorder

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C08078 Full biological sisters count

Count of full biological sisters the participant/subject has

Supplemental History of Early Exposure Parkinson's Disease Parkinson's Disease
C09596 Brief Psychiatric Rating Scale (BPRS) - mannerisms posturing score

The score of the participant's/subject's mannerisms and posturing, as part of the Brief Psychiatric Rating Scale (BPRS) form.

Supplemental Brief Psychiatric Rating Scale (BPRS) Parkinson's Disease Parkinson's Disease
C20381 Pittsburgh Sleep Quality Index (PSQI) - Fall asleep past month minute duration

The duration of time (in minutes) it takes the subject to fall asleep the majority of the nights in the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Parkinson's Disease Parkinson's Disease
C19014 Gene detection method type other text

The free-text field related to 'Gene detection method type' specifying other text. The method used to detect the gene mutation or variant

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C14517 Device manufacturer name

The company responsible for development of the device

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C09578 Brief Pain Inventory (BPI) - least pain rating scale

Scale indicating the rating of the least pain experienced by the subject, as part of the Brief Pain Inventory (BPI) form

Supplemental Brief Pain Inventory (BPI) Short Form Parkinson's Disease Parkinson's Disease
C17687 Non-prescribed controlled psychoactive drug substance sedative barbiturate text

The text specifying the drugs within the 'Sedatives-barbiturates and others: phenobarbital, Seconol, Nembutal, Dorieden, Quaalude, Amytal, Fiorinal, downers,' category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject

Supplemental Non-prescribed Drug Use Questionnaire Parkinson's Disease Parkinson's Disease
C12788 Gene exon copy number tested indicator

Whether the copy number was directly tested for all exons

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C08108 Preschool attendance indicator

Indicator of whether the participant/subject attended preschool as a child

Supplemental History of Early Exposure Parkinson's Disease Parkinson's Disease
C09604 Brief Psychiatric Rating Scale (BPRS) - unusual thought content score

The score of the participant's/subject's unusual thought content, as part of the Brief Psychiatric Rating Scale (BPRS) form.

Supplemental Brief Psychiatric Rating Scale (BPRS) Parkinson's Disease Parkinson's Disease
C19600 Genetic test diagnostic laboratory name

Name of diagnostic laboratory for genetic testing

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C18761 Surgical complication intra-operative type other text

The free-text field related to 'Surgical complications intra-operative type', specifying other text. Type of intra-operative surgical complications experienced by the participant/subject

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
C09586 Brief Pain Inventory (BPI) - pain normal work interference scale

Scale assessing how much the pain has interfered with normal work, as part of the Brief Pain Inventory (BPI) form

Supplemental Brief Pain Inventory (BPI) Short Form Parkinson's Disease Parkinson's Disease
C59024 Subscribed drug or substance illicitly used specify other text

The text specifying the drugs within the 'Other, specify: (e.g., anabolic steroids)' category as illegal drugs, prescription, or over-the-counter drugs the participant/subject used for purposes other than those for which they are meant to be used, or in large amounts

Supplemental Non-prescribed Drug Use Questionnaire Parkinson's Disease Parkinson's Disease
C12798 Gene missense nonsense variant or point mutation location type

Type of location of the missense/nonsense variant or point mutation

Supplemental Parkinson's Disease Genetics Parkinson's Disease Parkinson's Disease
C59056 Imaging quantitative outcome tyrosine hydroxylase radioligand type

Type of tyrosine hydroxylase radioligand used for the quantitative imaging outcome to describe tracer distribution and uptake for the imaging data analysis being documented.

Supplemental PET-SPECT Localization Parkinson's Disease Parkinson's Disease
C59062 Birth weight known indicator

Indicator of whether the participant/subject knows his/her birth weight

Supplemental History of Early Exposure Parkinson's Disease Parkinson's Disease
C59138 Stimulation brain paradigm type other text

The free-text field related to 'Stimulation brain paradigm type', specifying other text. Type of brain stimulation paradigm

Supplemental Functional Neurosurgery: Deep Brain Stimulation Parkinson's Disease Parkinson's Disease
Displaying 326 - 350 of 759

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.