CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 151 - 175 of 759

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3043-C20366	C20366	Pittsburgh Sleep Quality Index (PSQI) - Trouble stay awake past month scale	The scale to which the subject had trouble staying awake while driving, eating meals, or engaging in social activity past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Parkinson's Disease	Parkinson's Disease
F2952-C59105	C59105	Anesthesia type	Type of anesthesia given to the participant/subject	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F3041-C20431	C20431	Beck Depression Inventory II (BDI-II) - Pessimism scale	Scale identifying level of pessimism, as part of the Beck Depression Inventory II (BDI-II)	Supplemental	Beck Depression Inventory II (BDI-II)	True	Parkinson's Disease	Parkinson's Disease
F3029-C20535	C20535	European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Health today scale	Scale of how good or bad the participant's health is today, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)	Supplemental-Highly Recommended	EuroQoL-5 Dimension Questionnaire (EQ-5D)	True	Parkinson's Disease	Parkinson's Disease
F2952-C59159	C59159	Lead extender replacement manipulation count	Count of brain lead extenders replaced or manipulated during further surgery	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2955-C59104	C59104	Genetic study data type category	Category of data type expected for the genetics study	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F3043-C20374	C20374	Pittsburgh Sleep Quality Index (PSQI) - Other reason past month other text	The free-text entry for other reason(s) the subject reported having trouble sleeping in the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Parkinson's Disease	Parkinson's Disease
F2952-C59115	C59115	Test stimulation sedation type	Type of sedation used during test stimulation through deep brain stimulation (DBS) lead or other microcontact used during intra-operative target verification	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F3041-C20439	C20439	Beck Depression Inventory II (BDI-II) - Concentration difficulty scale	Scale identifying level of difficulty concentrating, as part of the Beck Depression Inventory II (BDI-II)	Supplemental	Beck Depression Inventory II (BDI-II)	True	Parkinson's Disease	Parkinson's Disease
F2169-C18748	C18748	Risk Factor Questionnaire (RFQ) - military service branch other text	The free-text field related to 'Risk Factor Questionnaire (RFQ) - military service branch type' specifying other text. The type of branch the participant/subject was in for the longest duration as part of the Risk Factor Questionnaire (RFQ) - Occupation	Supplemental-Highly Recommended	Risk Factor Questionnaire (RFQ) - Occupation and Employment Status	True	Parkinson's Disease	Parkinson's Disease
F3030-C54704	C54704	Epworth Sleepiness Scale (ESS) - Doze off likelihood sit car stop traffic code	The code denoting the subect/participant's self-reported likelihood of dozing off while sitting in a car stopped in traffic, as part of the Epworth Sleepiness Scale (ESS)	Supplemental-Highly Recommended	Epworth Sleepiness Scale (ESS) - Adult Version	True	Parkinson's Disease	Parkinson's Disease
F2952-C59588	C59588	Anterior commissure posterior commissure target x coordinate value	Stereotactic x coordinate with respect to anterior and posterior commissure (brain nuclei)	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2955-C59163	C59163	Genotype platform version text	The free-text field to specify the genotype platform version	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F3043-C20382	C20382	Pittsburgh Sleep Quality Index (PSQI) - Sleep disturbance scale	The scale to which sleep disturbance was calculated, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Parkinson's Disease	Parkinson's Disease
F2952-C59125	C59125	Pulse generator insert count	Count of pulse generators inserted	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2951-C59052	C59052	Imaging MRI acquire co-registration date and time	Date (and time, if applicable and known) of MRI acquired for co-registration with the imaging study being documented.	Supplemental-Highly Recommended	PET-SPECT Localization	False	Parkinson's Disease	Parkinson's Disease
F2952-C59086	C59086	Motor fluctuation year duration	Duration in years of motor fluctuations at the time of surgery	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2945-C59066	C59066	Twin sibling birth sex assigned type	Sex assigned at birth of participant's/subject's twin sibling	Supplemental	History of Early Exposure	False	Parkinson's Disease	Parkinson's Disease
F3056-C54692	C54692	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health carry out social role scale	Scale related to an individual's rating of his/her ability to carry out usual social activities and roles, as part of the PROMIS Global Health	Supplemental	PROMIS Item Bank v1.2 - Global Health	True	Parkinson's Disease	Parkinson's Disease
F2951-C59044	C59044	Imaging camera type other text	The free-text field related to 'Imaging camera type', specifying other text. Type of imaging camera used	Supplemental-Highly Recommended	PET-SPECT Localization	False	Parkinson's Disease	Parkinson's Disease
F2955-C59172	C59172	Gene pathogenic certainty status	Status related to pathogenic certainty for the gene screened in the participant/subject	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2952-C59134	C59134	Stimulation brain parameter amplitude unit of measure	Unit of measure for amplitude of electric impulses (stimulation) on brain hemisphere	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2955-C19610	C19610	Genetic test result date	The date of reporting of the genetic test results	Supplemental	Parkinson's Disease Genetics	False	Parkinson's Disease	Parkinson's Disease
F2952-C59143	C59143	Unified Parkinsons Disease Rating Scale part three on DBS on medication score	The score related to part three of the Unified Parkinson's Disease Rating Scale (UPDRS) when the participant/subject is on DBS and on medications	Supplemental	Functional Neurosurgery: Deep Brain Stimulation	False	Parkinson's Disease	Parkinson's Disease
F2950-C59026	C59026	Imaging radio frequency coil manufacturer name other text	The free-text field related to 'Imaging radio frequency coil manufacturer name', specifying other text. Name of the manufacturer of the radio frequency (RF) coil used for the imaging scan	Supplemental-Highly Recommended	MRI and Spectroscopy	False	Parkinson's Disease	Parkinson's Disease

Displaying 151 - 175 of 759

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.