CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 101 - 125 of 749

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2947-C17684	C17684	Non-prescribed controlled psychoactive drug substance stimulant cocaine text	The text specifying the drugs within the Stimulants: cocaine/crack category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject	Supplemental	Non-prescribed Drug Use Questionnaire	False	Parkinson's Disease	Parkinson's Disease
F2955-C15520	C15520	Genetic testing performed indicator	Indicator of whether the participant had genetic testing performed	Supplemental-Highly Recommended	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2954-C02015	C02015	Medication prior or concomitant route type	Type of access route for the administration of the prior/concomitant medication	Supplemental-Highly Recommended	Parkinson's Disease Medication Log	False	Parkinson's Disease	Parkinson's Disease
F2955-C16197	C16197	Biological sample in repository location name	The location of the banked biological sample or specimen, if known	Supplemental-Highly Recommended	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2952-C08066	C08066	Surgical complication intra-operative type	Type of intra-operative surgical complications experienced by the participant/subject	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2947-C17685	C17685	Non-prescribed controlled psychoactive drug substance stimulant amphetamine text	The text specifying the drugs within the 'Stimulants: amphetamine, Benzedrine, Methedrine, Dexedrine, Preludin, Ritalin, uppers, speed,' category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject	Supplemental	Non-prescribed Drug Use Questionnaire	False	Parkinson's Disease	Parkinson's Disease
F2955-C12785	C12785	Gene variant mutation detected result type	Type of gene variant or mutation detected	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F3048-C10167	C10167	Quantitative sudomotor axon reflex test (QSART) - resting skin temperature measurement	Measurement of resting skin temperature at a "normal" state from quantitative sudomotor axon reflex test (QSART)	Supplemental	Other Non-Motor Guidance for CDE Use	False	Parkinson's Disease	Parkinson's Disease
F2945-C16170	C16170	Menstrual period occurrence indicator	Indicates whether participant has ever had a menstrual period	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
F2955-C15539	C15539	Gene variant or mutation type	The type of genetic variant or mutation shown	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2954-C02016	C02016	Medication prior or concomitant start date and time	The date (and time, if applicable and known) on which the prior/concomitant medication usage began	Supplemental-Highly Recommended	Parkinson's Disease Medication Log	False	Parkinson's Disease	Parkinson's Disease
F2945-C01582	C01582	Height unit of measure	Unit of measure for the height numerical value for participant	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
F2951-C01541	C01541	Weight measurement	Measurement of participant's weight	Supplemental-Highly Recommended	PET-SPECT Localization	False	Parkinson's Disease	Parkinson's Disease
F2949-C08013	C08013	Dystonia symptom text	The free-text field to specify symptoms experienced by the participant/subject related to dystonia	Supplemental	Medical History of Parkinson's Disease	False	Parkinson's Disease	Parkinson's Disease
F2952-C08067	C08067	Surgical complication post-operative type	Type of post-operative surgical complications experienced by the participant/subject	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2947-C17686	C17686	Non-prescribed controlled psychoactive drug substance sedative tranquilizer text	The text specifying the drugs within the 'Sedatives/minor tranquilizers/muscle relaxants-benzodiazepines and others: Valium/diazepam, Librium, Halcion, Xanax, Dalmane, Flexeril,' category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject	Supplemental	Non-prescribed Drug Use Questionnaire	False	Parkinson's Disease	Parkinson's Disease
F2945-C08107	C08107	Day care hour per week value	Approximate hours per week the participant/subject attended day care as a child	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
F2954-C02022	C02022	Medication prior or concomitant dose unit of measure	Dosage unit of measure of the prior or concomitant medication administered	Supplemental-Highly Recommended	Parkinson's Disease Medication Log	False	Parkinson's Disease	Parkinson's Disease
F2952-C08042	C08042	Surgery externalization use indicator	Indicator of whether a procedure of exposing the implanted electrodes out of the brain for stimulation purposes was performed	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2950-C08238	C08238	Imaging repetition gap duration	Duration between successive pulse sequences, in milliseconds, applied to the same slice during imaging acquisition	Supplemental-Highly Recommended	MRI and Spectroscopy	False	Parkinson's Disease	Parkinson's Disease
F2955-C17890	C17890	Allele number one missense nonsense variant or point mutation subclass information type	Type of missense/nonsense variant or point mutation subclass information, first allele number one	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2955-C10845	C10845	Gene screened indicator	Indicator whether the participant/subject was screened for the specific gene mutation (e.g., Superoxide dismutase 1, Fused in sarcoma, TAR DNA binding protein) commonly seen in the disease or disorder	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2947-C17687	C17687	Non-prescribed controlled psychoactive drug substance sedative barbiturate text	The text specifying the drugs within the 'Sedatives-barbiturates and others: phenobarbital, Seconol, Nembutal, Dorieden, Quaalude, Amytal, Fiorinal, downers,' category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject	Supplemental	Non-prescribed Drug Use Questionnaire	False	Parkinson's Disease	Parkinson's Disease
F2952-C08035	C08035	Stereotactic surgery frame type	Scaffold or support used for stereotactic surgery	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2952-C08045	C08045	Surgery post-operative target verification method source	Post-operative source method used for verifying the brain nucleus (target) was reached	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.