CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 126 - 150 of 749
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C59087 Dyskinesia troublesome year duration

Duration in years of troublesome dyskinesias at the time of surgery

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C20535 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Health today scale

Scale of how good or bad the participant's health is today, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

 Supplemental-Highly Recommended EuroQoL-5 Dimension Questionnaire (EQ-5D) True Parkinson's Disease Parkinson's Disease
C59104 Genetic study data type category

Category of data type expected for the genetics study

 Supplemental Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C54704 Epworth Sleepiness Scale (ESS) - Doze off likelihood sit car stop traffic code

The code denoting the subect/participant's self-reported likelihood of dozing off while sitting in a car stopped in traffic, as part of the Epworth Sleepiness Scale (ESS)

 Supplemental-Highly Recommended Epworth Sleepiness Scale (ESS) - Adult Version True Parkinson's Disease Parkinson's Disease
C59163 Genotype platform version text

The free-text field to specify the genotype platform version

 Supplemental Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C59045 Imaging pre-scan procedure type carbidopa specify text

The free-text field related to 'Imaging pre-scan procedure type', specifying Carbidopa details. Type(s) of pre-scan procedures administered to the participant/subject

 Supplemental-Highly Recommended PET-SPECT Localization False Parkinson's Disease Parkinson's Disease
C59171 Gene copy number change name

In cases of an genetic variant or mutation, specify the copy number change

 Supplemental Parkinson's Disease Genetics False Parkinson's Disease Parkinson's Disease
C59053 Imaging quantitative outcome indicator

Indicator of use of a quantitative outcome to describe tracer distribution and uptake for the imaging data analysis

 Supplemental PET-SPECT Localization False Parkinson's Disease Parkinson's Disease
C59135 Stimulation brain parameter frequency value

Value of the frequency (Hz) of electric pulses (stimulation) on brain hemisphere

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C20361 Pittsburgh Sleep Quality Index (PSQI) - Partner report long pause breathe past month scale

The scale to which the subject's partner reported long pauses between breaths during sleep the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Supplemental Pittsburgh Sleep Quality Index (PSQI) False Parkinson's Disease Parkinson's Disease
C20426 Beck Depression Inventory II (BDI-II) - Punishment feeling scale

Scale identifying level of punishment feelings, as part of the Beck Depression Inventory II (BDI-II)

 Supplemental Beck Depression Inventory II (BDI-II) True Parkinson's Disease Parkinson's Disease
C59024 Subscribed drug or substance illicitly used specify other text

The text specifying the drugs within the 'Other, specify: (e.g., anabolic steroids)' category as illegal drugs, prescription, or over-the-counter drugs the participant/subject used for purposes other than those for which they are meant to be used, or in large amounts

 Supplemental Non-prescribed Drug Use Questionnaire False Parkinson's Disease Parkinson's Disease
C59144 Brain lead post implant interval

Interval post implantation of brain leads at which the stimulation and parameters and clinical motor outcomes were documented

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C59031 Imaging slice order text

The free-text field to specify the slice order used in imaging acquisition

 Supplemental-Highly Recommended MRI and Spectroscopy False Parkinson's Disease Parkinson's Disease
C20369 Pittsburgh Sleep Quality Index (PSQI) - Other reason past month scale

The scale to which the subject had trouble sleeping for other reasons during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Supplemental Pittsburgh Sleep Quality Index (PSQI) False Parkinson's Disease Parkinson's Disease
C59062 Birth weight known indicator

Indicator of whether the participant/subject knows his/her birth weight

 Supplemental History of Early Exposure False Parkinson's Disease Parkinson's Disease
C59096 L-Dopa pre-operative challenge off dopamine agonist duration

Duration in hours the participant/subject was off of dopamine agonists as part of the pre-operative L-Dopa challenge

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C59030 Family history relative type psychiatric disorder member count

Count of family members and ancestors, for the specified relative type, with a psychiatric disorder(s)

 Supplemental Family History False Parkinson's Disease Parkinson's Disease
C20434 Beck Depression Inventory II (BDI-II) - Worthlessness scale

Scale identifying level of worthlessness, as part of the Beck Depression Inventory II (BDI-II)

 Supplemental Beck Depression Inventory II (BDI-II) True Parkinson's Disease Parkinson's Disease
C59152 Implantable pulse generator remove count

Count of implantable pulse generators (IPGs) removed

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C59582 Imaging blood oxygenation level dependent collect minute value

Value of minutes to perform blood oxygenation level dependent (BOLD) fMRI scan

 Supplemental-Highly Recommended MRI and Spectroscopy False Parkinson's Disease Parkinson's Disease
C20377 Pittsburgh Sleep Quality Index (PSQI) - Past month bed time

The bed time (recorded as 24-hour clock or military time) for the majority of the nights in the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Supplemental Pittsburgh Sleep Quality Index (PSQI) False Parkinson's Disease Parkinson's Disease
C59070 Shave facial hair regular begin age value

The age at which the participant/subject began to regularly shave facial hair. Regular shaving is defined as once a week or more

 Supplemental History of Early Exposure False Parkinson's Disease Parkinson's Disease
C59107 Surgery head fixation text

The free-text field to specify the head fixation to the operating room table used for the subject/participant during surgery

 Supplemental Functional Neurosurgery: Deep Brain Stimulation False Parkinson's Disease Parkinson's Disease
C20442 Beck Depression Inventory II (BDI-II) - Total score

Total score, as part of the Beck Depression Inventory II (BDI-II)

 Supplemental Beck Depression Inventory II (BDI-II) True Parkinson's Disease Parkinson's Disease
Displaying 126 - 150 of 749

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.