CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 301 - 325 of 759

« first
‹ previous
…
9
10
11
12
13
14
15
16
17
…
next ›
last »

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2952-C59088	C59088	Deep brain stimulation indication type	Type of indications for deep brain stimulation (DBS)	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F3028-C07435	C07435	Patient Health Questionnaire (PHQ) - Abnormal diet score	Score of how much the subject has been bothered by abnormal diet/appetite in the past two weeks, as part of the Patient Health Questionnaire (PHQ)	Supplemental	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Parkinson's Disease	Parkinson's Disease
F2952-C59146	C59146	Surgical complication hemorrhage symptom status	Status of hemorrhage symptoms related to intra-operative or post-operative surgical complications	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F3048-C10185	C10185	Thermoregulatory sweat test intensity color change value	Intensity of the color change of the chemical on participant/subject's body during the Thermoregulatory Sweat Test (TST)	Supplemental	Other Non-Motor Guidance for CDE Use	False	Parkinson's Disease	Parkinson's Disease
F3043-C20365	C20365	Pittsburgh Sleep Quality Index (PSQI) - Cough snore loudly past month scale	The scale to which the subject coughed or snored loudly during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Parkinson's Disease	Parkinson's Disease
F2955-C15557	C15557	Gene detection method type	The method used to detect the gene mutation or variant	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2952-C08035	C08035	Stereotactic surgery frame type	Scaffold or support used for stereotactic surgery	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F3041-C20430	C20430	Beck Depression Inventory II (BDI-II) - Crying scale	Scale identifying level of crying, as part of the Beck Depression Inventory II (BDI-II)	Supplemental	Beck Depression Inventory II (BDI-II)	True	Parkinson's Disease	Parkinson's Disease
F2946-C08100	C08100	Pneumonia episode age value	Participant's/subject's age at the time of the pneumonia episode	Supplemental	Infection History	False	Parkinson's Disease	Parkinson's Disease
F0796-C10421	C10421	Sialorrhea Clinical Scale for PD (SCS-PD) - drool day score	How many times do you drool during the daytime? As part of SCS-PD questionnaire	Supplemental	Sialorrhea Clinical Scale for Parkinson's Disease (SCS-PD)	False	Parkinson's Disease	Parkinson's Disease
F3043-C20373	C20373	Pittsburgh Sleep Quality Index (PSQI) - Problem maintain enthusiasm past month category	The scale to which the subject had problems keeping up enough enthusiasm to get things done past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Parkinson's Disease	Parkinson's Disease
F2955-C17891	C17891	Gene additional variants unknown significance text	The free-text field about additional variants in other genes of unknown significance	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2952-C08045	C08045	Surgery post-operative target verification method source	Post-operative source method used for verifying the brain nucleus (target) was reached	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F3041-C20438	C20438	Beck Depression Inventory II (BDI-II) - Appetite change scale	Scale identifying level of change in appetite, as part of the Beck Depression Inventory II (BDI-II)	Supplemental	Beck Depression Inventory II (BDI-II)	True	Parkinson's Disease	Parkinson's Disease
F2947-C08232	C08232	Drug or substance illicit use ever indicator	Indicator of participant's/subject's use of illegal drugs, prescription or over-the-counter drugs at any point in his/her lifetime for purposes other than those for which they are meant to be used, or in large amounts	Supplemental	Non-prescribed Drug Use Questionnaire	False	Parkinson's Disease	Parkinson's Disease
F2955-C10846	C10846	Gene variant or mutation indicator	Indicator whether a variant or mutation was found in the common gene screened in the participant/subject for the disease or disorder	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2945-C08078	C08078	Full biological sisters count	Count of full biological sisters the participant/subject has	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
F0803-C09596	C09596	Brief Psychiatric Rating Scale (BPRS) - mannerisms posturing score	The score of the participant's/subject's mannerisms and posturing, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Supplemental	Brief Psychiatric Rating Scale (BPRS)	False	Parkinson's Disease	Parkinson's Disease
F3043-C20381	C20381	Pittsburgh Sleep Quality Index (PSQI) - Fall asleep past month minute duration	The duration of time (in minutes) it takes the subject to fall asleep the majority of the nights in the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Parkinson's Disease	Parkinson's Disease
F2955-C19014	C19014	Gene detection method type other text	The free-text field related to 'Gene detection method type' specifying other text. The method used to detect the gene mutation or variant	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2952-C14517	C14517	Device manufacturer name	The company responsible for development of the device	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F3042-C09578	C09578	Brief Pain Inventory (BPI) - least pain rating scale	Scale indicating the rating of the least pain experienced by the subject, as part of the Brief Pain Inventory (BPI) form	Supplemental	Brief Pain Inventory (BPI) Short Form	True	Parkinson's Disease	Parkinson's Disease
F2947-C17687	C17687	Non-prescribed controlled psychoactive drug substance sedative barbiturate text	The text specifying the drugs within the 'Sedatives-barbiturates and others: phenobarbital, Seconol, Nembutal, Dorieden, Quaalude, Amytal, Fiorinal, downers,' category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject	Supplemental	Non-prescribed Drug Use Questionnaire	False	Parkinson's Disease	Parkinson's Disease
F2955-C12788	C12788	Gene exon copy number tested indicator	Indicator of whether the copy number was directly tested for all exons	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2945-C08108	C08108	Preschool attendance indicator	Indicator of whether the participant/subject attended preschool as a child	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease

Displaying 301 - 325 of 759

« first
‹ previous
…
9
10
11
12
13
14
15
16
17
…
next ›
last »

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.